Rees has surgery next Thursday, Oct 25, to cauterize both sides of his nose and replace his ear tubes. He was so nervous and upset when we were at the office. They have ordered a little "happy juice" when he arrives at the surgery center to keep him calm.
Rees is still having "episodes" on and off all day. Although now he NEVER complains of pain. Considering how he looks and his lack of appetite, bathroom issues, it hard to believe he's NOT hurting. We just think he's gotten used to it which breaks my heart.
I really think the Ped is doing everything he can to get Rees into Emory GI which is based at Egleston Children's hospital. He called them all day, and they never even answered him, so now Ped is POd too. His good friend (Dr. S) is a GI in the same practice as Dr.
AAA (one we won't see), but I do like Dr. S. I just am leery of going there as I know I will see Dr. AAA on-call, etc. But, it would get Rees in with a good GI sooner than later. Also, Dr. S does procedures on Friday and the Ped thinks he can ask him to run tests on Rees then which would be good.
Ped called in Reglan tonight for Rees which is supposed to help move his GI system faster and help prevent blockages. The on-call doc at Emory suggested it. We will see if it helps.
So, once again, we're W A I T I N G... Thanks for the prayers!
I know this is a stupid question but my son had this same exact issue when he was younger and they ran all these tests but forget the obvious. Has your child moved his bowels lately? My son is Autistic and GI issues are awful. Sorry if this is redundant and have been already discussed and ruled out by your Ped.
