O/T - Suggestions of DIS-type boards for Aspergers

[Brer Shay]

I've tried local "live" support groups in our area, but they've not been all that helpful. We've had the dx for DS9 for 3 years. Would like suggestions of other boards that you've found helpful in dealing with both the technical and support sides of Aspergers.

 

[LauraVV]

There are a couple of Yahoo groups. One is Our-Kids for parents of kids with disabilities (not just spectrum disorders) and Meta-mito-autism, which is for parents of kids with spectrum disorders and metabolic and/or mitochondrial disorders.

www.our-kids.org
Meta-mito-autism-subscribe@yahoogroups.com

 

[ecki]

When they thought my older daughter had Asperger's, I posted here a lot:

http://www.aspergerinfo.com/forums/ubbthreads.php/ubbthreads.php/ubb/cfrm

 

[Figment1964]

I've tried local "live" support groups in our area, but they've not been all that helpful. We've had the dx for DS9 for 3 years. Would like suggestions of other boards that you've found helpful in dealing with both the technical and support sides of Aspergers.

I've found that the OASIS website to be incredibly thorough. They have lots of information and a message board.

http://www.udel.edu/bkirby/asperger/

HTH!

 

[CindyD]

The following is a list of resources my son's doctor gave us upon diagnosis!!

Autism Spectrum Disorders and Developmental Disorders

www.do2learn.com (some communication ideas)

www.teacch.com (a North Carolina program with a helpful website)

www.rdiconnect.com (information about the RDI intervention program)

www.autismbookstore.com (this site has an excellent on-line bookstore)

www.autism-society.org (ASA website)

www.autism.org (has a helpful section about controversial treatments)

www.aspergersyndrome.org (information on Asperger’s Syndrome)

www.thegraycenter.org (social story technique)

www.pecs.com (picture communication system)

www.shoeboxtasks.com (visually-clear work tasks)

www.tinsnips.org (practical classroom ideas and links)

members.aol.com/room5/welcome.html (classroom ideas)

www.udel.edu/bkirby/asperger (site about Asperger’s Syndrome)

www.mayer-johnson.com/software/Boardmkr.html (a program for making picture communication systems)

www.tonyattwood.com (website with information about Asperger’s Disorder)

www.babybumblebee.com (educational products for young children; highly recommended by parents)

www.abilitations.com (online store with educational and therapeutic products)

info.med.yale.edu/chldstdy/autism/index.html (Yale Child Study Center website)

www.nichcy.org (National Dissemination Center for Children with Disabilities; information about state and federal agencies)

www.chartwellcenter.us (information about the Chartwell Center, a private school for children with Autism Spectrum Disorders in New Orleans that offers excellent teacher training)

I don't remember exactly which sites have a link to DIS types boards, but several do.....I also found www.wrongplanet.net and www.autismspeaks.org (although some of the people on there can be a bit rough).

PM me if you find a different good one!!

Hope this helps!!! CindyD

 

[bookwormde]

This is my first posting so I hope it works

There are a multitude of informational sites such as the ones above. As you have likely found out allready the "state of the art" in Aspergers is at its infantile stage. Lots of well meaning professionals who only partially "get it".

If you find a good general converstation site I would like it also, I have looked and most just deal with problems not triumphs.

The thread around Disney seem to be some of the most practial and progressive ( I suspect because the parents of Aspergers children who recognize the value of Disney World have a more enlighted view of there children and Aspergers in general).

If you have not guessed allready I am a 50yo subclinical aspie dd from a long line of aspies. As I state to new poeple which I meet at support groups, I would have been very dissapointed if at least one of my children had not been and aspie. I was fortunate to have a 8yo ds who is clinical. I also have a 4yo ds who is more to the neurotypical side of the world and a neurotypical dw.

As you might guess my perseption of Aspergers is quite different from neurotypicals.

bookworm

sorry for the spelling ( have not loaded the spell checker yet)

 

[Cheshire Figment]

Hi and to DisBoards and disABILITIES!

And don't worry about spell-checking, we don't worry about spelling mistakes, and if anyone tries to pick on a person's typos the moderators will take care of them.

 

[wvdislover]

subbing--looks like some great info on here that I don't have time to look at right now