P and PD Mom's in the hospital...Update p.2

[cvemom]

I haven't been around the boards in quite awhile with everything going on here. Mom was taken back to the hospital last Saturday and is seriously ill. The last few days have been a whirlwind of confusion. Doctors not telling us anything...case wokers asking which care home we want to put Mom in...and doctors asking about respirators and feeding tubes. I just want to stand up and yell STOP!!!! Mom is still experiencing a "slowly evolving stroke" she has also developed pnuemonia. Her left side is unresponsive. Her left arm is broken from a fall. She hasn't awakened to speak to us since Sunday. She does hold our hand and squeeze it and when asked by the nuerologist to hold up 2 fingers or stick out her tougue, she does. I know she hears us and knows we are there. Sandy, Dad, Cassidy and I are with her everyday and keep talking to her and holding her hand. Please pray for her.

 

[ellyn2000]

I will be praying for your family as you're going through such a trying time. I've been going through a similar scenario with my mother and it is really difficult. Be mindful to take care of yourself as well because this stress can really take a toll. I'll be expecting the best for you.

 

[nativetxn]

Oh, sweetie. I'm so sorry to hear of your mother's illness. You are in a difficult place right now. I've been there.

{{{HUGS}}} for you and for your mother and prayers that she makes a full and complete recovery, soon.

Katholyn

 

[RitaZ.]

Oh, I'm sorry to hear that. I hope that things turn around for your mom.

 

[Meriweather]

to you Jan and the rest of the family.
I know how hard this must be for you all.
Best wishes for things to work out well.

 

[macraven]

sorry to hear what has happened to you and your family.

all of us posters will be thinking of you......





keep us posted please

 

[chell]

Hugs, prayers and pixie dust to you and your family.

 

[mommytotwo]

I'm sorry to hear about your mom and her situation.
Hope she gets better soon. Prayers to you and your family.

 

[Serena]

Hugs, prayers and pixie dust to you and your family.

Yes, and lots more.

 

[NC Belle]

Prayers and PD.

I'm in Altoona, PA until Sunday if you need anything.

 

[Mimi Q]

Prayer said. Sending lots of PD your way.

 

[Pooh67_68]

 

[4nana]

I am so sorry to hear your latest update on your Mom. I can imagine how stressful and depressing this must be for all involved. Know that our prayers and positive thoguhts are with you, your Mom and family at this difficult time. I hope she does a turn around, starts improving and has a complete recovery. My good friend just pulled out of a month long coma cause by a terrible virus, so miracles do happen.

 

[crazyme5kids]

I'm so sorry you are going through this. Have you ever spoken to your mom about what she would want? If not, you need to try and think (I know it's hard) about the type of person she is. When my FIL got very ill, we knew he would not what to be in the hospital on life support. My one BIL couldn't or refused to accept the facts about his condition. My MIL kept him on life support because of BIL. It was very sad, My FIL could hear us too, which did make it hard. In the end he lingered and suffered for 6 weeks.

I know it is hard for you. I just had to let my Dad go yesterday. He suffered a stroke with massive hemmoraging on Wed. For him there wasn't much hope, there wasn't anything the Dr.'s could do except try and stop the bleeding.

Please speak to a nurse. They are the ones who really know the patient because they are the people who are caring for them. While they can't tell you what to do, a nurse will give you information and answer as many questions as they can (without over stepping their limits). You might be able to get a clearer picture of what your mom's prognoises (sp?) and quality of life will be.

Good luck ,I'll be thinking of you during this difficult time.

 

[MsDisney23]

I am so very sorry to hear this. I will keep your Mother and your family in my Prayer's and thought's.

 

[kaylajr]

 

[Big V]

Your Mom will be in my prayers.

 

[Disney Doll]

Speak to the nusring supervisor and request a family meeting which should include the doctor, the social worker, the discharge planner, the nusring supervisor, the physical/occupational therapist, and a nurse who is familiar with your mother's case, condition and abilities/disabilites. It should be a nurse who has cared for her frequently over the course of her hospitalization, and would be able to speak to improvement/decline that he/she has noticed.

What you want to know is:
1. What is her prognosis?
2. What limitations will she have when she is as recovered as she wil be able to be?
3. What level of care will she need when she is as recovered as she will be able to be? Total nursing care(nursing home or 24 hour at home), assisted living, independence.
4. What part of the brain did the stroke affect?
5. What functions does that part of the brain control?

A lot depends on your mother's age, her level of activity/ability/independence prior to the stroke, her cognitive level, her ability to participate in rehab, her wishes for her end-of-life decisions.

Request and be prepared for the staff to be brutally honest.

Your family is in my prayers.

 

[mickeyboat]

I am sorry for all your family is going through. Disney Doll has given you some great advice. When my FIL and MIL were in ICU we insisted on meeting with the entire team. It turns out they disagreed on the course of action with FIL. They presented the options to us, we elected surgery, and he is live and kicking today.

Hope all turns out well.

Denae

 

[crazyme5kids]

Very, very good advice Disney Doll, you said what I was trying to say, but couldn't think of the words.