Randy Miller
Mouseketeer
- Joined
- Jun 13, 2015
- Messages
- 243
Our both have g tubes, one is “skinny”’and one is “chunky” lol. Chunky can take very small tastes of real food, and they have him on a higher calorie feed recipe. Thank the Lord for SSI Medicaid. We could never afford the 2 standers, walker, 2 gait trainers, creepster crawler and specialized chairs we have! Right now, while they are “little( 2.5 and 4.5) we can use the double stroller as “wheelchair” but I know that won’t last long.We *just* got his custom wheelchair/stroller hybrid and OMG what a difference! It's a Convaid Cruiser and it was *NOT* cheap - almost $4k!! But thankfully his SSI Medicaid paid for it. It's completely outfitted with custom supports and straps though, so he'll be able to use it for a long time - especially since he's very tiny for his age.

