Princess Alyssa's Christmas Wish/ GKTW/ Dec 10-16

[chrissid7]

Today alyssa did PFT's and she had a 3% increase. She is not at 46%. Its not the 11% but it is an increase and we are blessed. Today she started nebbing a new (not new but new approach) antibiotic. I am hopeful to say the least.
Her IV blew again today so i think the count is at 11 sticks in 1 week.. it stinks!

OMG here is the super duper awesome part of the day. Her brother called her to tell her that he went to the mailbox and there was something in there for her,a package and an envelope from GKTW she begged her daddy to bring it asap. A lil while later daddy calls to say he happened to check the front porch and there we 3 boxes for her! What perfect timing!!!! The Disboutiquers must all have esp because that packages have arrived at the perfect times everytime! Shayna is at my sisters for the weekend and Dj was so excited for her.

I really wanted them to open them all together but lyssa needed the joy and her brother and sister wanted her to have the packages.

I will post all of the details with the pics but OMG !!! Alyssa squealed and had such a wonderful time and just glowed with delight. She didnt get to open them until 9 pm but she has already dressed Salarina (her bitty baby) and went showing off. She had to show her nurse every single peice and there were a lot of peices in those boxes!!

I wish there was a better way to be able to say thank you, because this post comes nowhere close (the pics will be closer) but it was really really special to us. Look for pics by Sunday.

 

[yinyanggirls]

Glad to hear she's going in the right direction, even if slowly. I can't wait to see pics of the cute stuff and hopefully the look on her face when opening!

 

[Momofwishkid]

Glad to hear Alyssa is doing better and hoping it continues until you get the increase she needs. Those Big Give people sure do know when she needs the packages cant wait to see pics.

 

[pacrosby]

I can never get into too much (because I don't trust this computer) but I just wanted to stop by and say......

11 MORE DAYS!!!!!!!!!!

:


I hope Alyssa is smiling today


Pamela

Matty's Wish Trip http://www.disboards.com/showthread.php?t=2325607

 

[pipersmom]

Good evening! I'm glad Alyssa had an increase, I know you were hoping for more, I was too, but 14% so far is pretty good, esp for a ten day run. I'm still praying that she'll continue to improve. I think it's harder to in the club with the limited activity and such.

So cool all the packages she got! Are they still talking about sending you home tomorrow? Hugs from Piper and I....

 

[chrissid7]

Glad to hear she's going in the right direction, even if slowly. I can't wait to see pics of the cute stuff and hopefully the look on her face when opening!

She will blow again tomorrow and I think we will see another lil bump...thats what im praying for. you are going to love the pics, i wish i had remembered to TAKE MY CAMERA HOME!!! I was so mad when I got there and realized i never packed it. Hopefully by Wednesday ill get them on.

Glad to hear Alyssa is doing better and hoping it continues until you get the increase she needs. Those Big Give people sure do know when she needs the packages cant wait to see pics.

Thank you! They really do, it has been perfect!!

I can never get into too much (because I don't trust this computer) but I just wanted to stop by and say......

11 MORE DAYS!!!!!!!!!!

:


I hope Alyssa is smiling today

I know I cannot believe how quickly this rolled up!

Pamela

Matty's Wish Trip http://www.disboards.com/showthread.php?t=2325607

Good evening! I'm glad Alyssa had an increase, I know you were hoping for more, I was too, but 14% so far is pretty good, esp for a ten day run. I'm still praying that she'll continue to improve. I think it's harder to in the club with the limited activity and such.

So cool all the packages she got! Are they still talking about sending you home tomorrow? Hugs from Piper and I....

14% is very good and im happy about that that we always get excited whenever we get increase. i really do think we are on our way back to at least 60% but she knows it going to be hard work to get there.

Im thinking maybe Tuesday but he said that he would try to make it early Tuesday so that we dont have to reschedule the SEND OFF PARTY!

Is Piper home now? I hope you enjoyed your time and did some things for you!! Especially sleep in lol! I hope she is doing well. Hugs to you both.




Alyssa keeps telling all of the staff here at club med that all of this stuff is coming from mommies Big Give friends on the internet and all over the world lol.
That really makes me feel special hearing that I have these amazing and talented friends "all over the internet and the world"

 

[maroo]

"Mommies Big Give friends on the internet!"

That is so funny!

So...what are the staff saying or doing when she tells them that. Mommy's friends from the internet are sending me cool stuff!

 

[chrissid7]

"Mommies Big Give friends on the internet!"

That is so funny!

So...what are the staff saying or doing when she tells them that. Mommy's friends from the internet are sending me cool stuff!

Most of them want to know how they can have such awesome friends so you know I have directed them to the Dis.

 

[pipersmom]

Thinking about you and hoping they can get your butts out of THERE today if Alyssa is ready!! Woohoo for your send-off party! Can't wait to hear what happens and see pictures of Big Give stuff!!

 

[cajunfan]

Praying that Alyssa is doing fabulous and can go home today to have a good time at her send off party!

Lynn

PS...I can't wait to see pictures either!

 

[Momofwishkid]

Im praying also, hope Alyssa is doing well and can make it home for her party!!

 

[chrissid7]

Wow guys.... you will never believe the whirlwind past few days. BUT 1ST.... WE made it home 2 hours before her wish granters were due to be here.

I think I mentioned somewhere, but honestly my brain is soooo fried!! but my DH was feeling really bad Saturday night at his familys dinner and he felt bad all day Sunday while he sat with Alyssa at the hospital. He was complaining of a lot of pain in his lower right abdomin. Around 10:00 Sunday night I started checking his symptoms online and I called my sis who has had her gallbladder remved but she said it sounded like what her husband had before he had his appenix removed.

Sure enough he had every symptom. I called him around 11pm and begged him to come down to the er and I would meet him but he was sound asleep but said he would the next day after he put the 25 ft tree up at the governers mansion, that ticked me off but at least he agreed to come which i didnt think he would.

So even though he was in pain he tried not to come at 1 but I told him if he ruptured and we missed the Disney trip because he was being stupid...we would never forgive him! So he showed up and and a few hours later he was in surgery haveing it removed! The best part is.... Saturday night when he grabbed his tummy and was moaning in pain Alyssa said, "Daddy thats you appendix and you need to be looked at" lol too funny she said she saw the same thing happen to Uncle Jessie on FULL HOUSE!!!! WHAT?????

Alyssa could have been discharged on Monday but because of her Daddy surgey and him staying there we decided to do another day of treatment, it was just better for all of us.

Coming tomorrow (maybe later tonight) HUGE BIG GIVE POST AND SEND OFF PARTY WOOHOO!

 

[pipersmom]

Oh geeez...just what you needed, another person in the hospital!! Glad you caught it in time though, and happy you guys are home and were able to have your party! I can't wait to hear all the details

 

[chrissid7]

OMG!!! OMG!!!! OMG!!! I cant believe I forgot to tell you all the super best part!! Alyssa had 51% lung function when we left the hospital YAYYYYYYYYYYYYYY!!! We have not seen 50 in over a year!!!

I CRIED AND CRIED TEARS OF JOY!!!!

I just know its a Blessing and Prayers are being answered and I do believe in miracles!!!

1 more note before I go get a few things done... the lil room makeover that I began working on for Alyssa... well now involves way more than several hundred volunteers, including football teams (my husband is a coach), churches, many many friends and family members. As it stands every room in the house is getting something. People started raising $$$ on their own for projects and I Live in the best community in the world, and am so blessed! Alyssa makes friend with everyone and honestly, tell everyone she comes in contact with that she loves them!

I have had so many people tell me that our family has inspired them and I still think to myself "us, really? why"

I cry all the time and I still cannot expain the outpouring of support and I am overwhelmed. I have chills and tears as I write this. I cannot wait to share it with you all!!

My family is going to flip out!!! They have no idea!

 

[pipersmom]

Oh my holy guacamole!! 51% ROCKS! I am so happy she'll have that much more stamina on your trip! And the house!! All you need is some tv cameras and you'd have your own episode of extreme home makeover! I am so excited for you hon...I was getting ready to ask if she'd had PFTs done again...

 

[yinyanggirls]

OMG!!! OMG!!!! OMG!!! I cant believe I forgot to tell you all the super best part!! Alyssa had 51% lung function when we left the hospital YAYYYYYYYYYYYYYY!!! We have not seen 50 in over a year!!!

Wow, you guys have had a roller coaster week! So glad you caught the appendix in time, and especially before you left!!!
How awesome that Alyssa's doing so well! That is amazing. And how wonderful that your community is offering their love and support to you guys. Makes you look at the world in a different way, huh?

 

[Momofwishkid]

51% thats awesome! Im so happy that Alyssa made it home for her party and cant wait to hear about it.
Sorry about DH's appendix but glad you caught it.

 

[cajunfan]

Yeah for Alyssa!!!! I am so glad that she made it home in time fo rthe send off party. I am soooosorry to hear about your hubby...is it safe to assume he is doing well now?

Can't wait to hear all the details!

Lynn

 

[maroo]

I am SOOOO excited for you!

Congrats on getting your medical shy husband to the doctor at all! And surgery to boot!

51%!!!!!!!!!!! That is awesome!!!!

Much better for your trip, too! It will be great to have her as healthy as possible!

Full House...that is too funny!

I love that the Community is getting together to help you. Sometimes just living your life with all of the challenges - and still staying strong - IS very encouraging to all of the people around you! I am not surprised at all that they are encouraged!

 

[kdzbear]

I am so glad that Alyssa's lung capacity is up and that your husband is doing better! Yeah, the trip is on!