Question about DS-22months...speech problem? *Another Update Pg5*

[chrissie123]

Can you get him tested for dyspraxia??? Ask your Dr if he/she can do this...Also as said before try to get him an hearing test...I do not know how the system works in the US, but have you got access to pre school special needs (pssn)... (no cause to alarm you) I`m not saying he has special needs, every child developes at thier own speed.... Lots of luck...It may be nothing at all to worry about....

 

[luckywife]

I said I would let you all know when DS had his evaluations from First Steps and today was the day. They sent 4 different people, all who looked at different areas of what DS can or can't do. They spent about 90 minutes here and DH and I liked each every one of them. We won't find out until Thursday if he is accepted in the program for therapy, I think the next few days of waiting to know one way or another will be hard.

I think DS did well with some things but really struggled with a lot of other things. We just have to play the waiting game now.

I will post another update on Thursday when we find out more.

 

[Pinnie]

Thanks for the update. You and your DS have been in my thoughts lately.

Best wishes!

pinnie

 

[LMC]

You should look at dyspraxia at www.dyspraxia.org.nz although this site is in new zealand, it has alot of info on it. I just found out yesterday that ds (9yo) has dyspraxia. After so many years of asking therapists, neurologists, and pediatricians, the OT who evaluated him yesterday gave me some things to work on his Praxis. I then asked if this meant if he was had dyspraxia and she said that in her opinion, yes. Just read over it and see if it sounds like your son. Then ask questions and more questions, if you are not getting the help you need or answers that you understand. Don't play the "he'll catch up eventually" game because I don't think any of them w/ developmental issues do. Just MO!

 

[luckywife]

Thank you for the information LMC. I will definitely check out the website. Will it explain exactly what dyspraxia is? I've never heard of it before. What kind of help will your DS get?

Pinnie- THANK YOU! You have been so helpful and I appreciate it SO very much!

 

[VALDAN]

Originally posted by LMC
You should look at dyspraxia at www.dyspraxia.org.nz although this site is in new zealand, it has alot of info on it. I just found out yesterday that ds (9yo) has dyspraxia. After so many years of asking therapists, neurologists, and pediatricians, the OT who evaluated him yesterday gave me some things to work on his Praxis. I then asked if this meant if he was had dyspraxia and she said that in her opinion, yes. Just read over it and see if it sounds like your son. Then ask questions and more questions, if you are not getting the help you need or answers that you understand. Don't play the "he'll catch up eventually" game because I don't think any of them w/ developmental issues do. Just MO!

Thank you so much! After reading the website, my 10 DD seems she may have Dyspraxia. She has been going to OT & PT classes at school for coordination and motor skills, But they never mentioned Dyspraxia. Do I call the PT and ask for her opinion?

 

[nativetxn]

Let us know what happens. I remember that Travis wasn't very verbal when he was 2. It worried me but his pediatrician told me that since I anticipated his every need, Travis didn't need words. He was right.

Travis was talking quite well by 2.5 years.

 

[idofabric]

My 2 3/4 yo neice has this. She had a few very high fevers between 6months and 2 years, up to 104 deg. and stayed in the hospital a few times.
The doctors kept telling my SIL she was fine, and yes we do anticipate a lot of what she wants.
After much worry my dear SIL has her getting therpy through the state 2-3 times a week for the last 4 months. She can not allways say anything. She started doing sign language -she made up her own. No idea what all of this will do for her, the local school dist wants to put her in the Developement Disability class this Jan. It have children with a lot of different disablilities in it and some are severe.
Sorry for the mis spelling.
Hope you get help. DO NOT let the doctors tell you every thing is fine. Get a lot of different opions if you need to to make sure every thing is fine. It took my SIL 4 doctors and over 6 months to get help.
Best of luck!

 

[luckywife]

Ok. I just finished reading something about DAS-Developmental Apraxia of Speech. A LOT of what was said in this article sounds exactly like our DS. I will not jump the gun on this though. I am going to wait until the lady from First Steps calls in a few days and see what she has to say. This DAS is something I will bring to their attention. Thanks for the help everyone.

 

[luckywife]

The lady from First Steps called me this morning. DS is eligable for all areas he was tested in on Tuesday. He will have PT 1 time a month, OT 1 time a month and speech therapy 1 time a week. They are also suggesting special shoe inserts for him to help with his clumsiness and falling. Those have to be special ordered and I am waiting to hear from her about who I need to call for those. He also has some sensory issues about things touching him, stuffing his mouth full of food and gagging on it and some other things that go along with that as well. She said they call that weak oral motor skills so he will get help with that too. I kind of expected him need therapy for speech and maybe one other thing but I was kind of surprised that he needs help with so many different things. But, I am trying to look on the positive side. At least he will get the help he needs now. We can continue to work with him and get things taken care of long before he starts school.

Thanks for listening

 

[mickeyboat]

I am impressed with your great outlook and your efforts to get your child the help he needs!

My nephew had speech therapy once a week from age 3-5 and it did wonders for him. At 3 we could barely understand him. At 5 her started kindergarten and is doing very well.

Our school district has a pre-school program where kids with special needs and therapies are integrated with other children. The therapists visit the classroom throughout the day so the children get all their care at one time in one place.

Good luck to you.

Denae

 

[castlegazer]

Thanks for the update. Good luck to you both.

 

[LMC]

I am so happy for you both that you are getting him help now. The earlier they can get therapies the more progress they WILL make; so please take comfort in that. Remember, the key to successful therapy is the "homework". Good luck!

 

[anut4disney]

Thank you for the information concerning Dyspraxa.

I have a grandson who (when I go through the list) sounds like this. He is a twin and they were born 7 weeks early. We just thought that it was because of this but now I am beginning to wonder. I even had the sitter check the list and see what she notices. He is in prek this year while his sister is in kindegarten because of the problems he is having.

We have a doctor's appointment tomorrow and I am going to ask about this.