Pernicious Anemia - anyone else?

[two*little*birds]

Yesterday I was diagnosed with pernicious anemia.

I've been very sick on and off for almost 2 months, so this is the beginning to what I hope is a quick recovery.

My specialist said my condition should improve within the week and that within a month I should be back to normal for the most part. I have to meet with a neurologist to determine if I have any nerve damage (arms and feet still tingling/numbness). I also had an ultrasound to make sure my liver wasn't enlarged or swollen due to this condition but don't have the results on that yet.

Thankfully now I can get back to my normal routine, I've been poked and prodded enough in the last month to last me a lifetime.

Does anyone else here have pernicious anemia? If so can you share your success, treatments and/or what works best for you?

Thanks, Kathie

 

[mommasita]

I do. I receive monthly B12 injections, and am fairly new to it all to be honest, so not sure yet on how it is working. I don't feel any surge of any yet, but my B12 count was really low. I hope that with several months in a row of this, it can start to even out.

When I was newly diagnosed, they tried the sublingual 9sp?) tablets of B12, but it proved that I was rejecting it, and it had no effect.

I am glad to hear that you are going through the other tests, that is being pro-active in my opinion. I had the EMG a few months back, and ultrasounds.

I COMPLTELY understand the poked and prodded thing, very very well. Thankfully they found the PA, and can treat it.

What is your course of treatment? I hope you do feel better soon.

 

[two*little*birds]

I do. I receive monthly B12 injections, and am fairly new to it all to be honest, so not sure yet on how it is working. I don't feel any surge of any yet, but my B12 count was really low. I hope that with several months in a row of this, it can start to even out.

When I was newly diagnosed, they tried the sublingual 9sp?) tablets of B12, but it proved that I was rejecting it, and it had no effect.

I am glad to hear that you are going through the other tests, that is being pro-active in my opinion. I had the EMG a few months back, and ultrasounds.

I COMPLTELY understand the poked and prodded thing, very very well. Thankfully they found the PA, and can treat it.

What is your course of treatment? I hope you do feel better soon.

I have to get shots everyday for a week, then once a week for a month, then once a month indefinitely. I'm assuming they'll check my level periodically in between those periods but they haven't said anything. It will probably be awhile before I get to see a neurologist, but I'm just assuming that since I don't have a confirmed appointment yet.

I thought about the sublingual treatment as well, but supposedly the patch is far superior.

I took a few weeks off of work, as I was so sick and having so many tests to determine the cause of my illness. But I'm planning to return to work on Monday.

Funny how we all take our health for granted until something happens or we get a scare.