Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[jj0plin]

Does anyone here know if you can rent stroller-wheelchairs near WDW? I put a thread in the main disAbilities forum with a pic of what we are looking for (hopefully!)

http://www.disboards.com/showthread.php?p=40430368#post40430368

Our chapter asked if we would a stroller and ordered us a double one, to be ready in our room when we arrive. You may want to check with them first.

 

[angeque143]

Our chapter asked if we would a stroller and ordered us a double one, to be ready in our room when we arrive. You may want to check with them first.

For us too!!! They are also making sure her pediasure if there so I dont have to lug another several pounds!!!

 

[angeque143]

Can anyone recommend a good ID bracelet...Just in case!

 

[angeque143]

about disney. Kaitlyn had her 9month old check up today..They want to send her to allergist/immunologist dr. Haves anybody took their kid to one? They want to allergy testing on her. Haves anybody kids had allergy testing? if yes, what do they do?Right now, we can't give her strawberries and she can't wear bandaid. Her dr. changed her formula again today. They think she has a milk allergy too. She had a VERY VERY bad reaction to bandaids. They think it could been the adhesive. Any info will help!!

My daughter had it....it was done with a simple blood test. I think we got results in 2 weeks. Hope it goes well for you and you get answers!!!

 

[maroo]

Does anyone here know if you can rent stroller-wheelchairs near WDW? I put a thread in the main disAbilities forum with a pic of what we are looking for (hopefully!)

http://www.disboards.com/showthread.php?p=40430368#post40430368

I saw you got a thread link. We used Care Medical on this last trip for a showering system for Lauren (she can't sit up and we didn't have room in the van for hers she uses at home) and they were great! It was ready for us when we arrived at the resort and we just dropped it off at the bell desk on the way out.

I think MAW will rent these type of things for you, though - so make sure you ask them about that, too.

You deserve it!

thanks!

 

[mom2pixies]

Has anyone heard of these special Guest of Honour badges you can purchase and have your name engraved on? Apparently they look like CM badges, but are red. I thought that might be a special treat for the girls (well, B since A is too young to understand!)--but I can't seem to find out where they are sold. Someone said you can buy them at the Parks or online and have them either delivered at home or to your resort. The online place suggested (http://www.giftsofalifetime.com/shopping.html) doesn't even mention them. Just curious!

 

[Perrinsmommy]

Can anyone recommend a good ID bracelet...Just in case!

I'm ordering temp tattoos from http://www.safetytat.com/ for our trip since I have 3 little ones that don't like id bracelets!!

 

[mom2pixies]

I'm ordering temp tattoos from http://www.safetytat.com/ for our trip since I have 3 little ones that don't like id bracelets!!

That's a fantastic idea! Love that. Borrowing that!

Thanks for the link.....

 

[Perrinsmommy]

That's a fantastic idea! Love that. Borrowing that!

Thanks for the link.....

No problem! the "new" safety tats have a way to write on the number and last for up to 2 weeks.

 

[brookerene]

Those tattoos are an interesting idea.....

 

[jj0plin]

Can't multiquote from my phone but wanted to say that Addison had allergy testing done last year at 4 years old and she only had 40 pricks in her back. She now gets 2 shots a week, plus takes Singulair and Zyrtec daily. The shots really help (without them her nose is a constant faucet!).


Also, regarding the ID tattoos... I checked them out on Amazon and they didn't have the greatest reviews, might want to read more here http://www.amazon.com/SafetyTat-Chi...UIXS/ref=sr_1_1?ie=UTF8&qid=1300899113&sr=8-1

 

[wbh1964]

Can some of you share how long it took you to hear back from MAW once you did your initial referral for your child? It has been a little over a week since I did the online referral and we have not heard from anyone...just wondering how long b4 their initial contact?
Thanks so much!
Wendy

 

[angeque143]

Has anyone heard of these special Guest of Honour badges you can purchase and have your name engraved on? Apparently they look like CM badges, but are red. I thought that might be a special treat for the girls (well, B since A is too young to understand!)--but I can't seem to find out where they are sold. Someone said you can buy them at the Parks or online and have them either delivered at home or to your resort. The online place suggested (http://www.giftsofalifetime.com/shopping.html) doesn't even mention them. Just curious!

I think you can get them from Guest Services.....but not 100% sure on that!!

 

[angeque143]

Can some of you share how long it took you to hear back from MAW once you did your initial referral for your child? It has been a little over a week since I did the online referral and we have not heard from anyone...just wondering how long b4 their initial contact?
Thanks so much!
Wendy

It took us a few months. You could try calling and just see "if they got the referral" Sending good vibes your way!!

 

[mommy2girlswv]

Can't multiquote from my phone but wanted to say that Addison had allergy testing done last year at 4 years old and she only had 40 pricks in her back. She now gets 2 shots a week, plus takes Singulair and Zyrtec daily. The shots really help (without them her nose is a constant faucet!).


Also, regarding the ID tattoos... I checked them out on Amazon and they didn't have the greatest reviews, might want to read more here http://www.amazon.com/SafetyTat-Chi...UIXS/ref=sr_1_1?ie=UTF8&qid=1300899113&sr=8-1

We go on Friday for testing.. I hope it's only 40, but it still going to be hard on her. My dh is off that day and he going to help me. I hate to see any child in pain and it starting to look like both of my girls are daddy's girls too.

 

[mommy2girlswv]

Can some of you share how long it took you to hear back from MAW once you did your initial referral for your child? It has been a little over a week since I did the online referral and we have not heard from anyone...just wondering how long b4 their initial contact?
Thanks so much!
Wendy

I want to say took little over a month, but don't remember. I received the letter on Sept 2, 2010 and her referral was around july..I think.. They called first to ask for more info.

 

[jj0plin]

We go on Friday for testing.. I hope it's only 40, but it still going to be hard on her. My dh is off that day and he going to help me. I hate to see any child in pain and it starting to look like both of my girls are daddy's girls too.

It was awful... not going to lie. I had to sit on the table and hold her up against me, her back facing out. I had to wrap my arms around hers and hold her tight while she screamed and yelled... she even told the nurse she hated her and to get her hands off of her! (Addie does tend to be an extreme drama queen though ) I had to do it alone, I am sure it will much easier with your husband there. Good luck!

 

[mom2pixies]

I want to say took little over a month, but don't remember. I received the letter on Sept 2, 2010 and her referral was around july..I think.. They called first to ask for more info.

It was pretty quick for us from online to phone call--same day. I referred that morning and by afternoon, received a phone call. Then they sent us a form package that probably arrived two weeks later and it's been nearly a month since we've returned it. But we haven't heard anything since.

I think approval times vary from chapter to chapter--either that or case by case? Perhaps they have a priority system for cases of wish children who urgently need their wish filled sooner rather than later due to date conflicts (such as families with elder children going away to university or college or parents being deployed overseas, etc.) or declining state of illness, etc?

 

[mommy2girlswv]

It was awful... not going to lie. I had to sit on the table and hold her up against me, her back facing out. I had to wrap my arms around hers and hold her tight while she screamed and yelled... she even told the nurse she hated her and to get her hands off of her! (Addie does tend to be an extreme drama queen though ) I had to do it alone, I am sure it will much easier with your husband there. Good luck!

It makes me sick that I can't help them. January last surgery was the worst for me. Right after the surgery she was trying to fight the meds off and it took four drs to hold her down. They said, I don't know how she doing this she still asleep from the surgery and she not in pain. But I had to leave the room and I had panic attack. January is drama queen too.. She would tell the hospital housekeeping to get out of her room because she believed they were going to touch her. If i had to go through what our kids have too, i would be one too.

 

[jj0plin]

My kids are addicted to their pillowpets and always need them to sleep... I wasn't real crazy about carrying them on the plane but then I saw mini ones at Kroger today that should be perfect!!

Elliot picked out this one

and he got this one for Addison

they are only 11 inches, perfect for them to carry or might even fit in their Make A Wish Backpacks!