Oral Chemo Revlimid side effects in the park?

[TreeSapp]

Sorry in advance for a double post - I wasn't entirely sure where this goes.

My FIL just started oral chemo for multiple myeloma 3 weeks ago. He's on a medication called Lenalidomide (brand name Revlimid) and considering a trip to disney at the end of October. Has anyone had any experience with this particular medication or any idea of how it may (or may not) impact him on the trip?

 

[gwynne]

Sorry in advance for a double post - I wasn't entirely sure where this goes.

My FIL just started oral chemo for multiple myeloma 3 weeks ago. He's on a medication called Lenalidomide (brand name Revlimid) and considering a trip to disney at the end of October. Has anyone had any experience with this particular medication or any idea of how it may (or may not) impact him on the trip?

Your best information would come from his health care team. They are the ones who know him, and would be able to give your FIL solid guidance on any questions he and you may have.

 

[TreeSapp]

I know MIL & FIL talk to the doctors, but I was just trying to find personal experiences of people who'd been through the parks while on/shortly after treatment

 

[RMulieri]

I am a chemotherapy and oncology RN.I would talk with your FIL's medical provider.Revlimid has a list of side effects a mile long( as do most medications)People react differently to different things.What one person may experience, he might not etc.He needs to clear any vacation plans with his primary team.

 

[TreeSapp]

I am a chemotherapy and oncology RN.I would talk with your FIL's medical provider.Revlimid has a list of side effects a mile long( as do most medications)People react differently to different things.What one person may experience, he might not etc.He needs to clear any vacation plans with his primary team.

Thanks!

A month ago he told us his doctor said he wasn't allowed to go to Disney until two years after his stem cell transplant. But then last week he said he was starting Revlimid & considering the trip again. Not entirely sure what that means, we tend to get very misleading info from them - they like to pretend nothing is wrong (i.e. didn't tell us about his 2nd stem cell transplant til he was on his way to the hospital)

 

[RMulieri]

Thanks!

A month ago he told us his doctor said he wasn't allowed to go to Disney until two years after his stem cell transplant. But then last week he said he was starting Revlimid & considering the trip again. Not entirely sure what that means, we tend to get very misleading info from them - they like to pretend nothing is wrong (i.e. didn't tell us about his 2nd stem cell transplant til he was on his way to the hospital)

Did he already have a Stem cell transplant? If he is receiving chemo after a transplant,it likely means his Multiple myeloma has relapsed , there is residual disease or the transplant never engrafted..

 

[TreeSapp]

He had a stem cell transplant in 2004 or 2005. Got substantially better for a few years, when back on low-dose chemo in 2011-2012ish but didn't tell us. 2nd transplant a year ago (August) and did not rebound as well. Has Hepatic Veno-occlusion this time and says whatever oral chemo he's on now is 'preventative' and 'not filtered through the liver'. Sometimes we just want to call up his doctors and get the unfiltered story.