Make A Wish?! Help?!

ashtonrg

Earning our Ears
Joined
Jul 21, 2016
Messages
24
So our son was qualified for make a wish last week. We're waiting to be assigned volunteers then we will have the meeting on what he would like to wish for. Our son is non verbal he's almost 3 years old & his language/speech is of an 15 month old on the scales. He doesn't use sentences, two words at a time or anything like that. He's epileptic, autistic & also had a pernatal stroke (while in the womb) that's caused a lot of his issues that will not be able to repair. His right side is super weak he does 90% of his tasks with his left side.

But to jump to why I posted in the forum. How do the make a wish teams work with granting wishes to those who are unable to fully express what they'd wish for if able to talk? And how long from the time they come to the home will it take normally to grant the wish?

The things he likes are (Disney cars, minions, hot wheels, warm water, watching kids play on YouTube kids on his tablet, ninja turtles, swimming, riding carnival rides & watching Mickey Mouse Clubhouse).
 
I was a MAW volunteer for quite a few years, however my last wish was 13 years ago. Once I had children of my own, I simply didn't have time to devote to it. At the time I went through my training, we were taught how to deal with various limitations in our Wish Children. Non verbal children can draw pictures for us, show us their favorite toys, movies, pictures or books to help convey their interests. The family can help interpret also. All of my wishes had varied time lines. Many times things changed due to the health of the child. I hope your son has a wonderful experience with Make A Wish!
 
I was a MAW volunteer for quite a few years, however my last wish was 13 years ago. Once I had children of my own, I simply didn't have time to devote to it. At the time I went through my training, we were taught how to deal with various limitations in our Wish Children. Non verbal children can draw pictures for us, show us their favorite toys, movies, pictures or books to help convey their interests. The family can help interpret also. All of my wishes had varied time lines. Many times things changed due to the health of the child. I hope your son has a wonderful experience with Make A Wish!

My son cannot write or draw. We took him to the store yesterday and told him he could have a movie. To show us the one he liked he pointed at every movie on the shelf. We show him pictures of things to try to get a general idea and he likes everything we show him. He seems to with age has changed a lot in the way he expresses himself. Due to stroke & autisim it's been very difficult. We do know he smiles when we take him by the fish tank in a store, he doesn't get mad or cry when he's swimming as long as the water is warm. He will zone out and watch Mickey Mouse Clubhouse, Minions, Disney Cars. He is always watching those on his tablet or playing with his Legos or cars.
 

I have been a MAW volunteer for several years. I've had several wishes with non verbal children and there was one example where we did bring pictures of different wishes to the child and the parents saw which pictures the child responded most to. You should be able to work with your wish granters to help your son with the best wish!!! As far as how long, it can vary- sometimes it is dependent on getting paperwork from parents, from doctors, etc... The wish granters will be able to give you more details at your first meeting. Good luck!!
 
Also, each chapter of MAW runs a little differently, so some people's experiences may be different from yours. So be patient and they will work with you. And as someone mentioned, check out the Disabilities board. :) Hang in there!
 
Please don't worry yourself.....you are your precious son's voice! Make-a-Wish will not deny your wish to take him to WDW. I had a nephew who's wish was granted and we spent the most magical, memorable time at the Give Kids the World Village. I hope you and your family have a wonderful time and I hope you post of your journey!
 
Please don't worry yourself.....you are your precious son's voice! Make-a-Wish will not deny your wish to take him to WDW. I had a nephew who's wish was granted and we spent the most magical, memorable time at the Give Kids the World Village. I hope you and your family have a wonderful time and I hope you post of your journey!

I sure will! Thank you so much!!! Just waiting to hear from the volunteers he was assigned to this week.
 
Hello! I am also a volunteer wish granter with MAW! I'm only one year and two wishes in, but I did complete the training this past October so hopefully I can help! This spring I had a 16yo boy whose wish I was granting. I wasn't told in advance, but he was pretty much non-verbal. I would say his communication skills were on par with a two year old. He could answer questions, but only in one word. Also, we asked the same question multiple times and his answer would change.

Before you get a wish granter, you will get an "About Me" paper to fill out. You may have already did it at this point. This has simple questions like "my favorite food is..., my favorite animal is... my favorite color is..." This will give the wish granters an idea about what your son is like and what he likes. In my 16yo's case, almost every answer was related to animals. He had multiple pets, his favorite activities were fishing and going to the zoo, his favorite TV shows and movies were the "Planet Earth" documentaries. So, going in we knew that his wish would probably be animal themed. At this point, when a child is so young and nonverbal, we need to trust the parents. Luckily, this guy's parents were amazing. They were able to tell us about past vacations they took, and what "J" did and didn't like. In the end, we went him to Alaska so he could do a bunch of animal and nature related activities like go whale watching, see glaciers, visit an aquarium, see sled dogs, and visit a wildlife sanctuary. I should mention that this family also traveled a lot. We suggested visiting places like the San Diego Zoo, the Smithsonian Zoo, and SeaWorld, but he had already done those before, so we wanted to give him a new experience.

In this case, the wish granters are really going to have to trust you. You know your son the best, and you can advocate about what he loves. Wish granters play the "wish game" with kids, so it can certainly help you and your son out. Wishes are usually categorized into four types of wishes: "I wish to have," "I wish to meet," "I wish to go," and "I wish to be." For each of those four categories, the wish granters will try to get three ideas. For example, they might say "If you could go to any place in the world, which three places would you like to go?" After they get three ideas for each category, they will try to narrow it down. For example, "You said you would wish to go to Disney World, Hawaii, or the Bahamas. If you could only go to one of those places, which would it be?"

By the way, have you heard of Give Kids the World Village? It's where all the wish families stay when they visit Orlando. It is quite literally the happiest place on Earth. I really can't do it justice here, but it really is fantastic. Each family gets to stay for six nights in a two bedroom villa. They get a rental car and tickets to Disney, Universal, and SeaWorld. At the village there is a food court, an ice cream parlor (open for breakfast), nightly parties, a swimming pool, carnival rides, horse back riding, video games, fishing, character meet and greets, and literally anything a kid could wish for. Not only is everything handicap accessible, it's also 100% for families. I think your son would love it, because he could visit Disney, visit Universal (the have a Minion ride and you can meet them and the Despicable Me characters) go swimming, meet Mickey, and go on carnival rides (there is a carousal, a flying ride, and a train). Of course, you have many, many other options, but I think he would have a great time there. If you have time, go online and find some videos. Also, if you don't think he will like it, go on the MAW America and some of the local chapters' websites. They usually list past wishes, and you and your son can go through some of the past wishes to get an idea.

Good luck!
 
Hello! I am also a volunteer wish granter with MAW! I'm only one year and two wishes in, but I did complete the training this past October so hopefully I can help! This spring I had a 16yo boy whose wish I was granting. I wasn't told in advance, but he was pretty much non-verbal. I would say his communication skills were on par with a two year old. He could answer questions, but only in one word. Also, we asked the same question multiple times and his answer would change.

Before you get a wish granter, you will get an "About Me" paper to fill out. You may have already did it at this point. This has simple questions like "my favorite food is..., my favorite animal is... my favorite color is..." This will give the wish granters an idea about what your son is like and what he likes. In my 16yo's case, almost every answer was related to animals. He had multiple pets, his favorite activities were fishing and going to the zoo, his favorite TV shows and movies were the "Planet Earth" documentaries. So, going in we knew that his wish would probably be animal themed. At this point, when a child is so young and nonverbal, we need to trust the parents. Luckily, this guy's parents were amazing. They were able to tell us about past vacations they took, and what "J" did and didn't like. In the end, we went him to Alaska so he could do a bunch of animal and nature related activities like go whale watching, see glaciers, visit an aquarium, see sled dogs, and visit a wildlife sanctuary. I should mention that this family also traveled a lot. We suggested visiting places like the San Diego Zoo, the Smithsonian Zoo, and SeaWorld, but he had already done those before, so we wanted to give him a new experience.

In this case, the wish granters are really going to have to trust you. You know your son the best, and you can advocate about what he loves. Wish granters play the "wish game" with kids, so it can certainly help you and your son out. Wishes are usually categorized into four types of wishes: "I wish to have," "I wish to meet," "I wish to go," and "I wish to be." For each of those four categories, the wish granters will try to get three ideas. For example, they might say "If you could go to any place in the world, which three places would you like to go?" After they get three ideas for each category, they will try to narrow it down. For example, "You said you would wish to go to Disney World, Hawaii, or the Bahamas. If you could only go to one of those places, which would it be?"

By the way, have you heard of Give Kids the World Village? It's where all the wish families stay when they visit Orlando. It is quite literally the happiest place on Earth. I really can't do it justice here, but it really is fantastic. Each family gets to stay for six nights in a two bedroom villa. They get a rental car and tickets to Disney, Universal, and SeaWorld. At the village there is a food court, an ice cream parlor (open for breakfast), nightly parties, a swimming pool, carnival rides, horse back riding, video games, fishing, character meet and greets, and literally anything a kid could wish for. Not only is everything handicap accessible, it's also 100% for families. I think your son would love it, because he could visit Disney, visit Universal (the have a Minion ride and you can meet them and the Despicable Me characters) go swimming, meet Mickey, and go on carnival rides (there is a carousal, a flying ride, and a train). Of course, you have many, many other options, but I think he would have a great time there. If you have time, go online and find some videos. Also, if you don't think he will like it, go on the MAW America and some of the local chapters' websites. They usually list past wishes, and you and your son can go through some of the past wishes to get an idea.

Good luck!


His volunteers were assigned last Monday we haven't heard anything from them. The only thing we received in the mail was telling us they were assigned their names & a list showing what to have when the come. (Birth certificates, Id etc).

Thank you so much for all the information!!! :)
 
Definitely do your research on Give Kids the World (GKTW)...it is an AWESOME place. I have heard people that came back from there saying they loved it so much they spent much more time in the village than they thought they would.
 
Moving this over to our disABILITIES forum (since it's not a trip report) where you'll get lots more information about Give Kids the World trips. They are truly the most amazing organization! You and your family are going to love them. :lovestruc
 
His volunteers were assigned last Monday we haven't heard anything from them. The only thing we received in the mail was telling us they were assigned their names & a list showing what to have when the come. (Birth certificates, Id etc).

Thank you so much for all the information!!! :)
another saying to research Give Kids The World besides WDW. lots of special activities there to work into your plans. also plan on extra suitcase to bring everything home
 
Has the wish granters gotten back to you. I did wish granter years ago and we had 5 days from being assigned to reaching out to the family. Good luck with the wish.
 
Has the wish granters gotten back to you. I did wish granter years ago and we had 5 days from being assigned to reaching out to the family. Good luck with the wish.


No they haven't. Our regional director of our chapter ask me to contact her Friday (yesterday) if I hadn't heard from them by then so I did. She said she would contact them to see what was going on & she never contacted me back. So I'm not sure what's going on haha. I guess I won't hear back from her now until Monday...
 
How do the make a wish teams work with granting wishes to those who are unable to fully express what they'd wish for if able to talk?

1) You MAW Wish Granter will come to meet you and the family.
2) At that time, you inform the WG what you need/want/desire.
3) They will, then, try to get such arranged . . . if and when possible.

NOTE: As a Volunteer Coordinator for Give-Kids-The-World (GKTW.org), I see this all the time, the volunteers try to satisfy as much as possible. They usually come pretty close.
 
I am sure someone here will respond with the links, but there are people who have made pages you can print for alternate communication. Pictures of different characters, rides, food, etc. Then he can just point to what he wants. For example, you can show him pictures of Mickey, Goofy, etc, and he can pick who he would like to meet. There are plenty of people here with non-verbal kids or family members who can't sign or write, so this is something that comes up a lot.

I even think there is an app for an iPad that does something similar, and you can download the "tiles" for Disney parks.

Hope you have a wonderful trip.
 












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