Make a Wish (and other organizations) - Wish Trippers UNITE! Volume THREE! :)

[Happy Dreams1]

Juliana is doing well. We are all getting excited for Wednesday... only 5 more days!!!!!

Perfect! Getting excited with ya!

 

[4monkeys]

Feel like I have missed some posts!! Sorry if I did!!

Haylee's daddy made it home safely from Kuait yesterday just in time for Turkey Day!! As if that is not enough to be thankful for!!! We will have hime here for 2 weeks then he goes back.
But I am so thankful for having found this board and for our very special trip!!I have made new friends and feel like I am stil on an adventure every time I jump onto the board!!!
Haylee's having a bad seizure day today but I am thankful right now that the valuume has pulled her out of it and she is resting on the couch with her big sister!!!
Love to all of you today!!

So glad he made it home. Sorry Haylee had a bad time with seizures!! Hope the rest of his time home is uneventful!!!

Picture of the beautiful quilt Kylee got from hospital.

BEAUTIFUL!!!

Well we finally got our new dates! We decided to go with the busy Easter season, and will fly to Florida on April 18th ( my DD's 5th birthday) and fly home April 24th, (Easter and my DH's birthday!) We are loaded with April birthdays....my oldest son's is April 16 so we'll be doing a lot of celebrating in Florida.
I haven't been on too much because about two weks after the transplant, I overdid myself and got sick from anemia. But now I'm on the up and hopefully I can keep up with my wish kid Kaleb... he's done so well with this transplant, it's hard to believe he had a major surgery last month.... Children are resilient even in the face of tons of meds, blood draws and tubes, I am thankful to God for His care. I look forward to posting more and following your PTR's and TR's.....
Oh and I did gt a CRT adr, so that'll be fun.
I was trying to decide whtether or not to create a new PTR but I think I'll keep the old...I posted this entry on it too. Hopeflly I can get more creative with it....

Thank you Friends!
Brooke

Glad you got dates! Hope both of you continue on the right track!!

Thanksgiving is almost here everyone! Time to give thanks for EVERYTHING!

VERY THANKFUL!! Hope everyone had a blessed day!!

Hey guys! I know I haven't been on much lately, but could you all keep a family friend in your prayers? They just found out their son has cancer today. Hopefully it is only in his knee- they go for a scan tomorrow morning. He had been having problems with his knee for 2 years and they just now figured out why. He is 11 years old and I don't think they have told him yet, as they don't know the extent of it yet. Please pray for him and his family. I knew this was the place to go, as you all understand how it is to have a sick kiddo. Thanks.

Prayers coming their way!!

We got back late Sunday night from our wonderful trip. I'll start working on our trip report this weekend! We had a great time!

Glad you had a good time, can't wait to read all about it!! Hoping to get some ideas for our trip!

Is a little frustrated tonight. Now that we have our dates feb 24-march 2, I am now in panic mode over planning. I haven't been to WDW since I was 5 and hubby has never been. His thinking is lets just get there and we will decide from then. Well I am thinking that he thinks it's like going to Busch Gardens. Ummm NOT. Just venting a little.

I feel for you with the panic, we are 2 weeks out... and barely have anything planned!! You have time!!

We are home!! Another long 6 days admission. I can't wait until they open the new hospital in July 2011. All rooms will be private. It'll make stays easier. I have a lot to catch up on. We came home with more meds, so hopefully we can controls this constipation(puesido(sp) Obstruction). Thank you for all the thoughts and prayers.

Glad she is home. Hope she is doing well with her new meds.

A couple of weeks ago I made my first fleece blanket for a birthday gift. I also made Kylee one to take to the hospital(which we did at this last admission). Kylee loved it. All these big give inspired me to do something crafty. I'm going to make the other kids ones for christmas gifts.

Looks so comfy. Would love to know how to make them!!

Poor Abby is still not feeling good. Vomiting and diarreah, which all that strain from vomiting is now putting her in severe back pain from all her fractures in her vertebra I can't give her ibuprophen or even her loritab or roxicet because of her upset tummy. She is in my bed sleeping laying on the heating pad and hopefully that will help some. Hope everyone has a happy Thanksgiving.

Get better soon Abby

 

[kailatilear]

Well Abby is feeling better, however, I am so sick. Started vomiting at 10pm last night, at 1am I woke up still vomiting and thought I was having a heart attack. Up at the ER from 1:30 to 6am. After an EKG, x-rays, ct scan, 2 rounds of morphine, nasuea medicine, IV bag, GI cocktail. I was diagnosed with the Stomach flu, and a broken rib from thowing up so hard.

 

[4monkeys]

Well Abby is feeling better, however, I am so sick. Started vomiting at 10pm last night, at 1am I woke up still vomiting and thought I was having a heart attack. Up at the ER from 1:30 to 6am. After an EKG, x-rays, ct scan, 2 rounds of morphine, nasuea medicine, IV bag, GI cocktail. I was diagnosed with the Stomach flu, and a broken rib from thowing up so hard.

That's terrible!! My husband had all the same done a few weeks/month ago. Not from vomitting, but chest pressure and shortness of breath. Not fun!! Hope you get some relief soon!

 

[Happy Dreams1]

Well Abby is feeling better, however, I am so sick. Started vomiting at 10pm last night, at 1am I woke up still vomiting and thought I was having a heart attack. Up at the ER from 1:30 to 6am. After an EKG, x-rays, ct scan, 2 rounds of morphine, nasuea medicine, IV bag, GI cocktail. I was diagnosed with the Stomach flu, and a broken rib from thowing up so hard.

I can't believe what I just read! A broken rib from throwing up?! Im soo sorry. That must have hurt a lot for you to get administered morphine! I guess that's why you thought you were having a heart attack-similar symptoms. Please get better soon!
I just hate hospitals and I.V.'s.

 

[kailatilear]

Thank you everyone, I am now feeling better. However, I am still very sore, but feeling better overall. I am very thankful that Abby had it mild compared to myself. With her bones, she could have really fractured quite a bit, so I am very thankful for that.

 

[Happy Dreams1]

Thank you everyone, I am now feeling better. However, I am still very sore, but feeling better overall. I am very thankful that Abby had it mild compared to myself. With her bones, she could have really fractured quite a bit, so I am very thankful for that.

aaww you'e welcome. Im glad you're feeling better, although not entirely quite yet, you'll get there. Yes, I can't even imagine what it would have been like if it were Abby. Get well!

 

[brookerene]

Hi Friends, TIngs are going well with Kaleb and his transplant. The only problems we are facing are water retention and low magnesium. It seems that nothing is working on that one. I hope that We'll get it corrected. I wanted to share some Christmas pictures that I took of the kids and a photo of our whole family.

Here is our wish kid Kaleb.....

Here is our oldest...Nathan..

Here is our youngest Zoe....

Here they all are...barely!

And here is our whole famly a couple days before the transplant!

Also, I made reservations for CRT at 8:20 am... the park opens at 8 that day... does anyone know if 20 min is enough to get there or would they let us in a little early?

I hope everyone had a great Thanksgiving!Take care and God Bless.

 

[xanphylus]

Hey guys. Just an update on my family friend, who is still in the diagnosis stage, but he has officially been referred to an oncologist and they don't think it looks too good. He has some sort of a sarcoma cancer and they are sure it has spread over his body. Please keep this kiddo in your prayers!!

I am not going to mention any names, as I referred them to the disboards to read over the wish info & hopefully he will get his wish- guess where too? I spoke to his daddy today and he seemed very interested. He had never even heard of make a wish before. I told him to talk to his oncologist, but hopefully it will make his son's day.

 

[Happy Dreams1]

Hey guys. Just an update on my family friend, who is still in the diagnosis stage, but he has officially been referred to an oncologist and they don't think it looks too good. He has some sort of a sarcoma cancer and they are sure it has spread over his body. Please keep this kiddo in your prayers!!

I am not going to mention any names, as I referred them to the disboards to read over the wish info & hopefully he will get his wish- guess where too? I spoke to his daddy today and he seemed very interested. He had never even heard of make a wish before. I told him to talk to his oncologist, but hopefully it will make his son's day.

It has metastasized?! I'm praying for him and his family1! I'm sure we all are! It think it spread because, as you mentiones before, he has had trouble with that knee for over a year now(was it two years?), and that gave it time. But Im glad they go it now and off to treatment! When he gets better, I hope MAW makes his wish come true.
Prayers!

 

[kailatilear]

Well my family is still sick. Kaila woke up this morning throwing up, Tilear came home from school sick and so did Abby, I am still very sore, I have never felt like this before from a stomach bug, but it is horrible.

On a positive note, I heard from MAW today. Dates of definite, they are making flight arrangements now. I had the choice of 2 non-stop flights, the first leaving Richmond at 7am and getting to FL at 9:15, and coming home leaving FL at 9:00 pm and arriving in Richmond at 10:26. I chose that one, the other one was leaving later to go and this one just worked better. I will know definitely tomorrow.

I do have a couple of questions though. They made reservations at Chef Mickey for Abby and myself, but not for Steve and the 2 other kids. I want them to be part of this experience and I understand that we do have to pay for them, however, how do I get them added to our reservation?

The other question is, how do I edit in my thread link to include Abby's dates, so it can be moved from waiting on dates, to have dates?

Thanks for everyones prayers on our family getting better, hopefully we all start feeling better soon, or at least hopefully by the weekend.

 

[kailatilear]

Flight information is now definite. We got our first choice of leaving Richmond @ 7am and arriving in Orlando @ 9:15 am, coming home, flight leaves Orlando @ 9pm and arrives in Richmond @ 10:46 pm. Which gives us a full day that final day.

 

[kailatilear]

I also forgot, I want to thank smileycrissy for Abby's postcard . She received it last Wednesday, but in the midst of everyone being sick, I forgot to post it on here. Abby was thrilled . She loves getting mail. She has asked for a box of her own mail for the past 2 Christmas's and has never received it, so she was so excited to have mail of her own and a disney postcard at that. Thank you so much!!!

 

[Mom2mitokids]

My oldest isn't going with us She doesn't want to miss collage and have to make up homework. In a way I'm proud of her to choose school over a trip, but I have never been away from her that long. Not going to be the same without her. On another note...Korissa's friend now gets to go with us. They first said no because the Villa only hold 7 people. Now that Kerri isn't going we will have space. She still has to pay for everything though. She can eat at GKTW, so that's good. Her parents are discussing it, but it looks like she can come. Now we need to find theme park tickets cheap. Anyone know how? lol. We need 3 day hopper passes to DW, 2 day hopper passes to US/IOA, and 1 day Sea World.

 

[kailatilear]

My oldest isn't going with us She doesn't want to miss collage and have to make up homework. In a way I'm proud of her to choose school over a trip, but I have never been away from her that long. Not going to be the same without her. On another note...Korissa's friend now gets to go with us. They first said no because the Villa only hold 7 people. Now that Kerri isn't going we will have space. She still has to pay for everything though. She can eat at GKTW, so that's good. Her parents are discussing it, but it looks like she can come. Now we need to find theme park tickets cheap. Anyone know how? lol. We need 3 day hopper passes to DW, 2 day hopper passes to US/IOA, and 1 day Sea World.

It says alot for you oldest to choose school over the trip. I can imagine you are sad though and I am sorry that she isn't going. I really hope that Korissa's friend will be able to go. Try mousesavers.com, you might find something there.

 

[4monkeys]

We are less than 2 weeks from our trivp, and have not heard from our "Send off Party" volunteers. Should I contact our Wish Coordinator, or wait a few more days??

 

[wishin' on a star]

We are less than 2 weeks from our trivp, and have not heard from our "Send off Party" volunteers. Should I contact our Wish Coordinator, or wait a few more days??

You could certainly call and ask them when you will get your final packet, expense check, etc. I don't think that's an unreasonable request. I know they usually wait until the last week or two before your trip. Send off parties vary from chapter to chapter...did they tell you what to expect?

 

[4monkeys]

WOO HOO!!! Two packages came in the mail today!!! I can't wait until Alli and Jake get home from school. Unfortunately, Jake gets home 2.5 hours afte Alli because of football practice! UGH!



Will post later after they are open!

 

[4monkeys]

You could certainly call and ask them when you will get your final packet, expense check, etc. I don't think that's an unreasonable request. I know they usually wait until the last week or two before your trip. Send off parties vary from chapter to chapter...did they tell you what to expect?

Thanks, I think I will email them later this evening if I don't hear from them!

 

[kimmg]

I'm a new poster at DIS boards but have lurked a lot over the years. I was working my way through this monster thread but was wondering if anyone could give me some insight?

This past year and a half has been really rough- DH lost his job, we lost our house, we had a 5 day NICU stay with my DD and then DS got diagnosed with cancer. He just finished his last chemo earlier this week and we decided to go ahead and start working on his wish. Just for background purposes we live in CA and our DS is on Medi-Cal(CA's Medicaid) and he qualified for CCS which is supplemental insurance for certain conditions when your medical bills are more than a % of your income. We wanted to do WDW since we live in SoCAL and have been to DL many times but she said since we are on Medi-Cal that isn't an option with MAW since they had problems in the past with Medi-Cal not covering in FL if an emergency arises. We were so disappointed but decided to go to DL instead.

She said the DL trip consisted of 3 days to Disney/ 2 nights in a DL resort hotel with a limo ride or transportation reimbursement and $50 a day for food. While we are so happy to have the opportunity for a wish trip, this doesn't seem to be in line with the stories I'm reading. Has anyone had any experience or possibly have some words of advice? We really wanted to go to WDW but maybe that's not possible?

ETA: We haven't actually spoke to anyone from MAW yet, this is coming from our social worker.