Princess Peanut's WISH Trip CWF/GKTW Pre-Trip Report! *We're HOME - Pg.37*

So happy for the good news. Boo for the second week but hopefully it will go by quick. I am also happy to see my package has arrived :)
 
:banana::banana: So awesome that things are looking up...Continued prayers that she gets to be HOME soon!! :wizard: THERE"S NO PLACE LIKE HOME!!!
Poor thing not only being irritated by secretions but from what you are saying the adhesive must be irritating her...I had that when I had abdominal surgery last year OMG it was so painful...I cannot comprehend what a litttle trooper you must have!!

:woohoo::woohoo: On the weight gain!! That in itself is an AWESOME feat. What formula are they putting her on? If it is Neocate Jr pm me I think I still have a few cans from when Eva was on it and would love to get it to you! That stuff cost a fortune!!

Looking forward to seeing pictures of your well deserved pixie dust!
 
Oh Kristy, I have been slammed to the wall; however, not a day has passed that I haven't been praying for your precious family, especially little Peanut. I could NOT go to bed tonight without letting you know I am here, in the background, always praying! :hug: I am happy the Mic-Key is in, praying for NO MORE pain/discomfort. Once it heals, it will be a piece of cake. Lisa has had hers for almost eight years (on June 2) and we could NOT be more pleased, it has been a blessing (once we got past the first 6 weeks). I am so sorry Peanut will be hospitalized another week; however April 8 will be here before you know it (Our anniversary...reminds me to make a card for DH). You have LOTS of people praying for you, many who never even sign your thread. :hug::hug::hug: sweet friend!
 
So glad things are looking up sorry to hear she has to stay another week. Glad to see the packages but mine must still be in customs its getting frustrating. I think we are going to be there the same time you are maybe we will run into each other. Saying prayers sending good thoughts.
 

Wow, I'm so sorry things have been going crazy but hopefully things get back on track quickly.....Take care!
 
Kristy, I know you are busy with Peanut in the hospital and you might not see this...I simply want you to know when you DO get a chance to read that I was here, keeping a prayer vigil for you all!!! :hug::grouphug::hug:
 
Kristy, I know you are busy with Peanut in the hospital and you might not see this...I simply want you to know when you DO get a chance to read that I was here, keeping a prayer vigil for you all!!! :hug::grouphug::hug:
Praying here too. Hope things are going better :hug:
 
Hi Kristy. Sending hugs and prayers your way that Peanut is feeling better soon and you all get to head home. I'm not around much these daysbut still thinking of your family.
 
HELLO EVERYONE!!! :yay:

Its been a bit since i've updated, and days since i've been online. The days are long and have just blurred together. This is the first time i've been home since last Monday, and its just to get some stuff and get away for a bit. Its been a rough week, and Peanut has been through a lot. :sad2: Things were slowly going downhill, and yesterday (Friday), has been by far the worst day. She was put through hell and is still feeling the effects of it all. It really breaks my heart. At this point, she is still on TPN, her feeds have been stopped since about 2am Friday morning, she has an infection at her gj-tube site, she has a catheter, is on antibiotics, I could go on an on (there is more, but its just too much to get in to). She has had trouble with her tube (it came out Thursday night) and had to be put back in on Friday, she had an ultrasound and x-ray on Friday too, multiple rounds of sedation, has been on IV morphine for pain, as well as gravol and ondansatron through her IV because she has been throwing up for days now. She started throwing up (steadily - she was doing so randomly before that) Thursday night and was still going strong through this morning (she started throwing up again tonight - I've lost track how many times she's thrown up now). She is at the point that she can't throw up anymore, so she is just dry heaving and feeling horrible. Since she doesn't really eat orally, there is nothing for her to throw up except mucous/bile or whatever she had to drink. So you can imagine how awful she's feeling. Its been really bad, and we have taken soooooo many steps back. :sad1: She has another test this coming Tuesday, so of course, any extra good thoughts would be appreciated.

Thank you to those of you who have checked in on me and Peanut, offered your good thoughts and prayers. Its nice to know that despite me not being able to be around much right now, that Peanut is still in your thoughts. So lots of :hug: to you girls!!!

As for Big Gives, the kids have gotten so many this week. :banana::wizard::cool1: The kids have LOVED their surprises, and its been a great pick me up for Peanut in the hospital. I just love seeing her face light up when she finds out there is a package waiting for her. :love: I have been trying to keep track of them, and I hope I haven't mixed anything up or forgotten anything (PLEASE let me know if I have). I have pics, and will get them up when we get home, I just don't have time right now. :thumbsup2

In no particular order... ;)

Allison - DIS: tebi73 sent the kids adorable autograph books, a Princess necklace for Peanut - that her puppy has worn since she got it and a Toy Story ball for Monkey. They love them, as do we. They can't wait to meet all their Disney friends and get them to sign them, Thank you SO much. :cloud9:

Ellen - DIS: ellenbelly sent the kids Cat in the Hat stuff. Peanut got a Thing 1 dress, ADORABLE and Monkey got a Thing 2 shirt and shorts. Monkey thought his were PJ's, :laughing: and Peanut can't stop talking about her dress and how she is Thing 1 because she is the big sister. :lovestruc Its so cute. Thank you bunches! :cheer2:

Michelle - DIS: Maeb sent Peanut a really cute backpack. Its so tiny, and just so pretty. Peanut can't wait to use it. Thank you! :yay:

Jody (not sure of DIS name?) sent the kids lots of wonderful goodies, and adorable picture her daughter drew. Love it! Both the kids got beautiful crochet "dolls", Peanut was a little girl dressed like Minnie Mouse, that she promptly named Sally (you'll see why in a second). Monkey got the Cat from Cat in the Hat (which is why Peanut named her dolly Sally). They are amazing, and everyone who has seen them have raved about them. Peanut also got a crochet hat, necklace and Minnie purse. She got an adorable Minnie clip, that Peanut can't wait to wear with the Minnie outfit she got earlier in the Big Give. Monkey got a Mickey Mouse colouring book and a great Cat in the Hat book. The kids loved it all. Thank you so much! :goodvibes

There's moore!!!

Flora - DIS: Purple Ears, made the kids some adorable Canadian clothes to wear for the Canadian Pavillion at Epcot. We'll have some clothing changes on our Epcot day. ;) Monkey got an awesome button up shirt with a Mickey Mouse on the front. Peanut got a super cute reversible dress, with Minnie Mouse on the front. Not only will they be great for Epcot, they'll be awesome for Canada Day. Thank you!! :upsidedow

Andrea - DIS: VBAndrea, sent some stuff for both kids and Momma. :thumbsup2 Me and Peanut both got 2 bracelets, they are awesome. I love them, and wanted to wear them right away - but was strong and put them away until our trip. Peanut got an amazing Daisy dress that Peanut loved, she especially loved that there was an apron on the front. Monkey got a shirt with Donald Duck on the front. The stuff was amazing, and we love it all. Thank you tons!! :woohoo:

And last but not least, Dania (unsure of Dis name?), sent Peanut a dress up Cinderella dress. She loved it. Her hospital gown is blue and keeps saying its the same colour as her new Cinderella dress. Its really cute. Thank you! :flower3:
 
I am so sorry Peanut has had so many setbacks. Sending healing vibes. I am so glad you are getting the Big Give Mail so she has something to look forward to. Hugs and prayers she gets out soon.
 
Kristy, I just want to cry for you and Peanut, I KNOW how hard this is on you and I am sorry you are having to deal with it!:goodvibes I am sorry she is still in the hospital, but THANKFUL as well that she is where she can get the BEST care!Praying SO HARD for answers and relief. Stay Strong Mama, I am thankful that the Big Give has brought so much happiess and distraction to you all! :hug::grouphug::hug::grouphug::hug::grouphug::hug::grouphug::hug:
 
HELLO EVERYONE!!! :yay:

And last but not least, Dania (unsure of Dis name?), sent Peanut a dress up Cinderella dress. She loved it. Her hospital gown is blue and keeps saying its the same colour as her new Cinderella dress. Its really cute. Thank you! :flower3:

That would be me. I'm sorry that it's been such a rough go. I hope things turn around for the better and soon. Also glad she liked her dress.
 
So sorry that things have been incredibly complicated...I pray that things will turn in a better directionand the Peanut will improve. BIG HUGS!!!

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I am so sad that Peanut is having such a hard time in the hospital. It's so great that you are able to bring all her packages to the hospital for her to open though as I'm sure that's a bright point in her day. I continue to keep you all in my thoughs and am so praying for a turn around in Peanut's status.

I'm so glad you liked the Big Give Gifts. I want to see a smiling Peanut at Disney wearing all of her new outfits. :hug::hug::hug::hug:
 
So sorry that things have been so rough for Peanut and your whole family lately!:guilty: Sending you guys a bunch of hugs :hug: and prayers that things start looking brighter this week! And, that Peanut's troubles come to an end shortly.

Glad that the Big Gives have been a distraction for her. Sounds like she has been receiving lots of fun goodies--love the idea of 'Canadian' clothes for the pavillion. Dress-up clothes and crocheted dolls are lots of fun to play with too! Her hospital bed must be brimming with goodies....
 
Words cannot adequately express my heartfelt concern for Peanut and your family. I cannot comprehend her pain and I surely don't completely know what it is like for you and all those who care about Peanut to see her suffer so much.

Please find some comfort knowing that there are many of us on the Dis boards rooting for her and hoping for a quick turnaround.
 




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