Hi All! Need your help!!!!!
We are new to the board, we LOVE all things Disney. Anyway, We are a family of 5 from Lancaster, PA. I'm a Mom (Monica)of three beautiful boys (Vinny 10-Dominic 8 as of yesterday and Tony 5) and wife to the most humbliest man (Stephen) on earth of 15yrs this coming April. Anyway- our youngest son Tony was born 6/19/2005 with a debilitating disease that affects his entire Intestinal Tract known as Hirschsprungs' Disease. He currently lives with an Ostomy Bag, a GTube and Central Veinous Broviac Cath for 18hrs of IV Nutrition. He has no function of his GTract due to his illness.At the tender of 2, he had to have his entire colon removed due to the disease. Since then our lives have been on hold and we've been able too make some family trips to Disney World, which we never thought would happen. This Jan '10 Tony was listed for a Complete Stomach and Intestinal Transplant which once we receive the call will take place out at the Children's Hospital of Pittsburgh. (We have since April '10 been doing fundraisers' to offset the uninsured medical expenses that his MA will NOT cover). On top of this my youngest sister back in May'10 was diagnosed at 35 with Ovarian Cancer. Our son Tony mentioned that he would love to wake up in Disney World on Christmas Day and have his Aunt Shelly with him. The boys loved Halloween, so family had bought a Disney Vacation Club- so that after Tony receives his transplant we'll have many years too come and enjoy their favorite place on earth. We would love for the opportunity to be able too make Tony's wish come true since this might be his last trip before we receive the call for transplant. He did have a Make-A-Wish trip to Disney last year- but had to be rushed to the Arnold Palmer's Children Hospital 3x. If anyone has any vacation points that we could rent- we would love to do so. There would be 6 six of us and we will not fly due to pat downs and just having all of his medical equipment would be too much stress in worrying about it. We would drive down from Lancaster, Pa. for the dates arriving 12/23/10 and departing 1/2/10. We do have Annual Passes that family bought us. We would love to make his dream come true.