Parents of premature babies check in here.

Sorry for the bump, but I wanted to tell you how therapeutic it was to read this thread. Our daughter is in the NICU right now. She was born on Sept 12 at 1 pound, 10 ounces. My wife had severe preeclampsia so she had to have a c-section at 28 weeks after 4 weeks at the hospital. But so far our baby is doing great! She's gaining weight from breastmilk with extra calories added to it and shes up to 2 pounds, 5.8 ounces. We hope she will be a big princess in no time princess:


I have a question for you. I know I'm getting waaaay ahead of myself, but how far along were your babies after a year? I know everyone is different but I wanted to take our first family trip to Disney World to celebrate her first birthday. I figure she's such a miracle that DW is the only place worthy of hosting such an event! Would it be a major mistake?

My DS was pretty close to full term and my DD was 6 weeks early so their milestones won't necessarily match up. DS was only very slightly behind, but DD didn't crawl until she was over a year and walked at 19 months or so. My DS was a bit behind school wise in Kindergarten with motor skills and 1st grade with reading, but quickly caught up with extra help in first grade and is a great student now. His sister was fine surprisingly with her motor skills and basics, which may be due to the fact we started her in preschool at 2 1/2, but as a first grader is getting extra help with math and reading, but she is improving quickly. Everything seems to be clicking with her just a little bit later. I will say you may need to be careful with the time of year and the heat factors if you want to do her first birthday there. It can still be pretty unbearably hot at that time of year. My daughter has always had a difficult time regulating her body temperature and does not handle the heat well at all.

I guess doing WDW for her first birthday will depend on if she is still dealing with major health issues or not. If she is doing fine I don't see why you couldn't do it. People have taken children at much younger ages. In the end it will be up to you to determine if she can physically handle the trip. If you think she can then by all means go for it.

I hope she continues to do well and improve every day. My thoughts and prayers are with you.
 
Hi... congratulations on your little one... hang tough, the NICU can be a scary place, but she is getting amazing care, and this will all be a distant memory in no time!

Our boys were only 6 weeks early, but Aiden had some very serious health concerns when he was born and spent a month in the NICU... now, 8 months old, they are both army crawling and have near caught up with their 'little playgroup friends" in size (when adjusted age is used).

We are going to Disney when our boys will be 10 months, and cant wait! I say, play it by ear... see how long of a stay your NICU experience is, how she is doing, and most of all, how YOU are doing.... I say, if she is strong enough, and the doctors give you the green light... GO FOR IT! I agree, it is a magical place to celebrate such a milestone as her first birthday after such a courageous battle she is fighting at the begining!!!

:O)
Hang in there it sounds like you are ALL doing great!!!
 
Hello. I am frequent reader of these boards, but not really a poster. I saw this thread and my eyes lit up. What an inspirational thread. It gives me hope for my son.

My son’s expected due date was 11/27/07. He was born on 9/16/07. I had a fairly normal pregnancy. I had one episode of bleeding in May, which they found nothing wrong with me. My OB said it was most likely my body thinking it was time for a period. There was no placenta previa and my son had his heartbeat. The bleeding occurred for 3 days and then I never saw it again. I am healthy and continued that in pregnancy.

On 9/15/07, my fiancé and I were moving into our new, bigger, apartment. I didn’t move anything, just watched my friends and family help. That evening a bunch of us went out to dinner and came back to our new apartment to watch the classic, Space Balls. From dinner on I was having mild lower back pain. I had experienced back pain throughout the pregnancy and thought nothing unusual about it. That evening, when trying to sleep, the back pain got worse but eventually I dosed off. I woke up at 8AM that morning, still with the back pain. At this point I started getting a little worried. I did some research online to see what contractions are supposed to feel like. I brushed it off, as my fiancé and I had to go to Target to get organizational things for our home. On our way to target I started feeling the pain all around my lower back and in the front, lower stomach area. It was coming and going. I thought I was having bad stomach pains relating to needing to go to the bathroom. While shopping, my fiancé and I split up in the store to get done faster. I kept having to stop every 5 minutes because of the pain. My fiancé saw me standing by a wall and asked me if I was okay. I told him what I was feeling and he freaked out saying I was probably in labor and I should call my doctor. I told him that no, I wasn’t and I didn’t want to call the doctor to become one of those women with false labor. But eventually, as the pain was 4 minutes apart (I was timing) I called the doctor and she told me to rush in.

We drove to the hospital and traffic was horrible. The hospital is near the beach and it was a beautiful say, so the roads were jammed. Finally made it there. They determined that I was dilated and contracting. My son’s heartbeat was healthy. They gave me Magnesium to try and stop the contractions and a steroid shot. The magnesium made me very sick and woozy. And it didn’t stop my contractions. I was moved to a room and right as I was moved the doctor examined me and I was completely dilated. She could feel the sac and broke my water. There was no stopping him. After two pushes, my son Evan was born. I was admitted at 11:30AM and he was born at 12:47PM. He was screaming and crying. Born at 29 weeks 5 Days, weighing 2lbs 6oz 14 inches long.

He was in the level 2 NICU. He had no breathing problems. He didn’t need a vent or nasal canula. Everything looked good, he was just tiny. He spent a week in the level 2 NICU before we had a phone call the following Sunday after his birth, that he was having intestinal issues and they saw a perforation in his intestine. He had the beginnings of NEC. They transferred him at 3PM to a level 3 NICU and by 7PM he was in surgery to correct the perforation. They said that if he didn’t get the surgery ASAP, he would not make it. My fiancé, family and I were freaked out and we were all a wreck. Thankfully there was no dead intestine. They sewed the perforation in his small intestine and cleared out all of the bacteria that had been backed up. He was out of surgery within an hour.

He has been doing pretty well since then. Gaining weight, he is at 3lbs 9.5oz as of yesterday. He has had a replogle tube in since the surgery. And they have tried removing it twice. But both times, no luck and they placed it back. He has been fed via IV since surgery. We have just found out, per the doctor, that he should have been eating a week ago, but for some reason isn’t taking the replogle tube out. This caused them to do an upper GI, lower GI and an ultrasound. The surgeon said he has scar tissue in the small intestine which is causing a narrowing in that area, preventing things to pass. And that his bowels aren’t functioning as properly as they would like. Before they attempt surgery, they wanted to see what the gastro team had to say about it. They put him on Reglan yesterday to hopefully increase digestional flow and expand the area where the narrowing is. But ultimately, if that does not work, surgery will be needed.

This has been the hardest experience of our lives. I am doing better since his birth, but I break down every day. Seeing him is such a joy, but at the same time, it is hard. All of the wires, beeping, etc. I try not to look at the monitors, but it is hard. The A’s and B’s scare me, but I know it is common for preemies. He doesn’t have them often. I know he is in the best hands, but I still want him home. And now all I am praying to God is for him to be home before Christmas. That’s all…I couldn’t imagine going through his first Christmas with him still the hospital.

Thanks for starting this thread. It helps reading all of the stories and triumphs. Like I said, it gives me hope that he will be home soon and recovering well.


Jessica
 
Welcome Jessica! It sounds like both you and your baby are real troopers. Keep us updated on how he's doing. Before you know it, he'll be home with you and wreaking havoc on your sleep.
 

I didn't have a premature baby but I just wanted to say these stories touch my heart. I am getting teary eyed as I read them. :hug:
 
OP here. Welcome to all the new mommies and daddies. Blessings to you all as you go on this journey.

To our kind bumper... Our 24 weeker would have been ok to go to WDW on his 1st birthday. After all the NICU trauma, he did so well at home and never had one sick baby visit that first year. He was sitting up well and was up to 17 lbs.(1lb 10 oz birthweight)
As far as catching up...He had a huge follow up study visit around his due date. Most of his skills were slightly below adverage for one year but all were in the normal range for adjusted age. Speach was the exception. he was way above even un corrected.:angel:
You have to however take evverything with a grain of salt. One test was to see if he could turn the pages of a book. He could without a doubt BUT..They gave him a sprial bound book like he had never seen before and he played with the spirals!:confused3
He took his 1st step after his one year old b-day party but did not really walk till about 15 mo which would be 11 adjusted. The only thing that really continued to lag after the first few years was small motor skills and balance.

It is so hard not to worry but try not to worry so much about what he needs to do to miss out on what he is doing in the present!!!!

Hugs to all you... please feel free to ask questions here or to PM me if I can help.
 












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