Not sure if this is still open, but the Wish Trippers Site had amazing information.
I will start off telling you a little bit about us. My name is Kristi. I am a mom of three amazing kids. Alexis who is 16
Lillie who is 11 
and AJ who is 3. 
My husband Rico and I have been together for 18 years 
Our son was born on October 14, 2010. We were told early on something wasn't right. At 22 weeks a mass on the umbilical cord formed causing turbulence which eventually caused a lack of oxygen to AJ's brain causing some pre mature issues (laryngomalacia) and causing white matter disease aka Periventricular leukomalacia of AJ's brain. He was developmental delayed and they believe he has auditory processing disorder and ADHD. Then this past February AJ was diagnosed with FOP. Fibrodysplasia Ossificans Progressiva is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
So AJ has had numerous flare ups and we were surprised by Make A wish, Apparently some family, friends and doctors have referred us. AJ choice was Disney, I know now we just wait but I fould this amazing board and thought I would join. Thank you.
I will start off telling you a little bit about us. My name is Kristi. I am a mom of three amazing kids. Alexis who is 16
Lillie who is 11 and AJ who is 3. My husband Rico and I have been together for 18 years Our son was born on October 14, 2010. We were told early on something wasn't right. At 22 weeks a mass on the umbilical cord formed causing turbulence which eventually caused a lack of oxygen to AJ's brain causing some pre mature issues (laryngomalacia) and causing white matter disease aka Periventricular leukomalacia of AJ's brain. He was developmental delayed and they believe he has auditory processing disorder and ADHD. Then this past February AJ was diagnosed with FOP. Fibrodysplasia Ossificans Progressiva is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
So AJ has had numerous flare ups and we were surprised by Make A wish, Apparently some family, friends and doctors have referred us. AJ choice was Disney, I know now we just wait but I fould this amazing board and thought I would join. Thank you.
