Hi. My apologies if I am posting this in the wrong place. We recently received confirmation of my son's Wish Trip to Disney World. We leave December 19 and come back Christmas Day. I have become consumed with thinking about how awesome this trip will be for our family. We are from South Carolina and will be driving.
Isaiah - Our Wish Child. Isaiah was born with Tricuspid-Atresia. That likely sounds unfamiliar to you so let me just explain that it is very similar to Hypoplastic Left Heart, a condition you are likely more familiar with. He stayed in the hospital two weeks at birth. He was lucky in that he did not require the first surgery. Shortly after coming home he somehow got menengitis. Back to hospital for three weeks. This nearly got him. The doctors decided to go ahead with the first planned procedure. Surgery itself went well but he had post-op seizures. In hospital a month. Isaiah had a slow recovery but gradually, and thankfully, had a much less eventful next couple of years. This past summer Isaiah had his final surgery. He is now 3 months post op and doing wonderfully. Isaiah is OBSESSED with "Wild Animals", Baymax, and Toy Story.
Now that the yucky stuff is out of the way lets talk about him. He is my wife, for better and worse. He is obstinate, demanding, and can bring a smile to anyone when the mood strikes. He goes from hilariously sweet and silly to making you want to choke him two seconds later. Like I said, he is my wife. He even looks exactly like her.
Gabe - Our eight year old. Gabe is me. Period. He is sarcastic, funny, very laid back, and super smart. He is a little shy but really gets along with everyone. He also happens to be an amazing brother. I am so thankful that he does not view his brother's health in a way that makes him jealous. He has always been more concerned for him than how long mom and dad will be gone. I am so proud of him! One of our stipulations when meeting our Make-A-Wish people was that we did not want any wish for Isaiah that Gabe could not be an equal participant in. Their relationship is too important. Gabe is really into Star Wars and Harry Potter. Like I said, he is me. He even looks like me.
My wife is a Kindergarten teacher. She tends to be very passive in all this. I think she has very mixed emotions. On one hand she is grateful that our family gets this opportunity. On the other it is more reinforcement of the fact that our son was born with something VERY wrong. I try not to bother her. She will get excited when we get there.
I am a High School math and engineering teacher. I am truthfully more excited than the kids.
I love Star Wars, Harry Potter, and am pretty much a big kid. More to come...
Isaiah - Our Wish Child. Isaiah was born with Tricuspid-Atresia. That likely sounds unfamiliar to you so let me just explain that it is very similar to Hypoplastic Left Heart, a condition you are likely more familiar with. He stayed in the hospital two weeks at birth. He was lucky in that he did not require the first surgery. Shortly after coming home he somehow got menengitis. Back to hospital for three weeks. This nearly got him. The doctors decided to go ahead with the first planned procedure. Surgery itself went well but he had post-op seizures. In hospital a month. Isaiah had a slow recovery but gradually, and thankfully, had a much less eventful next couple of years. This past summer Isaiah had his final surgery. He is now 3 months post op and doing wonderfully. Isaiah is OBSESSED with "Wild Animals", Baymax, and Toy Story.
Now that the yucky stuff is out of the way lets talk about him. He is my wife, for better and worse. He is obstinate, demanding, and can bring a smile to anyone when the mood strikes. He goes from hilariously sweet and silly to making you want to choke him two seconds later. Like I said, he is my wife. He even looks exactly like her.
Gabe - Our eight year old. Gabe is me. Period. He is sarcastic, funny, very laid back, and super smart. He is a little shy but really gets along with everyone. He also happens to be an amazing brother. I am so thankful that he does not view his brother's health in a way that makes him jealous. He has always been more concerned for him than how long mom and dad will be gone. I am so proud of him! One of our stipulations when meeting our Make-A-Wish people was that we did not want any wish for Isaiah that Gabe could not be an equal participant in. Their relationship is too important. Gabe is really into Star Wars and Harry Potter. Like I said, he is me. He even looks like me.
My wife is a Kindergarten teacher. She tends to be very passive in all this. I think she has very mixed emotions. On one hand she is grateful that our family gets this opportunity. On the other it is more reinforcement of the fact that our son was born with something VERY wrong. I try not to bother her. She will get excited when we get there.
I am a High School math and engineering teacher. I am truthfully more excited than the kids.
I love Star Wars, Harry Potter, and am pretty much a big kid. More to come...
