Make a Wish (and other organizations) - Wish Trippers UNITE! Volume THREE! :)

[jessica52877]

It always softens up after you wash it a few times, but, you can go to Joann's or Handcocks and purchase some iron on polymesh fusable interfacing which is soft. Im sure if you took a shirt to the store and showed them, they'd show you what to get. I have always found it to fall off after a few washings, but by that time its soft underneath!! Hope that helps!! If that doesnt work you could always put a sleeveless undershirt on him if it isnt too hot???

What she said!

Take the shirt with you so hopefully they'll understand what you are asking for. We have some "interesting" people who work at our Joann's in the sewing section. It will soften up for sure even after just 1 washing.

 

[jbrnhrt]

Tuesday is Family Fun Night, and Friday is the Princess and Pirate Party. Family fun Night was a pool party with live entertainment. The Princess/Pirate party we missed so I don't know anything about it.

"Casting for Catfish" may be a reference to the availability of fishing gear at the House of Hearts.

Orientation will answer your questions, so don't worry. Just go with it.

The villas are 2 bedroom flats, similar to most other vacation rentals on the inside.

Meals are available from Gingerbread House for breakfast and dinner, while the Ice Cream Palace has a hot breakfast. Katie's Kitchen will provide lunches, but we haven't used that one.

At check in, you will get a meal card that you will scan at each visit to Gingerbread or getting the hot breakfast at the Ice Cream Palace. Some of the meal options will count against your meal card, others won't. I think Katie's Kitchen is independent of the card, as is the pizza and ice cream. The breakfast trolley is an unknown on that issue.

In case of conflict, go with the GKTW website info.

You'll have a blast and leave exhausted.

thanks for the info! Have a safe trip home, reading your blog has gotten me very excited! It looks like your family had a wonderful week!

 

[kayrason333]

It always softens up after you wash it a few times, but, you can go to Joann's or Handcocks and purchase some iron on polymesh fusable interfacing which is soft. Im sure if you took a shirt to the store and showed them, they'd show you what to get. I have always found it to fall off after a few washings, but by that time its soft underneath!! Hope that helps!! If that doesnt work you could always put a sleeveless undershirt on him if it isnt too hot???

That helps alot, thank you! I thought about the sleevless shirt underneath, but I am afraid that he will get to hot.

What she said!

Take the shirt with you so hopefully they'll understand what you are asking for. We have some "interesting" people who work at our Joann's in the sewing section. It will soften up for sure even after just 1 washing.

Thanks for the info!
We will make a trip up to JoAnn's today, I will let you both know how it goes

 

[BlairC]

I'm so happy we're here. Thank the heavens for Make-a-Wish!

This is what I posted on the planning board. I can't add links so here's what I posted:

----------------------
Xander - Wish Trip - Wish Granted - Dates TBD

Wooohooo! Xander has been granted a Wish!! We haven't commited to any specific location yet but we will soon and we would like it to be GKTW/Disney. From what I have heard from other wish families, this vacation is ALL about the kids. That is what I want for him. His life has been full of pain and sadness and it's time for some fun!

While we haven't nailed down the dates, I am excited to start planning for our trip. Are there sample itineraries around? I don't know how to go about figuring out where to go and what to do every day. There is so much and I know it isn't all geared toward my sons' age groups. Where can I go to find out age appropriate rides, shows, events, etc...?

Thanks in advance!
Blair




About Xander
Shortly after birth, Xander was diagnosed with the life threatening liver disease, Biliary Atresia. At 7wks old, he had surgery to try and save his native liver. Unfortunately, the surgery failed. Since the surgery was unsucessful, his only chance for survival would ultimately be a liver transplant.

Following Xander's surgery, he deteriorated pretty quickly. He was placed on the transplant waiting list at nine months of age. He was at end-stage liver disease. The day after he was listed, he was admitted to the Johns Hopkins hospital due to complications of liver disease. He remained there until 'the call' came.

Thanks to a most caring family, Xander recieved his gift of life at ten months old. His donor was a 16yr old boy. We thank God every day for Xander's angel donor and pray for his family. Their son gave our son the most beautiful gift one person can give to another. Life. We are forever grateful.

Since transplant, Xander has been in and out of the hospital but for the most part he and his new liver are getting along famously. He is full of energy and I believe he understands how great life is. He enjoys every single second and makes the most out of each day. He has taught us what is important in life. We are so very blessed he chose us to be his Mommy, his Daddy and his brother. We wouldn't want it any other way. ♥


Xander

Lincoln

 

[jen-y]

On Kylee's MAW trip we just told the Organization we wanted to stay 2 extra days and they just booked the flight home the day we wanted. The only thing we had to pay is the hotel and take over the van rental. We are going to stay 3 extra days this time. We just told them we wanted to leave on the 30th of March.

What she said We are doing the same thing.

 

[jen-y]

I'm so happy we're here. Thank the heavens for Make-a-Wish!

This is what I posted on the planning board. I can't add links so here's what I posted:

----------------------
Xander - Wish Trip - Wish Granted - Dates TBD

Wooohooo! Xander has been granted a Wish!! We haven't commited to any specific location yet but we will soon and we would like it to be GKTW/Disney. From what I have heard from other wish families, this vacation is ALL about the kids. That is what I want for him. His life has been full of pain and sadness and it's time for some fun!

While we haven't nailed down the dates, I am excited to start planning for our trip. Are there sample itineraries around? I don't know how to go about figuring out where to go and what to do every day. There is so much and I know it isn't all geared toward my sons' age groups. Where can I go to find out age appropriate rides, shows, events, etc...?

Thanks in advance!
Blair




About Xander
Shortly after birth, Xander was diagnosed with the life threatening liver disease, Biliary Atresia. At 7wks old, he had surgery to try and save his native liver. Unfortunately, the surgery failed. Since the surgery was unsucessful, his only chance for survival would ultimately be a liver transplant.

Following Xander's surgery, he deteriorated pretty quickly. He was placed on the transplant waiting list at nine months of age. He was at end-stage liver disease. The day after he was listed, he was admitted to the Johns Hopkins hospital due to complications of liver disease. He remained there until 'the call' came.

Thanks to a most caring family, Xander recieved his gift of life at ten months old. His donor was a 16yr old boy. We thank God every day for Xander's angel donor and pray for his family. Their son gave our son the most beautiful gift one person can give to another. Life. We are forever grateful.

Since transplant, Xander has been in and out of the hospital but for the most part he and his new liver are getting along famously. He is full of energy and I believe he understands how great life is. He enjoys every single second and makes the most out of each day. He has taught us what is important in life. We are so very blessed he chose us to be his Mommy, his Daddy and his brother. We wouldn't want it any other way. ♥

---------------------

I am so glad Xander was approved for a trip You have come to the right place. As far as research, I would start with the Walt Disney World website. There is information on there geared toward different age groups. Also, order the free vacation planning DVD. There is a group on the Disney website called "ask moms" and you can ask questions, but actually you could just ask us any questions you have. There are certain things that may or may not be good for him to do depending on likes and dislikes. For example, my son is scared of loud noises. There are a few rides I know are loud (the dinosaur one at Animal Kingdom) so we won't take him on that. And he won't go anywhere near the Haunted Mansion. He won't even walk towards it. After you look around at the Disney website, ask us if you have any questions. One of the most important things to do is make your dining reservations ( or ADR's ) as soon as you get your dates, becuase restaurants fill up fast

 

[jen-y]

The kids received their Give packages from DisBoutiquers yesterday
I posted some pictures on my PTR. I started to pack Nicky's suitcase yesterday. I prefer to travel light, so I was planning on each kid having their own suitcase, but a small one. After all, how much can a 4 and 8 year old need. Luckily he does not need any special medical equipment. Just 3 meds and a thermometer.
Anywho, it does not look like the smaller suitcase is gonna work. I guess I will try packing both kids stuff in one large suitcase.

http://www.disboards.com/newreply.php?do=postreply&t=2399232

 

[LindaBabe]

The kids received their Give packages from DisBoutiquers yesterday
I posted some pictures on my PTR. I started to pack Nicky's suitcase yesterday. I prefer to travel light, so I was planning on each kid having their own suitcase, but a small one. After all, how much can a 4 and 8 year old need. Luckily he does not need any special medical equipment. Just 3 meds and a thermometer.
Anywho, it does not look like the smaller suitcase is gonna work. I guess I will try packing both kids stuff in one large suitcase.

http://www.disboards.com/newreply.php?do=postreply&t=2399232

Uh, Jen? You might want to pack two big suitcases Remember all the stuff you will be given while you're down there!

 

[Mom2mitokids]

I'm so happy we're here. Thank the heavens for Make-a-Wish!

This is what I posted on the planning board. I can't add links so here's what I posted:

----------------------
Xander - Wish Trip - Wish Granted - Dates TBD

Wooohooo! Xander has been granted a Wish!! We haven't commited to any specific location yet but we will soon and we would like it to be GKTW/Disney. From what I have heard from other wish families, this vacation is ALL about the kids. That is what I want for him. His life has been full of pain and sadness and it's time for some fun!

While we haven't nailed down the dates, I am excited to start planning for our trip. Are there sample itineraries around? I don't know how to go about figuring out where to go and what to do every day. There is so much and I know it isn't all geared toward my sons' age groups. Where can I go to find out age appropriate rides, shows, events, etc...?

Thanks in advance!
Blair




About Xander
Shortly after birth, Xander was diagnosed with the life threatening liver disease, Biliary Atresia. At 7wks old, he had surgery to try and save his native liver. Unfortunately, the surgery failed. Since the surgery was unsucessful, his only chance for survival would ultimately be a liver transplant.

Following Xander's surgery, he deteriorated pretty quickly. He was placed on the transplant waiting list at nine months of age. He was at end-stage liver disease. The day after he was listed, he was admitted to the Johns Hopkins hospital due to complications of liver disease. He remained there until 'the call' came.

Thanks to a most caring family, Xander recieved his gift of life at ten months old. His donor was a 16yr old boy. We thank God every day for Xander's angel donor and pray for his family. Their son gave our son the most beautiful gift one person can give to another. Life. We are forever grateful.

Since transplant, Xander has been in and out of the hospital but for the most part he and his new liver are getting along famously. He is full of energy and I believe he understands how great life is. He enjoys every single second and makes the most out of each day. He has taught us what is important in life. We are so very blessed he chose us to be his Mommy, his Daddy and his brother. We wouldn't want it any other way. ♥

---------------------

Hi and welcome to the disboards. I'm so glad Xander is getting his wish. I can't wait to get to know you better.

 

[cajunfan]

A lot of the stuff will fit in the drawstring backpacks!

 

[Mom2mitokids]

Uh, Jen? You might want to pack two big suitcases Remember all the stuff you will be given while you're down there!

We had to buy a carry on luggage before we left Florida the last time with all the stuff we got. lol

 

[balloondoggle]

Uh, Jen? You might want to pack two big suitcases Remember all the stuff you will be given while you're down there!

I second that!! Between the swag and your purchases, you'll need to budget space and checked baggage fees. Unless you take along some of those space saving vacuum storage bags.

 

[balloondoggle]

Day 6 edited and illustrated, Day 7 posted.

We're home and happy to be in our own beds, but we fought back tears when leaving GKTW this morning. And not because I dropped the car seat on my toe.

 

[Mom2mitokids]

Day 6 edited and illustrated, Day 7 posted.

We're home and happy to be in our own beds, but we fought back tears when leaving GKTW this morning. And not because I dropped the car seat on my toe.

I haven't had a chance to read your blog, so sitting down right now with my ice cream and reading.

 

[Mom2mitokids]

Just letting everyone know that September is Coldstone MAW fundraiser. All month you can go to your local Coldstone and donate a dollar to MAW. On September 30th you will get a 3oz free sample of Kates(I believe that's her name) creation. All they ask is a small donation, but don't have too, but how can you not. Korissa and Kylee will represent our local Coldstone that night. This is our 3rd year doing it. The kids love doing it.

http://www.coldstonecreamery.com/promos/makeawish/index.html

 

[kiwigirl]

I'm so happy we're here. Thank the heavens for Make-a-Wish!

This is what I posted on the planning board. I can't add links so here's what I posted:

----------------------
Xander - Wish Trip - Wish Granted - Dates TBD

Wooohooo! Xander has been granted a Wish!! We haven't commited to any specific location yet but we will soon and we would like it to be GKTW/Disney. From what I have heard from other wish families, this vacation is ALL about the kids. That is what I want for him. His life has been full of pain and sadness and it's time for some fun!

While we haven't nailed down the dates, I am excited to start planning for our trip. Are there sample itineraries around? I don't know how to go about figuring out where to go and what to do every day. There is so much and I know it isn't all geared toward my sons' age groups. Where can I go to find out age appropriate rides, shows, events, etc...?

Thanks in advance!
Blair




About Xander
Shortly after birth, Xander was diagnosed with the life threatening liver disease, Biliary Atresia. At 7wks old, he had surgery to try and save his native liver. Unfortunately, the surgery failed. Since the surgery was unsucessful, his only chance for survival would ultimately be a liver transplant.

Following Xander's surgery, he deteriorated pretty quickly. He was placed on the transplant waiting list at nine months of age. He was at end-stage liver disease. The day after he was listed, he was admitted to the Johns Hopkins hospital due to complications of liver disease. He remained there until 'the call' came.

Thanks to a most caring family, Xander recieved his gift of life at ten months old. His donor was a 16yr old boy. We thank God every day for Xander's angel donor and pray for his family. Their son gave our son the most beautiful gift one person can give to another. Life. We are forever grateful.

Since transplant, Xander has been in and out of the hospital but for the most part he and his new liver are getting along famously. He is full of energy and I believe he understands how great life is. He enjoys every single second and makes the most out of each day. He has taught us what is important in life. We are so very blessed he chose us to be his Mommy, his Daddy and his brother. We wouldn't want it any other way. ♥

---------------------

Hi Blair

My daughter Lara had BA too and received her gift of life in 2007 age 7 months! We struggled with biliary issues right up until Dec last year so can understand your struggles too. She is now a bouncy lively nearly 4 year old (next week!). Your MAW trip sounds wonderful, I can't wait to hear all about it and your precious boy.

 

[Bearshouse]

Day 6 edited and illustrated, Day 7 posted.

We're home and happy to be in our own beds, but we fought back tears when leaving GKTW this morning. And not because I dropped the car seat on my toe.

LOVED your posts this week. Glad you are home safe and sound.

Bearshouse

 

[LindaBabe]

Jbrnhrt and jen-y and Haybugsmom (and any other wish mom's who's names I haven't got) - pm me your kids names, trip dates and snail addy's and I'll send them "I was so glad to meet you" post cards from Mickey! (Or looking forward to meeting you cards) (We're at the world 9/24 - 10/1)

jbrnhrt = if you see this please pm! I'd hate for your kids to miss out on the cards

Any other wish parents want cards for their kids, please pm. I will print labels on Tuesday morning - we'll be on the road a week before we arrive at the world, and I won't have a printer.

 

[kdzbear]

jbrnhrt = if you see this please pm! I'd hate for your kids to miss out on the cards

Any other wish parents want cards for their kids, please pm. I will print labels on Tuesday morning - we'll be on the road a week before we arrive at the world, and I won't have a printer.

I do not need a postcard, but I just wanted to let you know that my two friends and I will be staying at All Star Sports and enjoying Disney the same time as you. If anyone misses the Tuesday deadline, I would be happy to send postcards too! Just let me know!

 

[planningcrazymom]

I was wondering if someone here can tell me how to get my grandaughter, Madison's pre trip report on the " We are going and planning" list at the beginning of this thread?