Noah's Wish Trip (Wings ~ July 29, 2009)

I finally got up the courage to call my wish coordinator again. I just hate to call them as I feel like I'm bothering them and should be waiting for them to call me. But I'm so glad I called! :yay: She hadn't done anything with our dates, because apparently we were supposed to fax her our passports, which I didn't know about. :sad1: And after today, she is off for Christmas until Jan 5th!

She did answer some of my burning questions though...

Can we leave on the earliest flight? Yes, there is a...gulp... 5am flight available on the dates we've requested that we could take. Yikes! I don't even want to THINK about what time we'll have to get up for that one!! But it gets us to Orlando at 1pm, whereas all other flights don't arrive until late evening. So, of course, that's the one we want.

Can we do lunch at crystal palace? Yes, they will include and make the arrangements for the character lunch so Noah will meet his Tigger.

Can we get a van for our rental? Yes, definately.

What about inflight oxygen? Noah required oxygen last time we flew, however, he is no longer on nighttime oxygen, so I am unsure as to whether he needs it this time or not. Our wish coordinator is off to deliver chocolates to our Respirologist's office this afternoon, and she will get the specifics from them as to Noah's needs.

She is sending out a Disney planning book...Yay!!

We may not have date confirmation until January, but I faxed our passports, so hopefully that will get the ball rolling!

Noah is still very unwell...we will probably end up heading in to hospital:sick:
 
Aw...bless your heart. Somehow I missed your post before this last one.

I hope that they can help Noah and get him re-hydrated! I know that makes an amazing difference.

Is Joshua feeling better? Poor thing, getting sick on stage! At a Christmas performance. How awful...for all of you guys!!

I hope you guys all get better soon!!!!!


Keep us posted as you can.

That flight sounds early...but you might just be so excited you can't sleep anyway! :banana: :banana: :banana: and getting there early will be so nice!!! :)

I can't wait for you guys to get dates! :) Woo Hoo!!
 
Wow, you have 3 beautiful children! Noah is such a sweet looking little peanut! I'm sorry you are having souch a rough time right now. :hug: I'll pray that the doctors are able to help Noah get healthy enough to travel soon.

I can't wait to read more about your family and your trip!
 
I have just been on Noah's blog, he needs all of our good wishes and prayers at the moment as he is in PICU after a 3 hour operation yesterday.
Poor Peanut :(

This is his blog page if anyone wants to read.
Noahs' Blog

Wishes for Noahs speedy recovery

Mandy
 

Thanks for letting us know, Mandy. I just read the blog and I'm praying for little Noah.
 
Thank you so much for your prayers...they are so needed. This has been such an unexpected turn of events and my heart breaks for my son...praying and believing that we WILL get our Noah his wish!!

I will not be posting on this board for now, but I will be keeping the blog updated, for those who wish to follow. It blesses me to see the many lives he continues to touch...thank you.
 
bumping this TR...

Please continue to lift this family in your prayers...

thanks!
 
You are all in our prayers. The women from my church are coming over tonight for a Christmas Party- we will say a special prayer for Noah.

God Bless you all and I will be reading your blog for any updates.

Carol
 
bumping this TR again...

Please pray for Noah and his family. Noah had a bad day yesterday and they have to figure out a way to get IV access to give him his medicine.

check out his blog for more info...and please keep them in your prayers!

http://www.noahgrantjohn.blogspot.com/
 
Seems like you are doing the same as me Mary
Not a day goes by without me looking at his blog at least a couple of times to get an update.
I was quite distressed late last night when I looked and saw that he had gotten worse again :(
Mandy
 
Seems like you are doing the same as me Mary
Not a day goes by without me looking at his blog at least a couple of times to get an update.
I was quite distressed late last night when I looked and saw that he had gotten worse again :(
Mandy


You are right...

the ups and downs are getting to me, and I don't really even "know" this sweet family! I feel like I do, though! Ya know?

It seems like I always get my updates in the AM, because we must be off on our time zones...she seems to write when I am sleeping! But that does not keep me from checking multiple times a day!

I am not the only one praying...I have several friends that have now seen his blog and are also praying! That sweet video, too! Wow...
 
I've just read this thread and my thoughts and prayers are with little Noah and his family.

God bless.
 












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