Osteoid Osteoma? update 1/26

Deesknee

<font color=blue>When we were kids (long time ago)
Joined
May 10, 2004
Messages
4,053
I posted this on the coping and compassion thread also,

Anyone have a child with this. My DD3 was just diagnosed today. I've gone online and it does say it is usually benign. I just was hoping to hear a little more about it. Her pediatrician had an appointment booked for us at Children's Hosp. before she even called us with the results of the xray. I just would like to know what to expect on our appt. at Childrens on Thursday.
Thanks to anyone who can help.
 
I have never even heard of this but I want you to know I'm thinking of your family. Please let us know what you find out.

Veronica
 
From what i remember from radiology and path classes I think the its like 100% benign, usually hurts at night if i remember correctly. I think they usually like to take them off with surgery cause they can be painful over time. As far as childhood bone lesions go this one is pretty mild.
 
"I have never even heard of this but I want you to know I'm thinking of your family. Please let us know what you find out.

Veronica"




Thank you


"From what i remember from radiology and path classes I think the its like 100% benign, usually hurts at night if i remember correctly. I think they usually like to take them off with surgery cause they can be painful over time. As far as childhood bone lesions go this one is pretty mild."

Good memory Dr. Spine! According to the information I have gotten from various website in the past 48 hrs it is usuallly benign. None stated 100%, but describe it as "a benign tumor". Yes, it is extrememly painful to her, but only at night. Our hopes are high it will be a mild condition with little after affects.

Thank you both for responding.

Sincerely,
Dee
 

Hi everyone,

I just wanted update with DD3's situation. We took her to Childrens yesterday to meet with the Pediatric Orthopedic Surgeon. This was our first (thank God) experience with Children's Hospital. We could not believe how wonderful an experience it was. The atmosphere and people were just amazing. We got to the Ortho dept about 3o mins early. They called us before we even sat to fill out the medical history. The doctor was wonderful as was the nurse. They talked to us, then left the room to look at DD's xrays we had taken on the So. Shore. When the doctor returned to the room, she informed us she was not "convinced" it is Osteoid Osteoma listing 3 reasons for her questioning it. 1. DD is younger than most that are affected by this.
2. mostly affects boys, 3. usually shows signs on other areas of the bone. She sent us for a CT scan. DD did very well. She was frightened at first, but the technician let her see me on the scan table first and did a "practice" run with me. They also gave us plenty of time to spend with her getting comfortable on the table and calming her down. She wasn't screaming or crying, just saying she didn't want to. She touched the table, then sat on the table, then finally laid down, then when she was pretty calm the tech let her do a "practice" run. She seemed pretty good by this point and he strapped her in then left the room. All went well. DH was on one side of her holding her hand and I on the other, not to mention she got to hold her Teddy. All went very well considering we were dealing with a 3 year old who has only had 1 xray (last Monday) in her whole life and was petrified at that! We are so proud of her. As far as results go, the doctor is going to call us. The other considerations of what it could be range. She mentioned a stress fracture, but really does not think that is it as DD is way to young. She also mentioned perhaps something is irritating one of the blood vessels going into the bone. And of course there is still the consideration of Osteoid Osteoma. Strangley enough, I almost wish it were that. Atleast I know that is benign and the procedure is simple enough. Not know only gives room for nervous speculation. I know I should not project, and I will try very hard not to. For now, we are not giving her Motrin until the pain begins, in order to try to pin point what she is doing when she gets the pain. Last night she did not complain of pain at all. Today she is very cranky, but hasn't complained of her leg. I guess we'll see. Thanks for everyones prayers.
Dee
 
Sending positive vibes your way! I hope that whatever the diagnosis is that it is simple and easily treatable! :goodvibes
 












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