Medical question - what could cause this?

Obi-Wan Pinobi

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Thought I would ask and see if anyone knows what could cause an odd problem Lauri has been having over the past few days. She has several doctors appointments coming up in the near future but doesn't think this is that big of a deal to try to move them up any.

She is having sensations of being burned in various places on her legs and arms. She said it feels like someone is either putting a cigarette out on her or someone is holding a hot curling iron on her.

Has anyone had this happen before?
 
I dont know, but please let Lauri know Im rooting for her :thumbsup2
 
Shingles? That can start off as a burning sensation.
 
Tigger&Belle said:
Shingles? That can start off as a burning sensation.

No.. not shingles. Lauri is immune to the chicken pox virus and shingles is a variation of that.

The burning isn't causing a rash but actually the area where it happens gets shiny and very hot while it's happening.

And Pop Daddy.. Lauri said "Hey!"
 

Tigger&Belle said:
Shingles? That can start off as a burning sensation.

Can a person get shingles on legs and/or arms?

Is she diabetic? any allergies?
 
how is she immune to chicken pox?

I think that only if someone has had chicken pox ...then they can get shingles.



wow, sounds like a weird allergic reaction...has she tried benedryl?
 
Lots of things can cause burning sensations...some are no big deal, some are serious. Get her to call the doctor and let HIM decide if the appointment shoud be moved up or not. Can't hurt to call, right? Easy as 1, 2, 3...Or 867-5309...depending on your decade. :)

Thoughts and prayers out to you both.
 
denisenh said:
Can a person get shingles on legs and/or arms?

Is she diabetic? any allergies?

Definitely not shingles. She's not diabetic. No allergies outside of juniper bushes (and she hasn't been around them at all)

She does have 2 rare diseases - an autoimmune disease that is a marriage of Lupus and Rheumatoid Arthritis and a blood disorder called Von Willebrands that she keeps in check by not taking any drugs that thin blood like aspirin and ibuprophen
 
denisenh said:
how is she immune to chicken pox?

Has to do with an autoimmune disease she has. She has a superactive immune system. Get this. She has never had a cold, the flu or any childhood diseases no matter how much she is exposed. She was even exposed to chicken pox 4 times, twice purposely to see if she would get it.. nothing.
 
Cool-Beans said:
Lots of things can cause burning sensations...some are no big deal, some are serious. Get her to call the doctor and let HIM decide if the appointment shoud be moved up or not. Can't hurt to call, right? Easy as 1, 2, 3...Or 867-5309...depending on your decade. :)

Thoughts and prayers out to you both.

Thanks Cool-Beans. She knows she should call. She's a hard headed redhead though and she practically has to be screaming in pain before she'll call her Rheumy. I'll work on her though. Maybe I'll threaten to rat her out. ;)
 
Obi-Wan Pinobi said:
Has to do with an autoimmune disease she has. She has a superactive immune system. Get this. She has never had a cold, the flu or any childhood diseases no matter how much she is exposed. She was even exposed to chicken pox 4 times, twice purposely to see if she would get it.. nothing.

wicked interesting! I am not sure that it is all good though. Something is screwy. Maybe she is allergic to herself? Benedryl. It's a good thing.

I am allergic to mustard and certain thoughts. I break out in massive hives... I get hot and itchy too.
 
Obi-Wan Pinobi said:
Has to do with an autoimmune disease she has. She has a superactive immune system. Get this. She has never had a cold, the flu or any childhood diseases no matter how much she is exposed. She was even exposed to chicken pox 4 times, twice purposely to see if she would get it.. nothing.


That's facinating!

Hmmm, shingles was my only guess. Or maybe she's stressed about the results of American Idol. ;) :teeth:
 
I'm no doctor, but I had these same symptoms for a couple of years, except it was only in my lower legs and feet. It's really vexing! I never go to the doctor unless my head's hanging off, so I don't know the actual diagnosis, but through my extensive research, I believe it to be a form of neuropathy (nerve damage, sometimes due to a virus, sometimes due to some type of physical trauma).

I ordered a homeopathic remedy for this and have been taking it for the past few months and am very pleased with the results. The remedy is called Lycopodium Clav, in case she wants to try it for some relief while the doctors try to get her straightened out.

Best wishes to you both!
 
PeterPanette said:
so I don't know the actual diagnosis, but through my extensive research, I believe it to be a form of neuropathy

:) You are probably right in your case....that's where I was heading when I asked about Lauri having diabetes but then when I finished my post I saw that lauri has shiny, hot skin.
I haven't seen neuropathy cause that (on its own, but could if edema &/or cellulitis are involved ) but I do know that neuropathy can be very painful. PeterPanette I hope that what you are taking is FDA approved. If not there are other meds available from your doc, too.

Anyway, I would guess that it has to be a histamine thing with lauri. It just sounds like it.
 
Her immune system is wacko. I had 4 colds this winter. Coughed, sneezed, breathed all over her. Nothing. Not a sniffle. Of course, it's not all it's cracked up to be and having an overactive immune system is destructive.

Plus, I heard on the news tonight that they think the Bird Flu has mutated to person to person transmission. This is a bad thing for people like Lauri who have overactive immune systems since they will be at the greatest risk from this flu.

I'm wondering if the burning sensations could have to do with something muscular. She's had episodes where her CPK rates skyrocket. I'll stay on her about calling her rheumy.
 
Thanks for the input Peter Panette and Denise.

Lauri takes a pretty intense schedule of painkillers and other meds including Morphine, Vicodin and Neurontin. I'm sure the burning must be pretty bad for it to be bothering her through all those pain killers.

I'll definitely bug her to talk to her doctor because she's not supposed to add anything to her drug regimen - even OTC or natural - without his approval because of all the meds she's on.
 
No DR here, but I did a search of the symptoms and got this... see What is the prognosis? part... have her get that appt to be safe. ooxx to her!

Reflex Sympathetic Dystrophy Syndrome

Reflex sympathetic dystrophy syndrome (RSDS) is a chronic condition characterized by severe burning pain, pathological changes in bone and skin, excessive sweating, tissue swelling, and extreme sensitivity to touch. The syndrome, which is a variant of a condition known as causalgia, is a nerve disorder that occurs at the site of an injury (most often to the arms or legs). It occurs especially after injuries from high-velocity impacts such as those from bullets or shrapnel. However, it may occur without apparent injury.

Causalgia was first documented in the 19th century by physicians concerned about pain Civil War veterans continued to experience after their wounds had healed. Doctors often called it "hot pain," after its primary symptom. Over the years, the syndrome was classified as one of the peripheral neuropathies, and later, as a chronic pain syndrome. RSDS is currently classified as a variant of causalgia, not necessarily caused by trauma.

The symptoms of RSDS usually occur near the site of an injury, either major or minor, and include: burning pain, muscle spasms, swelling, increased sweating, softening of bones, joint tenderness or stiffness, movement problems,and changes in the nails and skin. One visible sign of RSDS near the site of injury is warm, shiny red skin that later becomes cool and bluish.

The pain that patients report is out of proportion to the severity of the injury and gets worse, rather than better, over time. It is frequently characterized as a burning, aching, searing pain, which may initially be localized to the site of injury or the area covered by an injured nerve but spreads over time, often involving an entire limb. It can sometimes even involve the opposite extremity. Pain is continuous and may be heightened by emotional stress. Moving or touching the limb is often intolerable. Eventually the joints become stiff from disuse, and the skin, muscles, and bone atrophy.

The symptoms of RSDS vary in severity and duration. However, there are usually three stages associated with RSDS, and each stage is marked by progressive changes in the skin, nails, muscles, joints, ligaments, and bones.

Stage one lasts from 1 to 3 months and is characterized by severe, burning pain at the site of the injury. Muscle spasm, joint stiffness, restricted mobility, rapid hair and nail growth, and vasospasm (a constriction of the blood vessels) that affects color and temperature of the skin can also occur.

In stage two, which lasts from 3 to 6 months, the pain intensifies. Swelling spreads, hair growth diminishes, nails become cracked, brittle, grooved, and spotty, osteoporosis becomes severe and diffuse, joints thicken, and muscles atrophy.

As the patient reaches stage three, changes in the skin and bones become irreversible, and pain becomes unyielding and may now involve the entire limb. There is marked muscle atrophy, severely limited mobility of the affected area, and flexor tendon contractions (contractions of the muscles and tendons that flex the joints). Occasionally the limb is displaced from its normal position, and marked bone softening is more dispersed.

What causes RSDS?

The cause of RSDS is unknown. The syndrome is thought to be the result of damaged nerves of the sympathetic nervous system -- the part of the nervous system responsible for controlling the diameter of blood vessels. These damaged nerves send inappropriate signals to the brain, interfering with normal information about sensations, temperature, and blood flow.

Since RSDS is most often caused by trauma to the extremities, other conditions that can bring about RSDS include sprains, fractures, surgery, damage to blood vessels or nerves, and cerebral lesions. The disorder is unique in that it simultaneously affects the nerves, skin, muscles, blood vessels, and bones.

RSDS can strike at any age, but is more common between the ages of 40 and 60. It affects both men and women, but is most frequently seen in women. Although it can occur at any age, the number of RSDS cases among adolescents and young adults is increasing.

Investigators estimate that two to five percent of those with peripheral nerve injury and 12 to 21 percent of those with hemiplegia (paralysis of one side of the body) will suffer from RSDS.

How is RSDS diagnosed?

RSDS is often misdiagnosed because it remains poorly understood. Diagnosis is complicated by the fact that some patients improve without treatment. A delay in diagnosis and/or treatment for this syndrome can result in severe physical and psychological problems. Early recognition and prompt treatment provide the greatest opportunity for recovery.

RSDS is diagnosed primarily through observation of the symptoms. However, some physicians use thermography -- a diagnostic technique for measuring blood flow by determining the variations in heat emitted from the body-- to detect changes in body temperature that are common in RSDS. A color-coded "thermogram" of a person in pain often shows an altered blood supply to the painful area, appearing as a different shade (abnormally pale or violet) than the surrounding areas of the corresponding part on the other side of the body. An abnormal thermogram in a patient who complains of pain may lead to a diagnosis of RSDS. X-rays may also show changes in the bone.

What is the prognosis?

Good progress can be made in treating RSDS if treatment is begun early, ideally within 3 months of the first symptoms. Early treatment often results in remission. If treatment is delayed, however, the disorder can quickly spread to the entire limb and changes in bone and muscle may become irreversible. In 50 percent of RSDS cases, pain persists longer than 6 months and sometimes for years.

What is the treatment?

Physicians use a variety of drugs to treat RSDS, including corticosteroids, vasodilators, and alpha- or beta-adrenergic-blocking compounds. Elevation of the extremity and physical therapy are also used to treat RSDS. Injection of a local anesthetic, such as lidocaine, is usually the first step in treatment. Injections are repeated as needed. TENS (transcutaneous electrical stimulation), a procedure in which brief pulses of electricity are applied to nerve endings under the skin, has helped some patients in relieving chronic pain.

In some cases, surgical or chemical sympathectomy -- interruption of the affected portion of the sympathetic nervous system -- is necessary to relieve pain. Surgical sympathectomy involves cutting the nerve or nerves, destroying the pain almost instantly. But surgery may also destroy other sensations as well.

While many physicians previously thought that RSDS was caused by emotional disturbances, they now agree that emotional problems arise from the physical limitations caused by RSDS. Doctors now believe that treatment of RSDS usually remedies the psychological and emotional problems that are often experienced by RSDS patients.

Are there any other disorders like RSDS?

RSDS has many of the same features as causalgia, such as severe burning pain that is aggravated by physical or emotional stimuli. However, causalgia usually affects the lower limbs, the palm of the hand or the sole of the foot; RSDS may strike any part of the body.

RSDS also has characteristics similar to those of other disorders, such as shoulder-hand syndrome, which sometimes occurs after a heart attack and is marked by pain and stiffness in the arm and shoulder; Sudeck's syndrome, which is prevalent in older people and in women and is characterized by bone changes and muscular atrophy, but is not always associated with trauma; and Steinbrocker's syndrome, which affects both sexes but is slightly dominant in females, and includes such symptoms as gradual stiffness, discomfort, and weakness in the shoulder and hand.

Information provided by the
National Institute of Neurological Disorders and Stroke
National Institutes of Health

from:

http://healthlink.mcw.edu/article/922675234.html
 
She does have 2 rare diseases - an autoimmune disease that is a marriage of Lupus and Rheumatoid Arthritis and a blood disorder called Von Willebrands that she keeps in check by not taking any drugs that thin blood like aspirin and ibuprophen

If she was normally healthy otherwise, I'd think that she could wait till the doc appointments, but given what you have written above, I think she should call the office and discuss it with the nurse and move her appointment up.
 
I hope you have luck and have her call her Dr. Self diagnosising can make you crazy :crazy: Take my advise I'm the princess of self diagnosising. Keep a good record for her doctors when this occurs, what she ate, medicines new and old, over the counter med's including herbal. Oh I just had a thought was she gardening recently? Hope she goes to her Dr. :grouphug:
 
She does have 2 rare diseases - an autoimmune disease that is a marriage of Lupus and Rheumatoid Arthritis and a blood disorder called Von Willebrands that she keeps in check by not taking any drugs that thin blood like aspirin and ibuprophen
Sounds to me like it *could* be peripheral neuropathy...which definitely could be a result of her auto-immune disorder problems. I know someone who has Lupus and had similar problems. I have no idea how this was treated, though. I have not seen her in years. But I remember it was a neurological problem due to the Lupus. Definitely something to bring up at the next doctors visit, for sure.

Sheesh, like Lauri hasn't had enough to deal with. I hope she is feeling better soon.

(btw, as a totally off the wall side question, does Lauri have issues with anesthesia/pain killers not working correctly? I ask because I have done some research into this after reading about a study showing that some red heads do not have the same reactions to anesthesia as other people. I had a cardiac ablation where the drugs they gave me did not do a thing for me and a few of my red headed relatives have had similar experiences with pain meds/anesthesia. just wondering if Lauri has every experienced something like that?)
 

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