Princess Peanut's WISH Trip CWF/GKTW Pre-Trip Report! *We're HOME - Pg.37*

[tinytreasures]

CWF is booking BBB for Peanut and the Knights package for Monkey (so cute), so I don't have to worry about that. I e-mailed our co-ordinator to ask her to let me know when she had a date/time about that so I could plan around it. I like the idea of planning where we want to go each day, and then being able to figure out what to do at each specific park. It will probably mak it less overwhelming to do that. Thanks for the tips, and links.

As soon as you get a date for that you can book what you need from there.
We planned our days of where we were going before we left but didn't plan anything from there
We just went with the flow and eat when we got hungry

What are you think for character meals?

 

[Mom2Miracles]

What are you think for character meals?

I have no idea.

I was thinking breakfast for both Character meals, and going to Chef Mickey's because I know there is a good mix of classic Disney Characters (more for Monkey), and then maybe Cinderella's Royal Table (more for Peanut). In reality though, I have no idea. I keep second guessing myself, and then talking myself out of what I think is the best place to go.

 

[Mom2Miracles]

I heard from our wish co-ordinator today, and she is mailing out all the release forms for our trip. She said there is a lot of paperwork and it can be overwhelming. Does anyone know what is all in this package?

 

[casper_jj11]

It's been awhile since we filled out ours but from what I remember, its pretty straightforward. It asks details such as address, contact numbers, etc. It also asks about medical conditions for others taking the trip (as the travel insurance covers the full family) It will ask about many things you've already covered with her such as where you'd like to stay (GKTW or on site), the type of rental you'll need, whether you'll need car seats, if there's any other rental equipmetn you should have, special treat for Peanut (you've already arranged BBB), photocopies of passports (for the flights) and drivers license information (for the rental car)... I can't remember off hand other things but I have a copy of it I believe at the office. I'm working from home tomorrow but I'll have a look on Thursday morning to see if there's anything else.

 

[Mom2Miracles]

Thanks Joanne, I appreciate it. Its odd they are just going over everything again, I mean we've talked about all of that stuff. They already have copies of our drivers licenses, and Nexus cards (for all 4 of us). Meh, whatever they need, thy can have. lol! Did your Dr have to fill anything out? When I talked to Peanut's Paed last week, she said that she would have to fill out some paperwork or write a letter (can't remember exactly what she said). Would she be meaning just with regards to her meds and formula for the flights, or something for CWF as well?

 

[blessedmom4]

Thanks Joanne, I appreciate it. Its odd they are just going over everything again, I mean we've talked about all of that stuff. They already have copies of our drivers licenses, and Nexus cards (for all 4 of us). Meh, whatever they need, thy can have. lol! Did your Dr have to fill anything out? When I talked to Peanut's Paed last week, she said that she would have to fill out some paperwork or write a letter (can't remember exactly what she said). Would she be meaning just with regards to her meds and formula for the flights, or something for CWF as well?

Wanted to say Hi. Maybe they need to have info from the doctor that Peanut is stable for travel? I don't have an answer since we haven't been on our trip yet, that is just my thoughts from reading PTR's of other wish families.

 

[casper_jj11]

Thanks Joanne, I appreciate it. Its odd they are just going over everything again, I mean we've talked about all of that stuff. They already have copies of our drivers licenses, and Nexus cards (for all 4 of us). Meh, whatever they need, thy can have. lol! Did your Dr have to fill anything out? When I talked to Peanut's Paed last week, she said that she would have to fill out some paperwork or write a letter (can't remember exactly what she said). Would she be meaning just with regards to her meds and formula for the flights, or something for CWF as well?

Generally, the doctor needs to write a letter prior to being approved. That means that some physician, likely a specialist, had to have already provided that information to CWF. As for meds, you don't need to have a letter to take them on board. As long as they're prescription and have the pharmacy tag on them, they're excluded from carry on limits and liquid rules. You need to bag them separately for security so they're aware of it. For formula, if its liquid form, you should have a letter unless its prescription. You should also check with the airline. I'm not sure about the rules on that.

We did need to get a letter from the doctor just prior to leaving but it was because of my sons. They both have blood disorders and although I placed it on the CWF information form, they didn't contact us til a week before our flight. Their insurance company wanted confirmation that there hadn't been an issue with the disorder for a certain period of time. Otherwise, they weren't going to be covered by the medical travel insurance. It wasn't a big deal for us because we have our own medical but this medical covered everything. Our paed was on vacation so we ended up going through hoops at CHEO but eventually, CWF received the confirmation they needed for the insurance company. Just a heads up in case either you, DH or Monkey have medical issues.

 

[casper_jj11]

Wanted to say Hi. Maybe they need to have info from the doctor that Peanut is stable for travel? I don't have an answer since we haven't been on our trip yet, that is just my thoughts from reading PTR's of other wish families.

Ahh, that's a good possibility. I hadn't thought of that. And our relationship with the oncologist was very different than that with our paed. Our paed woul dhave told us if they had been in contact with her but our oncologist, I doubt we even would have heard and it was the oncologist that completed the initial medical information for the wish approval.

 

[Mom2Miracles]

Wanted to say Hi.

Hello!

Generally, the doctor needs to write a letter prior to being approved. That means that some physician, likely a specialist, had to have already provided that information to CWF. As for meds, you don't need to have a letter to take them on board. As long as they're prescription and have the pharmacy tag on them, they're excluded from carry on limits and liquid rules. You need to bag them separately for security so they're aware of it. For formula, if its liquid form, you should have a letter unless its prescription. You should also check with the airline. I'm not sure about the rules on that.

We did need to get a letter from the doctor just prior to leaving but it was because of my sons. They both have blood disorders and although I placed it on the CWF information form, they didn't contact us til a week before our flight. Their insurance company wanted confirmation that there hadn't been an issue with the disorder for a certain period of time. Otherwise, they weren't going to be covered by the medical travel insurance. It wasn't a big deal for us because we have our own medical but this medical covered everything. Our paed was on vacation so we ended up going through hoops at CHEO but eventually, CWF received the confirmation they needed for the insurance company. Just a heads up in case either you, DH or Monkey have medical issues.

Our Dr has alreday talked to CWF, like you said it was done even before she was approved for a wish. Her formula is liquid, and while it is by perscription, the label is only on the box not on each individual can. There are 24 cans in the case. I would be bringing full cans, which wouldn't be open and have the original label on them. I supposed I could ask our pharmacy to print out labels that we can stick on the cans we are bringing. However, how to we handle the formula that is already in her feed bag/pump? She'll be hooked up to her feeding pump, so how does work? CWF is trying to get the medical supply company they use to send up 1.5 cases of her formla so we don't have to travel with all of it. We'll still have to bring some in our carry on as she'll need it for our travel day. Especially if there are any delays before we make it to GKTW. Good to know that the meds can be seperate then a normal carry on, especially since one of her meds needs to be kept cold. I'll make sure to have a carry on of just her meds, syringes and formula - which will make it easier to get to anyways. Am I allowed to administer meds while on the plane? She'll be due for some while we are in the air, and she can't be late on her meds. Monkey and my husband are healthy, no medical issues. I however, have asthma. So would I need to get a letter or something from my GP?

Ahh, that's a good possibility. I hadn't thought of that. And our relationship with the oncologist was very different than that with our paed. Our paed woul dhave told us if they had been in contact with her but our oncologist, I doubt we even would have heard and it was the oncologist that completed the initial medical information for the wish approval.

As of now, Peanut is stable enough to travel (we couldn't have said that for most of 2010 ) of course things can drastically change between now and then (as we have unfortunately seen). Her weight is far from stable, but we are working on that. And shes been infection free for awhile now (YAY), so that isn't holding her back. Her Paed said on Friday that obviously, if things change then the trip can just be rescheduled. I hope not though, I would be so sad. All of this is one of the reasons we wantd to travel sooner then later. She is doing okay right now, but we can't predict what will happen in the future. And when you add in her going to the US, more tests and possible surgeries, we wanted her to be able to enjoy it as much as she can. Now if we can only get some weight on it (which is a whole other issue). Siiigh....

 

[casper_jj11]

See responses below

Hello!



Our Dr has alreday talked to CWF, like you said it was done even before she was approved for a wish. Her formula is liquid, and while it is by perscription, the label is only on the box not on each individual can. There are 24 cans in the case. I would be bringing full cans, which wouldn't be open and have the original label on them. I supposed I could ask our pharmacy to print out labels that we can stick on the cans we are bringing. Do that! We had to do it for the kids puffers. Get a label for each bottle/can of formula and attach the prescription to it. You can do the same for the bag being used during flight. Its open but its meds so it'll be ok. Just make sure there's a script on it. However, how to we handle the formula that is already in her feed bag/pump? She'll be hooked up to her feeding pump, so how does work? Wouldn't be a bad idea to run it past the airline but I'm sure this won't be a problem. CWF is trying to get the medical supply company they use to send up 1.5 cases of her formla so we don't have to travel with all of it. We'll still have to bring some in our carry on as she'll need it for our travel day. Especially if there are any delays before we make it to GKTW. Good to know that the meds can be seperate then a normal carry on, especially since one of her meds needs to be kept cold. I'll make sure to have a carry on of just her meds, syringes and formula - which will make it easier to get to anyways. Am I allowed to administer meds while on the plane? Yes. I can't imagine that you wouldn't. You may want to tell the airline attendant in advance but really, if she needs meds, she needs meds. I'm sure diabetics take it on flight so there's no difference. She'll be due for some while we are in the air, and she can't be late on her meds. Monkey and my husband are healthy, no medical issues. I however, have asthma. So would I need to get a letter or something from my GP? I doubt it. All three of my kiddos are asthmatic and while the blood disorders raised flags, the asthma didn't and they didn't end up with a letter from their paed which is their treating physician for that problem.



As of now, Peanut is stable enough to travel (we couldn't have said that for most of 2010 ) of course things can drastically change between now and then (as we have unfortunately seen). Her weight is far from stable, but we are working on that. And shes been infection free for awhile now (YAY), so that isn't holding her back. Her Paed said on Friday that obviously, if things change then the trip can just be rescheduled. I hope not though, I would be so sad. All of this is one of the reasons we wantd to travel sooner then later. She is doing okay right now, but we can't predict what will happen in the future. And when you add in her going to the US, more tests and possible surgeries, we wanted her to be able to enjoy it as much as she can. Now if we can only get some weight on it (which is a whole other issue). Siiigh....Keeping my fingers crossed that her weight starts to rise

 

[Mom2Miracles]

Thanks Joanne, you are a great source of information! Oh and totally off topic, but I can't believe CWF booked the top package at BBB for Sydney. I was shocked when I read that in your TR. Amazing!!

 

[4monkeys]

We did our initial set of paperwork with our volunteers. The Doctor had to fill out papers before the volunteers even came out. After we were approved and Allison's wish was granted the doctor needed to fill out additional papers....but no more for us. Maybe it's the ID's Insurance birth certificates, etc.??

 

[Mom2Miracles]

We did our initial set of paperwork with our volunteers. The Doctor had to fill out papers before the volunteers even came out. After we were approved and Allison's wish was granted the doctor needed to fill out additional papers....but no more for us. Maybe it's the ID's Insurance birth certificates, etc.??

Who knows, lol. We've already given copies of our drivers licenses and Nexus cards, but maybe more detailed information for the travel insurance. I guess we'll find out when the stuff arrives some time next week. The closest chapter to us is over 4 hours away, so unfortunately we are doing everything long distance, which means everything takes a wee bit longer.

Soooooo, we got our date/time for BBB today. So now I can look in to booking some character meals. So exciting!!!

 

[tinytreasures]

cool now that you have the date of BBB you can set up the rest of your week schedule

 

[HulaHoopy]

I just wanted to let you know that I am reading along. I just found your trip report today.

I am glad that Peanut is currently able to travel and able to take a great trip!

 

[brookerene]

Who knows, lol. We've already given copies of our drivers licenses and Nexus cards, but maybe more detailed information for the travel insurance. I guess we'll find out when the stuff arrives some time next week. The closest chapter to us is over 4 hours away, so unfortunately we are doing everything long distance, which means everything takes a wee bit longer.

Soooooo, we got our date/time for BBB today. So now I can look in to booking some character meals. So exciting!!!

Yay for getting your BBB dates! I hope you can get the ADR's you want!

 

[casper_jj11]

Thanks Joanne, you are a great source of information! Oh and totally off topic, but I can't believe CWF booked the top package at BBB for Sydney. I was shocked when I read that in your TR. Amazing!!

I'm so happy to hear you have dates

I was shocked as well. I booked the date and time (I'm a bit of a control freak and really wanted first thing in the morning but they don't book til closer to the trip and I was worried about not being able to get the reservation then) but they told me to make sure it was the castle package. It really was amazing!

 

[Mom2Miracles]

I just wanted to let you know that I am reading along. I just found your trip report today.

I am glad that Peanut is currently able to travel and able to take a great trip!

Hello! Thanks for following along!

Yay for getting your BBB dates! I hope you can get the ADR's you want!

Our BBB appt is at 1050am, and I wanted to book Cinderella's castle for lunch afterwards (since i'm 99% sure she'll pick a princess dress over the Minnie Mouse), but its booked until 230pm. Which is a little late. Boo...

I'm so happy to hear you have dates

I was shocked as well. I booked the date and time (I'm a bit of a control freak and really wanted first thing in the morning but they don't book til closer to the trip and I was worried about not being able to get the reservation then) but they told me to make sure it was the castle package. It really was amazing!

I wonder if they booked the same package for Peanut? Not that it really matters. I would probably buy up to the Castle package anyways, if they didn't. lol. I really want it all for her (and Monkey), on this trip. Which location did Sydney go to? There are two BBB, right?

 

[blessedmom4]

There are two BBB, right?

Yes, One in Downtown Disney and One in Magic Kingdom. I am so excited for each detail of your plans!!!

 

[4monkeys]

Thinking back, our Dr did need to fill out additional paperwork right before we went. We never touched or saw anything that the Dr took care of. MAW sent everything to the Hem/Onc clinic and the nurses passed it along or filled out what they needed. One of the nurses was the liason for those type things. She takes care of the Victory Junction Camp.