We just returned from a two week vacation at WDW and had quite an exhausting experience with air travel related to the heightened security measures. We saw quite a bit of confusion at both the O'Hare and Orlando International Airports and I would strongly recommend against sending someone with diminished mental faculties on a flight alone. I believe that some of the airlines will (for a fee) provide nursing services.
I had intended to let the dust settle a bit before posting our recent travel experiences as I thought I might be able to be a little more objective. However, it might help folks to know about our recent experiences so that they can consider whether they really want to travel at this time. On our two day journey from Anchorage to Orlando we were "profiled." All of our checked bags were x-rayed and my husband was called back to the security area to explain the needles we had in our checked bags to flush our son's central line. Our carry on luggage was searched by hand and we were patted down and "wanded." I can kind of understand the carry on luggage concern as we carry two ventilators, two suction machines, two feeding pumps, batteries for the ventilators, chargers for the machines, etc. The checked luggage is a different story. We had 7 bags for 5 seats (we purchase 3 seats for our young son due to his orthopedic and medical issues). On the way back, our checked bags were "dump searched." That means that the security folks went through everything. All of our son's medical and feeding supplies, our toiletry items, our souvieniers (sp?), our dirty laundry, EVERYTHING. It took us almost 3 hours to get to the gate in Orlando and our son has difficulty sitting up in his wheelchair for long periods of time. The security and airline folks who were involved in the searches were all very apologetic and nice about the whole thing. However, it was in a word and ORDEAL. In Chicago, the CTX machine they use to x-ray luggage broke down earlier in the day and the wait was supposedly 3 hours. The security people failed to inform the airlines about the wait. When the ticket agent at the Alaska Airlines counter found out, she personally took our bags to security. She and her supervisor argued with security that our flight was leaving in less than three hours and our bags needed to be checked. Security refused, so that ticket agent, her supervisor and another ticket agent grabbed our bags and "dump searched" them themselves. That means that everything was opened right there on the floor of the terminal. We were, however, thankful for their efforts. Otherwise we would have missed the flight even though we arrived about 2 1/2 hours before the flight was scheduled to leave. At the security gate we had to remove all of our machines and they were "swept" for explosives. We boarded the plane approximately 5 minutes after it was supposed to have left.
While I understand security concerns, I am having some trouble being understanding about the pure he*# we were put through. When I last checked, the World Trade Center was not demolished by a seven year old with a tracheostomy who cannot walk, talk or sit up without assistance. It would seem that some level of common sense should be applied. The efforts that we and the airlines had to go through to get us to our flights were HORRENDOUS. We have traveled quite a bit with our son, but we have never experienced anything like this. It seems as though our country has been reduced to a "police state."
Air travel safety is important. Don't get me wrong. But profiling of disabled folks and their families I think is at least a bit discriminatory. At the very least, it makes air travel impractical. My poor son was exhausted by the return trip. And I think there are serious health concerns about the way the searches are conducted. The folks who are digging through your luggage are wearing gloves for their protection. However, unless you think to ask them, they do not change the gloves between searches. That means that they are touching all of your belongings, medical supplies or whatever, with their gloved hands which have been in God knows who elses dirty laundry, toiletry articles, etc. What a great way to spread germs around. The terrorists don't have to conduct biological warfare. We are probably doing it to ourselves with this search business. I also feel sorry for the security people who have to dig through traveler's dirty laundry.
We had our trip planned for several months before September 11 and thought that we should keep our plans just as our President and other government leaders are encouraging folks to do. However, after our recent experiences we have decided that it is no "vacation" to be put through that ordeal and we do not plan to travel by air in the future. Keep in mind that our son's medical and orthopedic situation is different than most folks who use a wheelchair. So others may not experience the same problems. However, the family of a little boy in a wheelchair who were behind us in line was also "profiled."
By the way, for those of you who are wondering whether to rely on the Disney transportation or to rent a lift equipped vehicle, we recommend renting the vehicle. We did it both ways. We stayed at the Grand Floridian and as long as we were going to a park on the Monorail line, it was fine. However, our odds of having an accessible bus show up for the other parks were about 50-50. The CMs acknowledged that not all of the buses are accessible at this time. In fact, one CM told me that he thought he had heard that one out of three buses are accessible at this time. Apparently Disney is in the process of converting all of its bus fleet to the new buses that folks have described (lower to the ground with a ramp instead of stairs that turn into a lift). The new buses are being used to and from the TTC. The problem is if you or someone in your party has stamina issues, you will be waiting twice as long as abled-bodied folks for an accessible bus to come along.
We rented from Rainbow Wheels. They were very accomodating and we would highly recommend them. We also rented medical equipment from CARE Medical. Pam at CARE Medical was wonderful.
On another note, beware of the Guidebooks for the various parks. The Guidebook for MGM indicated that a person could ride Star Tours without transferring from a manual wheelchair (the symbols showed that a person in an
ECV would have to transfer to a manual chair. But there was no symbol showing that a person in a manual chair would have to transfer to a regular seat). However, when we showed up we were told our son would have to be able to transfer. Although our son cannot speak, he is very bright and adept at nonverbal communication. When we tried to wheel him away, he burst into tears and pointed at himself and mouthed Star Tours. The CM must have felt bad and offered a "test flight" (i.e. the ride with no movement). That was perfect for us. It would be nice if Disney would rethink its policy not to tell unless you ask about accomodations on rides. If you cannot transfer from your chair, there are very few rides that you can ride. In fact, Disney just added a new Dinosaur ride in the Animal Kingdom that is accessible only if you can transfer to a Disney manual wheelchair. When we went to WDW a couple of years ago, our son was smaller and it was easier to transfer him or to hold him on our laps or in a car seat. Luckily they have some great shows in all of the parks. My son loves the singing and dancing and has been lucky enough to have performers invite him for pictures and provide autographs after the shows.
This post probably sounds like I am just a disgruntled complainer. I really am not. Unfortunately, our recent travel experiences were less than optimal and I would feel remiss if I did not warn folks about the security issues. I do want to say, however, that our trip was saved by the kindness and sensitivity shown to my family by the airline employees, most of the security employees and the great folks who work for Disney. In fact, I cannot say enough nice things about the Disney CMs, from the housekeeping folks to the entertainers to the vendors selling Disney memorabilia at the parades, to the Disney security officers. They were all in a word GREAT.
My advice to anyone deciding to travel by air, take as little as possible with you. Even if it means doing laundry more often or buying some clothes when you get to your destination and then shipping items back. Avoid bringing back extra items in your luggage, such as souveniers. I would ship clothing and souveniers back home. If you are like us, and have to take extra medical supplies just in case of airline delays or flight cancellations, etc., only bring those items with you. Ship everything else. Your vacation costs will be increased, but your stress and fatigue levels should be reduced.