OT - Does anyone have exp. with ODD

Deffenm

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Joined
Apr 15, 2005
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My son was recently diagnoised with ODD (Oppositional Defiant Disorder). He is also boarderline Kelpto and Anti-Social. I was wondering if anyone has any experience with this that they would be willing to share. DS is 9 years old and has been having issues since he was 5. It has just gotten really bad this year and we finally were able to get him in to be tested (over a 6 month waiting list).

DH and I are reading a book the therapist recommended and we will be attending parenting classes in May but would like to learn as much as we can.
 
Have you posted this on the disABILITIES board yet? You may get some hits over there.

I don't have any other advice, but good luck in your quest of knowledge.
 
My DD was diagnosed BPD with ODD as a secondary rule out diagnosis. Once we were able to stabilize her mood, the oppositional behavior improved and her psychologist decided the behaviors were related to the mood disorder rather than a separate ODD.

I can't really offer any help, but I wanted to offer :hug:. I know how hard it is to deal with these issues.
 
MY DS was thought to perhaps have ODD but it turns out he just had a slew of other disorders (he has SPD, extreme OCD, trichotillomania [a form of OCD that means you pull out your hair) and extreme anxiety). Once we got some of his anxiety under control his acting out improved. We think it was his way of trying to get some (any) control in his life. He still has OCD issues though.

Read books, join a support group and check out the dsiabilities board :)
 

OP - we are going through something similar. Why a 6 month waitlist for a test? What test and who was testing? Just curious since we are just beginning to head down this path. Best of luck to you and your ds. It is so difficult :(
 
Sounds more like RAD. Reactive attachment disorder, it happens more than you would imagine. I invite you to join the RAD lists on yahoo. The one specifically that ROCKS for support and ideas is RADFASDkids
 
Sounds more like RAD. Reactive attachment disorder, it happens more than you would imagine. I invite you to join the RAD lists on yahoo. The one specifically that ROCKS for support and ideas is RADFASDkids

With all due respect, there is much too little information here to be drawing this conclusion. I am sure this is meant to be supportive to the OP, but throwing out diagnoses without understanding the entirety of the situation is inappropriate, and could be very confusing to the OP.

OP, I hope you can get as much support as you can. Treatment involves lots of parental involvement. Most of the success will be hinged on you, the parents, and your ability to calmly and consistently carry through on consequences and structure. Don't give up on counseling and search until you find someone that you feel comfortable with and who really gives you the sense they know how to treat this disorder :hug:
 
With all due respect, there is much too little information here to be drawing this conclusion. I am sure this is meant to be supportive to the OP, but throwing out diagnoses without understanding the entirety of the situation is inappropriate, and could be very confusing to the OP.

OP, I hope you can get as much support as you can. Treatment involves lots of parental involvement. Most of the success will be hinged on you, the parents, and your ability to calmly and consistently carry through on consequences and structure. Don't give up on counseling and search until you find someone that you feel comfortable with and who really gives you the sense they know how to treat this disorder :hug:

I will agree with this post 100%. My dd, now 22,was diagnosed with ODD when she was 7. It was and still is sometimes a very long road. Go to those classes, absorb everything you can. Some things will work, some things will not. Do not beat yourself up over, find what works for YOUR family. You will learn so many parenting techniques that will be invaluable to raising a child with this disorder.

Good Luck to you OP. These children suffer from so little self esteem and can be quite manipulative. My dd was also diagnosed ADD so add in a lot of impulsiveness and it was a battle. But, over the years, it has gotten better. You must be consistent, you must remember to be positive and not so negative (which can be difficult when there is so much negative going on).

Kelly
 
I will agree with this post 100%. My dd, now 22,was diagnosed with ODD when she was 7. It was and still is sometimes a very long road. Go to those classes, absorb everything you can. Some things will work, some things will not. Do not beat yourself up over, find what works for YOUR family. You will learn so many parenting techniques that will be invaluable to raising a child with this disorder.

Good Luck to you OP. These children suffer from so little self esteem and can be quite manipulative. My dd was also diagnosed ADD so add in a lot of impulsiveness and it was a battle. But, over the years, it has gotten better. You must be consistent, you must remember to be positive and not so negative (which can be difficult when there is so much negative going on).

Kelly


I'm going down this road as well. My son, 5, has mixed diagnosis. We are standing now with ADHD w/o hyperactivity and are R/O ODD. I know he had a morning today and I was praying that the behavior didn't continue in school. His teacher told me by the end of the day, mind you we are not very religious and he goes to public school, He asked his teacher "Why doesn't God let us have school on the weekends?".....hello jekyl and hyde???? She said he did struggle a little in school with his emotions today but with positive re-enforcement that he did well. It's sooo hard to stay positive when there are constantly negative behaviors. We also work with a MT and BSC weekly as well as him getting emotional support at school. This trip is stressful enough for me with OCD but to add him to the mix has been crazy. He has even gone as far as telling people on min he wants to go and then the next off crying because he doesn't want to go. I am just going down with a clear head. We took him to six flags last summer and he was a TOTALLY different child. I thought he was abducted and replaced. He was soooo well behaved. I am hoping for the same experience for his first trip to WDW. HTH, HUGS and hang in there...we can make it through this!!!:hug:
 
Sadly my diagnosis suggestion was one of experience. I mistyped before... i meant to say "sounds more like RAD to me". Any parent of a rad child will tell you they are often misdiagnosed for YEARS. So yes i did point that it might not be odd. One specific child i know was disgnosed at age 5 bipolar, adhd, with ODD. when in reality.....she had RAD. she went through years of incorrect treatment and unfortunately once the correct diagnosis was made it was too late for successfull treatment. My suggestion was not to discredit or insult, but was to prevent the heartache many adoptive families have had due to just not knowing about RAD. I still encourage you to seek support from the group i listed, especially since RAD kids are very much odd. (and you would not be looked at as a "bad mom", who's child would be fixed with a good spanking....:::eye roll:::)

Here is what RAD is.....How many symptoms are innerchangeable....(yes this can happen prenatally)


Children with reactive attachment disorder can be divided into four categories:

The Ambivalent Children –
Are angry, defiant & can be violent.
Will push affection away to keep control
Are destructive both with their own belonging and others
Are extremely difficult children to parent because they sabotage or destroy almost everything positive that happens to them.
When they want something, they act very affectionate.
Have few friends if any, although they will say they do, listing several acquaintances – keep friends only for a short time
Lack the ability to give and receive love
Lack empathy for others – often cruel to animals and other children.

The Anxious Children –
Tend to be overly clingy, showing extreme separation anxiety when separated from their mothers.
Incessantly chatters to control conversation
Appear to be eager to please and are superficially compliant.
Are often passive aggressive, constantly doing little things wrong, but never doing anything really bad, but frazzling the parents patience and control.
Usually recover faster than those in the other categories

The Avoidance Children –
Are often overlooked as they are very compliant, agreeable & superficially engaging,
Lack depth to their emotions & functions – robotic like, not genuine or real in emotional engagement.
Don’t enjoy being around others because they don't feel safe.
Are Omnipotent – believing that they can care for all their own needs by themselves, and do not need others, especially their mothers.
Are sullen and openly oppositional, but mostly in a passive aggressive way.

The Disorganized Children –
Have highly disorganized behaviour and a bizarre showing a variety of symptoms.
Hide anger deep inside, they are easier to deal with, harder to treat.
May have atypical psychosis, bipolar disorder, and other neurological disorders.
Often will have mental illness in the family history.
Are excessively excitable (other RAD children are usually moody.)
Are most difficult to treat in therapy because they have so many different problems and often require medication and out-of-home care.
Other Signs & Symptoms
Signs of Reactive Attachment Disorder in infants may include: weak crying response, rage, constant whining, sensitivity to touch and cuddling, poor suckling response and eye contact, and no reciprocal smile response.

Reactive Attachment Disorder Children may also have these symptoms: lack of conscience development, lack of eye contact except when lying, will not give or receive affection (hugs & kisses), no impulse control, abnormal eating patterns (gorging, hoarding, etc.), constantly making noise of some kind, pacing, and unusual speech patterns (mumbling, robotic, talking softly).

RAD can and has been misdiagnosed as Bipolar disorder, Attention Deficit Disorder, Fetal Alcohol Syndrome, Anti-Social Personality Disorder and Conduct Disorder.



Read more at Suite101: Reactive Attachment Disorder: RAD Signs, Symptoms & Causes http://personalitydisorders.suite101.com/article.cfm/reactive_attachment_disorder#ixzz0g1f95Hjy


Best wishes, This sure isnt an easy road!
 
Sadly my diagnosis suggestion was one of experience. I mistyped before... i meant to say "sounds more like RAD to me". Any parent of a rad child will tell you they are often misdiagnosed for YEARS. So yes i did point that it might not be odd. One specific child i know was disgnosed at age 5 bipolar, adhd, with ODD. when in reality.....she had RAD. she went through years of incorrect treatment and unfortunately once the correct diagnosis was made it was too late for successfull treatment. My suggestion was not to discredit or insult, but was to prevent the heartache many adoptive families have had due to just not knowing about RAD. I still encourage you to seek support from the group i listed, especially since RAD kids are very much odd. (and you would not be looked at as a "bad mom", who's child would be fixed with a good spanking....:::eye roll:::)

Here is what RAD is.....How many symptoms are innerchangeable....(yes this can happen prenatally)


Children with reactive attachment disorder can be divided into four categories:

The Ambivalent Children –
Are angry, defiant & can be violent.
Will push affection away to keep control
Are destructive both with their own belonging and others
Are extremely difficult children to parent because they sabotage or destroy almost everything positive that happens to them.
When they want something, they act very affectionate.
Have few friends if any, although they will say they do, listing several acquaintances – keep friends only for a short time
Lack the ability to give and receive love
Lack empathy for others – often cruel to animals and other children.

The Anxious Children –
Tend to be overly clingy, showing extreme separation anxiety when separated from their mothers.
Incessantly chatters to control conversation
Appear to be eager to please and are superficially compliant.
Are often passive aggressive, constantly doing little things wrong, but never doing anything really bad, but frazzling the parents patience and control.
Usually recover faster than those in the other categories

The Avoidance Children –
Are often overlooked as they are very compliant, agreeable & superficially engaging,
Lack depth to their emotions & functions – robotic like, not genuine or real in emotional engagement.
Don’t enjoy being around others because they don't feel safe.
Are Omnipotent – believing that they can care for all their own needs by themselves, and do not need others, especially their mothers.
Are sullen and openly oppositional, but mostly in a passive aggressive way.

The Disorganized Children –
Have highly disorganized behaviour and a bizarre showing a variety of symptoms.
Hide anger deep inside, they are easier to deal with, harder to treat.
May have atypical psychosis, bipolar disorder, and other neurological disorders.
Often will have mental illness in the family history.
Are excessively excitable (other RAD children are usually moody.)
Are most difficult to treat in therapy because they have so many different problems and often require medication and out-of-home care.
Other Signs & Symptoms
Signs of Reactive Attachment Disorder in infants may include: weak crying response, rage, constant whining, sensitivity to touch and cuddling, poor suckling response and eye contact, and no reciprocal smile response.

Reactive Attachment Disorder Children may also have these symptoms: lack of conscience development, lack of eye contact except when lying, will not give or receive affection (hugs & kisses), no impulse control, abnormal eating patterns (gorging, hoarding, etc.), constantly making noise of some kind, pacing, and unusual speech patterns (mumbling, robotic, talking softly).

RAD can and has been misdiagnosed as Bipolar disorder, Attention Deficit Disorder, Fetal Alcohol Syndrome, Anti-Social Personality Disorder and Conduct Disorder.



Read more at Suite101: Reactive Attachment Disorder: RAD Signs, Symptoms & Causes http://personalitydisorders.suite101.com/article.cfm/reactive_attachment_disorder#ixzz0g1f95Hjy


Best wishes, This sure isnt an easy road!

I have a RAD child. Well had. He is all good now. It took years of intensive brutal work. He had other issues too but his RAD was as apparent as it can be. He is adopted and I could spot it a mile away from the minute I met him. He is also a success story. Because he is doing so very well in so many ways.

Every disorder can be misdiagnosed because of comorbidity and so many other factors. And you are correct that it can be missed. However, with the limited info that the OP gave, it is impossible to know what is behind the behavior. Diagnosing RAD requires very extensive info and face to face observation. We have to assume that the professionals that did diagnose the OP's child had reasons to do chose the diagnoses they did. RAD children are often treated similarly to kids with ODD, ADHD and PTSD, so you are correct that supports can be helpful.

Diagnosing psychological disorders is a very complex thing and really should be left to professionals. Respectfully, I truly think it is dangerous to try to do that over the internet on a message board. Please take my words with the sincerity that they are written. :hug:

OP, you need to have complete faith in your providers and their assessment of your child. Read, ask questions and read some more. Become an expert. You know your child more than anyone, but don't diagnose them yourself by what you read or hear from anyone other than a trusted professional. Give them as clear a picture as you can, and be very specific about your family history, dynamics, and parenting styles.
 
It sounds like you are very committed to getting your child the help that he needs. I work in the mental health field and have worked with many children with a similar background. It is very hard to diagnosis children. For instance, depression looks very different in children that it looks in adults. Plus, it is hard to know how the changes of normal growth affect a child's behavior. For myself, I have seen that most importantly is for the family to be invested in treatment and participate in treatment. you are definitely already doing this. Secondly, consistency, structure, and positive rewards are very important. It sounds like you have a therapist who is willing to be your guide along the way. It will be discouraging at times, but be patient and use your supports. If you need anything please let me know.

Michele
 


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