Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[kailatilear]

Just got back from Abby's ortho dr. He saw alot more compression fractures in her back since the last time he xrayd her spine On the upside, he is finally sending her to an endocronologist (sp?) because he wants to be able to calculate the right dosage for a new (well not so new, but new to this area) ongoing treatment for OI patients. It will be an IV for 2 days (I think) every few months. This will help strengthen her bones and relieve her bone pain, we are hoping for. It has helped many other OI patients, so we are hoping it helps Abby.

He also put her in a back brace to help her back!

 

[casper_jj11]

Hi Kristy! Glad to see you found everyone!

 

[brookerene]

Hello!! Is this where I start? lol

I'm new to the boards, and I thought I would finally post a hello. I'm Kristy. Its been a little difficult navigating around, but I think I have things figured out a bit. We just found out this week, that our little miracle, our daughter was being granted a wish through The Children's Wish Foundation of Canada. It was a complete, and utter shock as we didn't even know she was being nominated as a wish recipient. One of the Child Life Workers at our hospital, nominated her. Shes been a fighter since she was conceived, to this very day. Everyone who meets her is in awe of her strength and courage, despite everything she has been through and continues to go through.

We don't have our dates or anything like that, so I imagine its much too soon for a pre-trip post? We have of course, chosen Disney - our daughter who is a true Princess - and LOVES anything Princess - though Cinderella, Belle and Ariel are her faves. We haven't told her anything about this, so of course have picked for her, but we know this would be her top choice. She just Mickey's Rockin' Road Show last weekend and was in awe and just loved him. So Disney would be incredibly magical for her and her little brother, which is what she deserves. We are hoping for an early May trip - we were thinking maybe Easter, but another great poster from here, Joanne - casper_jj11, (also a fellow Canadian who has been amazing with some great advice and tips) suggested a non holiday time to focus on her (and her brother) and having a great time, without worrying about focusing on a holiday as well.

So ya, I guess thats it for now. I hope to get to know you and start posting more. From what I can see, this looks like a wonderful community, and i'm sure i'll learn so much from you all.

Glad to meet you and to the board... I look forward to hearing more of your story!

 

[kailatilear]

Hello!! Is this where I start? lol

I'm new to the boards, and I thought I would finally post a hello. I'm Kristy. Its been a little difficult navigating around, but I think I have things figured out a bit. We just found out this week, that our little miracle, our daughter was being granted a wish through The Children's Wish Foundation of Canada. It was a complete, and utter shock as we didn't even know she was being nominated as a wish recipient. One of the Child Life Workers at our hospital, nominated her. Shes been a fighter since she was conceived, to this very day. Everyone who meets her is in awe of her strength and courage, despite everything she has been through and continues to go through.

We don't have our dates or anything like that, so I imagine its much too soon for a pre-trip post? We have of course, chosen Disney - our daughter who is a true Princess - and LOVES anything Princess - though Cinderella, Belle and Ariel are her faves. We haven't told her anything about this, so of course have picked for her, but we know this would be her top choice. She just Mickey's Rockin' Road Show last weekend and was in awe and just loved him. So Disney would be incredibly magical for her and her little brother, which is what she deserves. We are hoping for an early May trip - we were thinking maybe Easter, but another great poster from here, Joanne - casper_jj11, (also a fellow Canadian who has been amazing with some great advice and tips) suggested a non holiday time to focus on her (and her brother) and having a great time, without worrying about focusing on a holiday as well.

So ya, I guess thats it for now. I hope to get to know you and start posting more. From what I can see, this looks like a wonderful community, and i'm sure i'll learn so much from you all.

So glad your little one is getting a wish Welcome to the boards, you will learn so much information here and make some wonderful friends along your journey.

 

[Glo's wish]

Hi everyone! Sorry I disappeared for a few months. It was getting too hard to hear of all the wonderful things that Disney had to offer and the unknown of when we could go. After being told that we could NOT go for Glo's birthday because there wasn't enough time and everything was booked up I was planning on not going until the fall. After telling Glo the last 2 months that we wouldn't go until next school year I received a call an hour ago saying we CAN go!!! We fly out Feb. 27th (!!!!!) and Glo gets to get "done up" and have lunch with Cinderella on her birthday March 1st!!!
Yikes!!! Where do I begin??!!!!

 

[casper_jj11]

Hi everyone! Sorry I disappeared for a few months. It was getting too hard to hear of all the wonderful things that Disney had to offer and the unknown of when we could go. After being told that we could NOT go for Glo's birthday because there wasn't enough time and everything was booked up I was planning on not going until the fall. After telling Glo the last 2 months that we wouldn't go until next school year I received a call an hour ago saying we CAN go!!! We fly out Feb. 27th (!!!!!) and Glo gets to get "done up" and have lunch with Cinderella on her birthday March 1st!!!
Yikes!!! Where do I begin??!!!!

Woo hoo! Wow, that's soon! She's going to have a wonderful trip!

 

[wishin' on a star]

Hi everyone! Sorry I disappeared for a few months. It was getting too hard to hear of all the wonderful things that Disney had to offer and the unknown of when we could go. After being told that we could NOT go for Glo's birthday because there wasn't enough time and everything was booked up I was planning on not going until the fall. After telling Glo the last 2 months that we wouldn't go until next school year I received a call an hour ago saying we CAN go!!! We fly out Feb. 27th (!!!!!) and Glo gets to get "done up" and have lunch with Cinderella on her birthday March 1st!!!
Yikes!!! Where do I begin??!!!!

Jeanie!! How exciting! I'm so glad that you will be there for Glo's birthday...and BBB and lunch with Cinderella? This is coming up quickly...do you have anything else planned?

 

[twinmum]

Hello!! Is this where I start? lol

I'm new to the boards, and I thought I would finally post a hello. I'm Kristy. Its been a little difficult navigating around, but I think I have things figured out a bit. We just found out this week, that our little miracle, our daughter was being granted a wish through The Children's Wish Foundation of Canada. It was a complete, and utter shock as we didn't even know she was being nominated as a wish recipient. One of the Child Life Workers at our hospital, nominated her. Shes been a fighter since she was conceived, to this very day. Everyone who meets her is in awe of her strength and courage, despite everything she has been through and continues to go through.

We don't have our dates or anything like that, so I imagine its much too soon for a pre-trip post? We have of course, chosen Disney - our daughter who is a true Princess - and LOVES anything Princess - though Cinderella, Belle and Ariel are her faves. We haven't told her anything about this, so of course have picked for her, but we know this would be her top choice. She just Mickey's Rockin' Road Show last weekend and was in awe and just loved him. So Disney would be incredibly magical for her and her little brother, which is what she deserves. We are hoping for an early May trip - we were thinking maybe Easter, but another great poster from here, Joanne - casper_jj11, (also a fellow Canadian who has been amazing with some great advice and tips) suggested a non holiday time to focus on her (and her brother) and having a great time, without worrying about focusing on a holiday as well.

So ya, I guess thats it for now. I hope to get to know you and start posting more. From what I can see, this looks like a wonderful community, and i'm sure i'll learn so much from you all.

Welcome to the Wish Trippers thread from another fellow Canadian Wish family! Our son's trip was in November 2008 with Starlight Starbright. We have so many magical memories. We're from Toronto - how about you?

Looking forward to hear more about your daughter, the rest of the family, and your trip!

 

[kailatilear]

Hi everyone! Sorry I disappeared for a few months. It was getting too hard to hear of all the wonderful things that Disney had to offer and the unknown of when we could go. After being told that we could NOT go for Glo's birthday because there wasn't enough time and everything was booked up I was planning on not going until the fall. After telling Glo the last 2 months that we wouldn't go until next school year I received a call an hour ago saying we CAN go!!! We fly out Feb. 27th (!!!!!) and Glo gets to get "done up" and have lunch with Cinderella on her birthday March 1st!!!
Yikes!!! Where do I begin??!!!!

That is awsome news!!! You will be there when we are. We go Feb 24-March 2nd, so maybe we will see you there!!!!!

 

[Loodlow]

Hi everyone! Sorry I disappeared for a few months. It was getting too hard to hear of all the wonderful things that Disney had to offer and the unknown of when we could go. After being told that we could NOT go for Glo's birthday because there wasn't enough time and everything was booked up I was planning on not going until the fall. After telling Glo the last 2 months that we wouldn't go until next school year I received a call an hour ago saying we CAN go!!! We fly out Feb. 27th (!!!!!) and Glo gets to get "done up" and have lunch with Cinderella on her birthday March 1st!!!
Yikes!!! Where do I begin??!!!!

 

[Mom2Miracles]

Thanks for the warm welcome ladies!!!

I started my pre-trip report http://www.disboards.com/showthread.php?p=39722742#post39722742 as I spoke to our wish co-ordinator today and she said our possible dates of end of April/Beg. of May are quite possible. So I figure now that things are in progress, it was time to get started.

Twinmum - we are in Ontario too. I'm going to read up on your trip report, i'm glad you guys had an amazing time.

 

[twinmum]

Thanks for the warm welcome ladies!!!

I started my pre-trip report http://www.disboards.com/showthread.php?p=39722742#post39722742 as I spoke to our wish co-ordinator today and she said our possible dates of end of April/Beg. of May are quite possible. So I figure now that things are in progress, it was time to get started.

Twinmum - we are in Ontario too. I'm going to read up on your trip report, i'm glad you guys had an amazing time.

Ah...ahem...oops...you know how you've read about families who return from a magical trip report and just never manage to write that TR...? Well...that would be us. We left on our trip from our about-to-be-renovated house (seriously, someone else moved us!) and returned to our reno-rental, with our own house under considerable demolition. We were making the hosue more accessible for our son, who has cerebral palsy. Add on my mother's rapid onset of dementia...transitioning to new schools...well, eventually I had to give myself permission to let it go.

But we had a marvellous time!

 

[luvmygrlz3]

Just got back from Abby's ortho dr. He saw alot more compression fractures in her back since the last time he xrayd her spine On the upside, he is finally sending her to an endocronologist (sp?) because he wants to be able to calculate the right dosage for a new (well not so new, but new to this area) ongoing treatment for OI patients. It will be an IV for 2 days (I think) every few months. This will help strengthen her bones and relieve her bone pain, we are hoping for. It has helped many other OI patients, so we are hoping it helps Abby.

He also put her in a back brace to help her back!

Hopefully the back brace and the new IV meds will work so she can be as pain free as possible. Hugs and prayers continuing!

 

[luvmygrlz3]

Hi everyone! Sorry I disappeared for a few months. It was getting too hard to hear of all the wonderful things that Disney had to offer and the unknown of when we could go. After being told that we could NOT go for Glo's birthday because there wasn't enough time and everything was booked up I was planning on not going until the fall. After telling Glo the last 2 months that we wouldn't go until next school year I received a call an hour ago saying we CAN go!!! We fly out Feb. 27th (!!!!!) and Glo gets to get "done up" and have lunch with Cinderella on her birthday March 1st!!!
Yikes!!! Where do I begin??!!!!

Welcome back!! So glad to hear you have dates and it's coming up so soon! We will be down there Mar. 3- Mar. 9! We may see ya'll around! Good luck and happy planning!!

 

[kailatilear]

Hopefully the back brace and the new IV meds will work so she can be as pain free as possible. Hugs and prayers continuing!

Thank you so much!!!

 

[Mom2Miracles]

Alright....so I need some help. Disney is all new to us, we've never been before. Well, I went when I was 8 or 9 and my husband went once as a child but we don't remember much. We need to see/do Princess stuff. We need to BBB for Peanut, no question. And we need to see Toy Story for Monkey. And Dr Seuss for both of them...speaking of Dr Seuss, anyone know where I can get Thing 1 and Thing 2 shirts for them? Hmmm... And character meals. I only want to do 1 or 2, preferably a princess one and then I think its called Chef Mickey? Anyways, what suggestions do you have?

twinmum - lol, life can and does totally get in the way. I hear you. Regardless, i'm glad you had a great time.

 

[newdrama12]

Alright....so I need some help. Disney is all new to us, we've never been before. Well, I went when I was 8 or 9 and my husband went once as a child but we don't remember much. We need to see/do Princess stuff. We need to BBB for Peanut, no question. And we need to see Toy Story for Monkey. And Dr Seuss for both of them...speaking of Dr Seuss, anyone know where I can get Thing 1 and Thing 2 shirts for them? Hmmm... And character meals. I only want to do 1 or 2, preferably a princess one and then I think its called Chef Mickey? Anyways, what suggestions do you have?

twinmum - lol, life can and does totally get in the way. I hear you. Regardless, i'm glad you had a great time.

The thing 1 and thing 2 shirts you can get at Universal. Chef Mickey is always fun. As for princess meals, you have Cinderella's royal table in the castle, Princess Storybook Dining at Akershus (Epcot), 1900 Park Fare at the Grand Floridian often get visits from a princess or two.

 

[Glo's wish]

Wow! Things are moving quickly!! I just received word that we have an appt set at Downtown Disney's BBB for 10:30 on Glo's Birthday (3/1) followed by Epcot’s Akershush Restaurant for Lunch with the Princesses at 1:25pm! Have any of you experienced either of these?? I'm just curious what to expect....

 

[syammt]

So I we finally got the ok to go home. Our flight is leaves tomorrow (if the snow stops) evening. We should be home around 7pm or so. All the test have come back normal which is good and bad. Good because they were all normal - bad because they can't figure out why she is having the low grade fevers. They changed some meds and her skin is looking so much better. Cough is still there, but that is something that she will just always have due to the asthma. They will keep a close eye on it though to make sure it doesn't go into pnuemonia. We have to get the swimming pass so she can swim 3-4 days a week to help with the skin stuff. She is loving that. Oh how am I going to fit everything in? Meds, creams, lotions, inhalers, treatments, doctors appointments, infusions and swimming. That doesn't include regular everyday stuff like eating, school, bathing, family time and sleeping. I will figure it all out though. I have to to keep her healthy and with us. Thank you all for the prayers.

 

[blessedmom4]

So I we finally got the ok to go home. Our flight is leaves tomorrow (if the snow stops) evening. We should be home around 7pm or so. All the test have come back normal which is good and bad. Good because they were all normal - bad because they can't figure out why she is having the low grade fevers. They changed some meds and her skin is looking so much better. Cough is still there, but that is something that she will just always have due to the asthma. They will keep a close eye on it though to make sure it doesn't go into pnuemonia. We have to get the swimming pass so she can swim 3-4 days a week to help with the skin stuff. She is loving that. Oh how am I going to fit everything in? Meds, creams, lotions, inhalers, treatments, doctors appointments, infusions and swimming. That doesn't include regular everyday stuff like eating, school, bathing, family time and sleeping. I will figure it all out though. I have to to keep her healthy and with us. Thank you all for the prayers.

Hugs for SUPERMOM'S who do everything...and do it with love, grace and a smile. I understand the good and bad of it all, I do hope they can eventually figure it all out, medical mysteries are the pits!

Praying for a safe flight, Thanks for keeping us updated!