Quadraplegic experience at WDW or DL?

kritter47

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May 6, 2010
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I have a fair amount of experience with a non-profit sending kids to Disney, and a local family has asked me if I think it would be a doable and enjoyable trip for their family, particularly their youngest daughter.

The daughter (5) is a ventilator-dependent quadriplegic with no sensation or movement below her neck. Obviously, any rides where she would need to transfer are out. And while I was able to get a pretty good picture of what's accessible in terms of rides from the FAQ, I don't know if the ventilator will complicate any of that. I also know nothing about any preparations or complications with air travel and a vent.

She's a huge princess fan in general and Ariel fan in specific, but as we all know, the trips are expensive, and if she's going to be very limited in what she can do or if the trip getting there is going to be ridiculously difficult, I know they would skip it, at least for the time being. They were open to either Disney park, though, so if both are good but one is better than the other, that would also be useful information.

Anyone out there have experience with this?
 
Hi OP. i'm more familiar with DLR/DCA. first travel. she will have to have mandatory pat down at security. web search the airline or call them. my friend is a paraplegic. they load him first (with a hand truck) she being only 5 can be carried to her seat. at the park. i have to use an ECV (scooter) and can do almost everything without getting out of it, except rides that you have to transfer into. it's a smallworld has a special boat just for wheel chairs or they did a year ago. maybe some one else will know for sure and if pirates ride has one too. at dlr she can roll right up to the princesses and fairys meet and greet. a must for any young lady. all the shows and special attractions no problem. the 3d shows are all chair accs. family can sit there right with them. so go, have lots of fun. get a make over in the casle and go get pics taken with the princesses
 
Don't have experience with ventilator.
Numerous rides at WDW have special wheelchair car. The shows are pretty much wheelchair accessible.
Certainly is doable. DS is 22, 6ft, 165 lb, quad [locked-in syndrome]. We have a blast everytime we go to WDW.
 
Thank you both for your replies.

Yeah, the ventilator is what gives me pause much more than anything else. I don't know if that would affect her ability to go on otherwise-accessible rides or not. I've sent many kids in various stages of health/mobility to WDW, but I don't know the complications with a ventilator or the potential hazards (like rides that spin and bounce maybe?).
 

I have severe Muscular Dystrophy and use a wheelchair and ventilator (and gj tube & broviac). My mom and sister both have Muscular Dystrophy also. We love Disney! My wish trip was to WDW in Florida. Wish kids stay at a a fully accessible village with lots of activities and special events. I wish I would've spent more time there. Disney World has a lot more to see & do than Disneyland. So I would definitely choose Disney World.

There are rides that are wheelchair accessible that you can drive your wheelchair on. Some of these rides are not quite big enough for a power wheelchair with a vent tray. There are a lot of shows. I especially like the 3d ones.

I wrote a trip report on our last trip trip & there's a link to it in my signature.
 
Thanks so much for the link to the trip report.

A few more details, now that I can give them. The family has decided to go to Disney World as a wish trip. That's awesome. I still want to be able to give them a picture of things they might have to be aware of as they get there.

A little more background - the girl is in what appears to be a large, reclining special needs stroller with ventilator attached to the back. It is probably 3-4 feet long, so I suspect that will be too long for most of the rides. I also highly doubt she will be able to leave the chair unless there is a ride where she can sit in the lap of one of her parents, as she has minimal ability to hold up her own head. Anything that the chair itself can roll on is probably a go so long as the ride car is big enough. She wants to do a princess meal, which I assume is totally doable. She's really into the princesses at this point, so is there any princess-themed area that will be inaccessible the family should know about in advance?

Also, she will need treatments once a day. The family is wondering if there is a place to bring this equipment and leave it (first aid?) so they can do these treatments in the park without having to trek back to GKTW.
 
Thanks so much for the link to the trip report.

A few more details, now that I can give them. The family has decided to go to Disney World as a wish trip. That's awesome. I still want to be able to give them a picture of things they might have to be aware of as they get there.

A little more background - the girl is in what appears to be a large, reclining special needs stroller with ventilator attached to the back. It is probably 3-4 feet long, so I suspect that will be too long for most of the rides. I also highly doubt she will be able to leave the chair unless there is a ride where she can sit in the lap of one of her parents, as she has minimal ability to hold up her own head. Anything that the chair itself can roll on is probably a go so long as the ride car is big enough. She wants to do a princess meal, which I assume is totally doable. She's really into the princesses at this point, so is there any princess-themed area that will be inaccessible the family should know about in advance?

Also, she will need treatments once a day. The family is wondering if there is a place to bring this equipment and leave it (first aid?) so they can do these treatments in the park without having to trek back to GKTW.


I'm not sure I can add a heck of alot, but I think she will have no problems seeing any of the princesses! I can't think of anywhere that she would have trouble going for any of them. They have always taken lots of, what seems to be, "extra" time with my girls. I second the idea to have her get all sparkled up at the BBB! I hope she has an amazing time!
 
Hi there. We traveled in Febrary with a vent dependent 22 year old boy that weighs about 115. With him we had backpack ventilator so I am not sure what this family had but the backpack made things simple, it hangs from the back of his wheelchairs well. He was able to do most everything and absolutely loved it. He did have to transfer for haunted mansion but see as how she is young this probably isn't at the top of her list of things to do. He had a special ride vehicle for Winnie the pooh, jungle cruise, it's a small world, and many more and that's just in the magic kingdom. I know that there was not a wayfor him todo pirtates unless he transferred, but again seeing as how she is young this is not an important ride. And speaking of princesses he loved getting to meet them and get tons of kisses from each one. This was the first Disney trip I have made with him and was astounded at how many rides we could easily wheel him on to. We had an amazing trip and he will be back down in December to be the best man for our Disney wedding. Any other questions don't hesitate to PM me.
 
Thanks so much for the link to the trip report.

A few more details, now that I can give them. The family has decided to go to Disney World as a wish trip. That's awesome. I still want to be able to give them a picture of things they might have to be aware of as they get there.

A little more background - the girl is in what appears to be a large, reclining special needs stroller with ventilator attached to the back. It is probably 3-4 feet long, so I suspect that will be too long for most of the rides. I also highly doubt she will be able to leave the chair unless there is a ride where she can sit in the lap of one of her parents, as she has minimal ability to hold up her own head. Anything that the chair itself can roll on is probably a go so long as the ride car is big enough.
As long as her wheelchair with everything attached is no longer than 4 feet, it will not be too long for any of the wheelchair cars.
Some have things that stick up from the bottom, specifically the Aladdin ride and the dino cars on Triceratops Spin. Those are part of the attachment for the seat which is removable to make space for a wheelchair. If the wheelchair has anything that sticks out very low underneath that it may not clear the attachment point.
Another attraction that may be difficult is Toy Story Mania in the Studios. For that, my daughter's backpack usually needs to be removed from her wheelchair because the space is fairly small. There is also a spinning motion between different scenes which kind of whips you around so it may not be the best ride for someone with poor head control.

My daughter has been on all of the wheelchair accessible ride cars so if you need more information just Post your questions here. She can't stand but we can transfer her out so she has been on everything except the most wild roller coasters.

I also have pictures of all of the accessible ride cars at WDW. Some of them are posted on my DIS site photo album; others are still in my computer, but I hunt them down and post them when a specific picture is needed.

For the buses and some attractions, wheelchairs need to be fastened down. I'm assuming since she can't sit outside of her wheelchair that she probably has a chair with built in tiedown attachment points. This is not a problem on a standard wheelchair, because there are many points on the wheelchair frame that are strong enough for attaching the hooks. It is an issue on some of the more stroller like and reclining wheelchairs because unless they have specific tiedown loops manufactured in, they may not have safe spots where the large tiedown hooks can be attached.
She wants to do a princess meal, which I assume is totally doable. She's really into the princesses at this point, so is there any princess-themed area that will be inaccessible the family should know about in advance?
There are 2 Princess meals, at the Castle in Magic Kindom and in Norway in Epcot.
The one in the castle is upstairs, but accessible with a small elevator. That area has 2 seating levels - the one closest to the windows is down a few steps, so they would need to make sure to mention the wheelchair making reservations and checking in.

The one in Norway would be my preference - it is totally accessible and housed in a different sort of castle - quite mideval looking and was based on an ctual castle in Norway.

All of the Princess areas at any park are accessible. Other than rides which require a transfer that she would not be able to do, everything at WDW is quite accessible and they will find many things she will be able to enjoy.
Swiss Family Robinson Treehouse, Tomorrowland Transit Authority and Tom Sawyer Island are the only places that are not at all wheelchair accessible (stairs and moving ramp).
Also, she will need treatments once a day. The family is wondering if there is a place to bring this equipment and leave it (first aid?) so they can do these treatments in the park without having to trek back to GKTW.
There are lockers and there is a First Aid station in each park where they would be able to store equipment. First Aid also has treatment rooms where they could go to do her treatments.
 
eternaldisneyfan wrote a wonderful trip report - if you can't find this thread, there is a link in post 3 of the disABILITIES FAQs thread, which is near the top of this board or you can find a link in my signature.

The FAQs thread also includes information about air travel ( with links) and a picture of my DD using an aisle chair.
One of the posts on page 2 of that thread also includes information about travel with oxygen. It's different to travel with a vent, but at least the oxygen information will be helpful.

ALSO - unless people have personal information or pictures they are not willing to share in an open forum, I would request that people share their questions and answers on the board rather than in personal messages. That way, anyone reading gets the benefit of the information.
There are lots of people who have questions they are shy about asking or don't know what to ask.
Having questions and answers out in the open helps them out.
 


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