One year old twins with pku

[guinness408]

We'll be taking our twins when they are 16 months old, so technically won't be ordering food for them. They both have pku, which requires a very very low protein diet... Basically they are low protein vegans. Can anyone recommend which restaurants might be most accommodating? I will be bringing most of their food with me but would be nice to have a break and be able to order them something. Tia

 

[Betty Rohrer]

I am no help with where you could order for them but remember that food brought in with you can not be heated anywhere but baby centers, no restaurant can heat outside food even case of pku. as in another post about baby food only way to heat is a cup of hot water

 

[lanejudy]

Most TS restaurants should be able to adapt or modify, particularly since you're talking about 16 month olds who likely have a small appetite. Despite their young age, if you order anything for them you will be charged -- unless you plan to eat their same diet and they'll eat off your plate. I'd suggest looking at some of the menus on All Ears to see what restaurants have the foods you'd feel most comfortable ordering.

From personal experience, though not a PKU diet we do follow a special diet for medical reasons, don't expect the chefs to understand exactly what the diet entails. Be prepared to ask for/leave off specific ingredients.

Enjoy your vacation!

 

[guinness408]

Most TS restaurants should be able to adapt or modify, particularly since you're talking about 16 month olds who likely have a small appetite. Despite their young age, if you order anything for them you will be charged -- unless you plan to eat their same diet and they'll eat off your plate. I'd suggest looking at some of the menus on All Ears to see what restaurants have the foods you'd feel most comfortable ordering. From personal experience, though not a PKU diet we do follow a special diet for medical reasons, don't expect the chefs to understand exactly what the diet entails. Be prepared to ask for/leave off specific ingredients. Enjoy your vacation!

Thank you!! It's my first trip with dietary restrictions and I want to be prepared!

 

[Jellifer]

Thank you!! It's my first trip with dietary restrictions and I want to be prepared!

One of my friends travelled to the world in 2012 with PKU and she was able to get loprofin pasta and bread ordered in to her resort and her prior reservation restaurants - she arranged this through special diets and stayed at an all star. When she went to the counter service at the resort she'd speak to a manager and they brought out her food special for her, no idea how much it cost as she put it all on a gift card and didn't check receipts.

I think she said she called the regular dining help line and they sent her a form to fill in and send back.

 

[Dudetrue]

My daughter has PKU and we will be going this May. We have done Disney before many times and they are great about it. If you send in the special diets form you can let the chefs know you are coming and they have things that they can do. PM me if you want to.

 

[spacecanada]

My daughter has PKU and we will be going this May. We have done Disney before many times and they are great about it. If you send in the special diets form you can let the chefs know you are coming and they have things that they can do. PM me if you want to.

Yes, this! They have PKU specifically mentioned on their special diets page and ask visitors to give them a call or email at least two weeks before arriving so they can make arrangements for you in the park. Also be sure to note it on all dining reservations, even if they are still too little to officially order for them, they at least are aware of it and can help you with options. They may have some suggestions for suitable snacks in the parks as well.