Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[blessedmom4]

you are very welcome!


Personally...I would do MNSSHP over just about anything else - so much fun! And extra cool on a wish trip since you have the button that gets you to the characters quickly.

My thoughts exactly! Then the entire family can enjoy!

Which brings me to one of the questions I had, which I think you just answered...The Magic Button DOES speed you through the character lines at the party?!? THAT would be AWESOME!!!!

 

[blessedmom4]

Hi everyone!
I wanted to give a quick update on Haylee.
Today was a GREAT day!
She went off the vent (but Amber just came out and told me she's now back on because she's not awake enough .. off most of her extra meds.. and she has started to wake up. She is only moving her mouth. But thats something.
She also had her first trach change. It was not nearly as bad as I thought it would be. Now we have to learn to take care of it.

I will try to keep everyone as updated as I can.
Thanks for all the thoughts and prayers

Thoughts, Hugs and Prayers!!!

 

[blessedmom4]

I was told Miley Cirus(is that how to spell her name) is longer than 3 years and they aren't setting up wishes with her. We got to meet Adam Sandler at a MAW event. We even had pictures taken with him and they never said we couldn't post pictures. oh well...I did.

We were told the same thing about Miley Cyrus and I was RELIEVED when Lisa decided that was NOT her wish !

Maybe because it wasn't a Wish trip they didn't put any restrictions on photos? It would probably be hard to enforce that with so many people at the event taking photos? I am just speculating...

 

[blessedmom4]

These are the best 2 pictures that I got on my cell phone while we were there. Unfortunately, we had camera issues while on our trip. I have not downloaded pictures from the CD they gave us yet, but will post them once I do.

The first picture is the outside of the FLYING tower. They have a trailer type building next to it to register and what not. The second picture is of them in their suits ready to go. Suits provided by IFLY, and my son didn't have shoes on that would stay on....so they gave him a pair too.

Hope this helps!!

That looks like a LOT of fun! Thanks for sharing!

 

[Mom2mitokids]

We got some very big pixie dust last night. It has nothing to do with MAW or Disney(I guess it does), but if you remember Kylee did a photo story for the Starlight Foundation. We were told they wanted to spread awareness for the Foundation at their big Gala coming up in March. I wanted to do it for also the awareness of Mito too and having some professional photos would be nice. For 3 month we had a wonder lady come to different doctors appts, Kylees school, the beach, and she did her birthday. Anyways...In the mail last night we got something from Starlight. I thought maybe it was some photos...nope it was 2 credit cards. One was for $500 and the other was for $250. We got $750 for doing this photo story. They said nothing about getting paid. Just the photos she took. This money now will pay for our hotel and car rental after our stay at GKTW. We really didn't know how we were going to pay to stay extra, but know we wouldn't get to Florida again and we want to see the beach and go to Busch Gardens. Now with the spending cash we can have fun and not worry about money...will to a point. Still need to eat for 10 days. We will be eating at GKTW every morning.

BTW...if you didn't see a small portion of the story..here's the link. Just go to annual report. Kylee's story is the 3rd one(page 7). Her pictures though are through out.
http://www.starlight.org/2010annualreport/

 

[blessedmom4]

Not sure if it will help....but allison is 12 and we gave her the option of BBB and she didn't want to do it. She did like the idea of her nails being done at GKTW, but we never got to do that. We had enough to do what Alli wanted. That was a family of 6. Have fun planning! You can always make reservations and cancel if you change your mind... I think

That DOES help, Thank you!

While I think Rachel would enjoy BBB, I don't think it would be mandatory...although if Little Sis was doing it, she would WANT to do it but tell me "It is okay, let Lisa do it "...she is so stoic, that is another reason I want to make sure SHE (and my guys as well) have a great time on the trip ...they have ALL been through so much and deserve this trip as well. I know you all understand that feeling! So we will save for the MNSSHP...should be a blast, if I can swing it .

 

[casper_jj11]

We booked 2 rooms at pop century today to extend our trip 5 days.
We were told we would get tickets for Disney,universal and sea world so I think we will do universal and sea world while at give kids the world and then do the disney parks on the other days.
i asked about discovery cove and the medieval dinner show to our wish granters and they are supposed to let me know if they are possible by the end of the week.
Has anyone done bushgardens while on a wish trip.I think my boys would really love all the roller coasters.

We extended our trip as well. We went to Guest Services at MK on our last day for the wish trip and asked about extending Sydney's Wish Trip GAC that she received from GKTW. I didn't want to use an expired GAC if it wasn't permitted. They couldn't extend the GKTW Gac as they didn't have the green stamp but did provide her with the most extensive GAC they had and told us to continue to wear her GKTW button. We never had a problem although we did flash the button along with the GAC for most things at that point as the Wish GAC is green and really stands out so the CMs recognize it immediately.

 

[Mom2mitokids]

We have our flight info finally. We leave at 10:34am and land at 6:06pm. If we are lucky..we maybe able to go to the 7:30 orientation. If not..we will go to the 9am one the next day.
We depart on the 23rd at 6:15pm from Orlando and land at 8:46pm at LAX. oh...we are flying on Delta. Has anyone flown on Delta? Are they great with SN kids? Do you have to pay for luggage?

 

[blessedmom4]

We have our flight info finally. We leave at 10:34am and land at 6:06pm. If we are lucky..we maybe able to go to the 7:30 orientation. If not..we will go to the 9am one the next day.
We depart on the 23rd at 6:15pm from Orlando and land at 8:46pm at LAX. oh...we are flying on Delta. Has anyone flown on Delta? Are they great with SN kids? Do you have to pay for luggage?

I don't have any words of Wisdom; however, for flight times!!!

 

[casper_jj11]

We are extending our trip by 4 days too. Just a FYI...I would do the Disney parks first. Some CM check your passes(GAC..special button) and they have dates on it. Universal and IOA didn't check the last time we were there and they are super great with wish kids and if they did check..I don't think they would say a thing. . We are doing all the Disney parks/Sea World first and then doing the other parks. We also want to go to Busch Gardens. I believe GKTW gives you some tickets if you ask. I believe they need 24 hour notice to get them.
Medieval..you can get tickets at GKTW too. The wish child is free and everyone else is 50% off. In case they say no from MAW. We were also told that the Discovery Cove was another wish trip. This was my daughter main wish, but they said it was either Discovery Cove and swim with dolphins..with Sea World, and a water park and you don't stay at GKTW or the Disney World Wish. Oh...the Discovery Cove was only a 4 day trip. Korissa choose DW.

This is what we did. We didn't want to risk not being able to use the GAC at WDW and we didn't want to approach them at the beginning of our trip. We did our 3 days at WDW as well as Universal and Seaworld during our first 7 days. We bought extra tix for WDW and used those during our extension and as mentioned above, we spoke with guest services and they did evertyhing they could to ensure that sydney continued to receive special treatment during the extended part as well. (Other than the wish trip, she would not have qualified for a GAC and they did know that.)

Ditto on treatment of wish kids at Universal. It was absolutely amazing! The only time they looked at the GAC was when I made a mistake and showed the WDW one instead.

Seaworld doesn't have a GAC. You just rely on the button and I don't believe anyone even looked at it really. I mentioned at the food stations that we were on Sydney's wish trip and they provided the food free of charge but other than that, I don't recall any 'perks' as such for wish kids. Wait, I did actually mention it at Manta. DS8 wanted to ride it and they brought him around the back. Turns out, he was a little too short so he couldnt' ride anyway but they did try to shorten the line for him.

 

[blessedmom4]

We extended our trip as well. We went to Guest Services at MK on our last day for the wish trip and asked about extending Sydney's Wish Trip GAC that she received from GKTW. I didn't want to use an expired GAC if it wasn't permitted. They couldn't extend the GKTW Gac as they didn't have the green stamp but did provide her with the most extensive GAC they had and told us to continue to wear her GKTW button. We never had a problem although we did flash the button along with the GAC for most things at that point as the Wish GAC is green and really stands out so the CMs recognize it immediately.

Hi, I am not always on the boards, although you couldn't tell that by the last few pages of this thread . You may have already answered this somewhere else...I read all of your PTR and was reading the TR and it looks like it has stopped (The thread looked closed, I couldn't post on it to ask this)...will you be completing it?? I was enjoying it!!! I was reading someone else's TR (Not a MAW TR) and it stopped as well...which leads me to ask...do we have a time limit to get these reports completed if we start one? I type slowly...

 

[jj0plin]

The tickets itself are good for up to 15 days, but your Special button is only good for the dates you are at GKTW.

Great to know! Thanks!

 

[casper_jj11]

Hi, I am not always on the boards, although you couldn't tell that by the last few pages of this thread . You may have already answered this somewhere else...I read all of your PTR and was reading the TR and it looks like it has stopped (The thread looked closed, I couldn't post on it to ask this)...will you be completing it?? I was enjoying it!!! I was reading someone else's TR (Not a MAW TR) and it stopped as well...which leads me to ask...do we have a time limit to get these reports completed if we start one? I type slowly...

Hi Judy

I've had great intentions of finishing Sydney's trip report and I still plan to. I had no idea there was a time limit. It wasn't too too long ago that I posted one day I had completed. I've heard that if a thread is closed, you can ask a moderator to open it. I've decided in the past few days that I'm going to finish it online but likely not include the pics. That slows me down because the pics are on my system at home and not at the office, it takes awhile to download them into photobucket, etc. I figure a TR without pics is better than no TR and I really want to do this for Sydney, if only for a journal of her trip.

Any questions though, just ask. I try to check in often, more lurking, but love to answer any questions.

 

[blessedmom4]

Hi Judy

I've had great intentions of finishing Sydney's trip report and I still plan to. I had no idea there was a time limit. It wasn't too too long ago that I posted one day I had completed. I've heard that if a thread is closed, you can ask a moderator to open it. I've decided in the past few days that I'm going to finish it online but likely not include the pics. That slows me down because the pics are on my system at home and not at the office, it takes awhile to download them into photobucket, etc. I figure a TR without pics is better than no TR and I really want to do this for Sydney, if only for a journal of her trip.

Any questions though, just ask. I try to check in often, more lurking, but love to answer any questions.

I am so excited to read more about your family and your wonderful trip Maroo suggested to another person to contact the moderators to reopen her thread...I am happy you plan to finish it, and I know Sydney will be thrilled to have the memories in written form! I SO understand about the pictures...they are very labor intensive for me as well and I never have them where/when I need them.

Here is some encouragment , I would love to read all about your adventures...and I seem to be FULL of questions these days! Dreaming of Lisa's Wish gets me through these tough times!

 

[that's nice]

We have our flight info finally. We leave at 10:34am and land at 6:06pm. If we are lucky..we maybe able to go to the 7:30 orientation. If not..we will go to the 9am one the next day.
We depart on the 23rd at 6:15pm from Orlando and land at 8:46pm at LAX. oh...we are flying on Delta. Has anyone flown on Delta? Are they great with SN kids? Do you have to pay for luggage?

Whoooo Hooooo for flight info!!!! Does it feel more real now?

Delta does charge for luggage normally. I hope they would wave those fees especially for a wish trip and because of the amount of ppl you have going.

 

[4monkeys]

Is the flying thing at Downtown Disney?

No it has nothing to do with disney. It is one of the extra perks gktw offers. It is actually fairly close to universal. My husband called the house of hearts (front desk) and told them they were interested. They made the reservations and called us back with the time.

 

[Mom2mitokids]

Whoooo Hooooo for flight info!!!! Does it feel more real now?

Delta does charge for luggage normally. I hope they would wave those fees especially for a wish trip and because of the amount of ppl you have going.

Last time we spent $200(roundtrip) just to check in luggage. If they don't waive the fees than we are all doing carry ons.

It does make it real. Tomorrow is 2 month to go.

 

[Mom2mitokids]

59 more day!!!! Thanks too Feb. only having 28 days...lol

I just realized we are leaving on daylight savings. ugh...we lose an hour of sleep.

 

[Mom2mitokids]

No it has nothing to do with disney. It is one of the extra perks gktw offers. It is actually fairly close to universal. My husband called the house of hearts (front desk) and told them they were interested. They made the reservations and called us back with the time.

Thank you Might do this on our free day

 

[Mom2mitokids]

Just did our plans. Can you PLEASE go to Korissa's PTR and see what you all think?