Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FIVE!!

[michiml03]

Let GKTW know that you have plans that night and they will work with you. I'm sure that will find someone to give you an orientation and get you everything that you need.

ok thanks I'll give them a call

 

[michiml03]

I can't believe we leave in 2 days Aiden is so excited .I do have a ? has anyone attended the MNSSHP on a wish trip? If so were you able to use the button for rides or meet and greets? I'm just curious

 

[GavandGraciesMommy]

I can't believe we leave in 2 days Aiden is so excited .I do have a ? has anyone attended the MNSSHP on a wish trip? If so were you able to use the button for rides or meet and greets? I'm just curious

I was told that the same rules as regular park hours apply. Obviously they say the button does not help with meet and greets but I have heard other families say that if you get the right CM they will let you skip the line. What night are you guys going? We are going Tuesday! There are going to be quite a few board members there it seems.

 

[michiml03]

I was told that the same rules as regular park hours apply. Obviously they say the button does not help with meet and greets but I have heard other families say that if you get the right CM they will let you skip the line. What night are you guys going? We are going Tuesday! There are going to be quite a few board members there it seems.

I also read a lot of families get to the front of the lines with characters but that's not an issue I was just curious. We are going on Sunday. I can't wait I think I'm more excited then the kids lol. Now I have to get packing.

 

[GavandGraciesMommy]

I also read a lot of families get to the front of the lines with characters but that's not an issue I was just curious. We are going on Sunday. I can't wait I think I'm more excited then the kids lol. Now I have to get packing.

I know! I am at work today and can barely stand it!!! I have most everyting packed but the hubby and I's clothes. The characters are probably the most important part to my kids. That is all they have talked about lol

 

[yeti5353]

I know! I am at work today and can barely stand it!!! I have most everyting packed but the hubby and I's clothes. The characters are probably the most important part to my kids. That is all they have talked about lol

we have a week till we leave and I can hardly concentrate. I can only immagine the mess I will be two days before we go!

Have a super trip and get the party warmed up for us!

 

[onceagain1]

I also read a lot of families get to the front of the lines with characters but that's not an issue I was just curious. We are going on Sunday. I can't wait I think I'm more excited then the kids lol. Now I have to get packing.

I was told that the same rules as regular park hours apply. Obviously they say the button does not help with meet and greets but I have heard other families say that if you get the right CM they will let you skip the line. What night are you guys going? We are going Tuesday! There are going to be quite a few board members there it seems.

I can't believe we leave in 2 days Aiden is so excited .I do have a ? has anyone attended the MNSSHP on a wish trip? If so were you able to use the button for rides or meet and greets? I'm just curious

I have no words for how excited I am for you. After reading sad things, and knowing of sad things, it makes me beyond happy to see wonderful things happening....so this is all I have...

 

[yeti5353]

Had our send off party today- we leave Friday. Looks like we get to rock a limo to and from the airport. Got our packet and all the details. We are so excited!!!

 

[Lilfoot93]

How exciting!! There are a lot of wish kids going this week! The limo sounds like it will be a lot of fun! I can't wait to hear about your magical trip. I hope you guys have an amazing time!

Jackie

 

[mspols]

Hello

I am new here! My 4 year old Lily just got her dates for GKTW for Jan 3-9. She is so excited. Would love to get as much info as I can and start planning.

 

[Momtokcc]

For some reason I can't update on Cade's trip report. I have been trying to do it for 5 days but it won't let me - says I am not logged in so I am just going to do it over here.

We go our packet with our expense check and everything. We don't do a sendoff party or anything like that. I can't believe how close everything is. Last week Cade had an appointment with genetics again - I was hoping for answers, but I should have known better. We are going to go to a new GI for a 2nd opinion on his treatment. We probably should do that for endocrinology too, but not sure who to go to. He is going to have another MRI of his brain - it has been a while since he had one and we just need to see if there have been any changes and Dr. R also wants him to have neuropsych testing. I suppose all of these could just be more puzzle pieces, I feel like we will never really have the true answer.

On the Disney front - the kids are so excited!! I feel like I will never have everything done in time! I planned a rough itinerary and feedback will be great. Here it is:

10/20 Arrive in Orlando at 11:30 AM
Arrive at GKTW sometime after and eat lunch get settled
Explore the village and maybe go to Downtown Disney and of course
the orientation
10/21 Hollywood Studios = for Lightning McQueen, Cade loves him
10/22 Legoland - Cade is a lego fanatic
10/23 Magic Kingdom
10/24 not sure - maybe Animal Kingdom
10/25 Universal Island of Adventure
10/26 Departure Day ...our plane leaves at 5:35 - don't know what we
will do

any suggestions or input?

 

[NEmel]

Quick question for everyone with experience! My son Carter is 7 and has CVID. I referred him for a MAW the first of September. We received the wonderful MAW family packet on Sept 24. They included all of the paperwork along with his 2 wish granters names. We still have not heard from them. He is getting a little anxious as you can understand! It does say in the letter if they don't contact us by Oct 16 to call the regional director and her number. Has anyone else had this same experience?? I am a huge planner and it is driving me nuts to wait!
Thanks, Melissa

 

[KaylaM]

Quick question for everyone with experience! My son Carter is 7 and has CVID. I referred him for a MAW the first of September. We received the wonderful MAW family packet on Sept 24. They included all of the paperwork along with his 2 wish granters names. We still have not heard from them. He is getting a little anxious as you can understand! It does say in the letter if they don't contact us by Oct 16 to call the regional director and her number. Has anyone else had this same experience?? I am a huge planner and it is driving me nuts to wait!
Thanks, Melissa

Hi Melissa..

We sound alike as I am a huge planner too! I can't stand having things in limbo, but am learning to. LOL!

I called the day it said to if we hadn't heard anything. So, if my date was Oct 16, I would call on Oct 16th. Well, actually, I probably would call today just as I wouldn't be able to wait the one extra day LOL! Good luck!!

Michelle

 

[yeti5353]

For some reason I can't update on Cade's trip report. I have been trying to do it for 5 days but it won't let me - says I am not logged in so I am just going to do it over here.

We go our packet with our expense check and everything. We don't do a sendoff party or anything like that. I can't believe how close everything is. Last week Cade had an appointment with genetics again - I was hoping for answers, but I should have known better. We are going to go to a new GI for a 2nd opinion on his treatment. We probably should do that for endocrinology too, but not sure who to go to. He is going to have another MRI of his brain - it has been a while since he had one and we just need to see if there have been any changes and Dr. R also wants him to have neuropsych testing. I suppose all of these could just be more puzzle pieces, I feel like we will never really have the true answer.

On the Disney front - the kids are so excited!! I feel like I will never have everything done in time! I planned a rough itinerary and feedback will be great. Here it is:

10/20 Arrive in Orlando at 11:30 AM
Arrive at GKTW sometime after and eat lunch get settled
Explore the village and maybe go to Downtown Disney and of course
the orientation
10/21 Hollywood Studios = for Lightning McQueen, Cade loves him
10/22 Legoland - Cade is a lego fanatic
10/23 Magic Kingdom
10/24 not sure - maybe Animal Kingdom
10/25 Universal Island of Adventure
10/26 Departure Day ...our plane leaves at 5:35 - don't know what we
will do

any suggestions or input?

I dont think you could spend too much time at gktw so spend the day there! or go to sea world for a few hours. Hope we run into each other!

 

[yeti5353]

we leave friday for our trip:
sunday miss wish
1. fell off a curb and sprained her ankle
2. developed a cold
3. lost a tooth while she was sleeping and woke up with a bloody ring around her mouth

and today had a fever and got started on antibiotics....
plus big sis is wheezing and I (hopefully just) got tummy sick from the wish send off dinner. And tomorrow I am getting another steroid shot for my knee.

what a week! hope we can get it together for the trip

 

[kritter47]

Melissa -

I'm sorry your Wish Granters have taken so long to contact you. It could be one of several reasons, most of them dealing with the WG's personal lives. If one of them is on vacation or had some sort of emergency come up, they may be waiting to contact you until they are more able to give you an idea of when they can come and visit. Generally, it's up to the two WG's to get in touch with each other, figure out the best times for them, then get in touch with the Wish family and figure out when they can meet up.

I would go ahead and contact the chapter if you haven't heard from them by tomorrow. They should be able to give you a better idea of what's going on.

 

[yeti5353]

Quick question for everyone with experience! My son Carter is 7 and has CVID. I referred him for a MAW the first of September. We received the wonderful MAW family packet on Sept 24. They included all of the paperwork along with his 2 wish granters names. We still have not heard from them. He is getting a little anxious as you can understand! It does say in the letter if they don't contact us by Oct 16 to call the regional director and her number. Has anyone else had this same experience?? I am a huge planner and it is driving me nuts to wait!
Thanks, Melissa

super hard for us to wait also! and the not telling me the details nearly killed me. I know its supposed to be relaxing to have some one take care of the details but not for me! welcome to the board and spend lots of time reading the trip reports, making lists of tips, reading park books, and looking at what sorts of photos others took so you will be ready when the day finally comes!

 

[Emilyswish]

Hi everyone,

My daughter Emily had her wished granted back in 2010 and I just stopped by the board to say "Hi!" and wish all of the ish kids and families a great trip!!!


Aimee

 

[Emilyswish]

That's the "Wish" kids, of course!!

 

[nuts4wdw]

Hi,
I have been a lurker of this thread since my son was born 4 years ago and am excited to be able to join you guys for my son's sake. However, my first post is a weird dilemma. I have to give a little backstory first. I referred my little guy when he turned three to MAW. In March, our family physician would not sign it because my ds did not have "a death date" according to him. I was gun shy and waited a month before asking my sons GI dr. My sons GI dr. said he would help us out. Then a week later his not-so-nice nurse called to say he would not sign off on it because he didn't feel comfortable. I asked her if the dr. had actually looked at it because of our conversation. She stated yes that he was sitting right next to her. That was April. End of story..... (so I thought)

We have been trying to raise funds this month to get my son to the Mayo clinic and a family that has been granted a wish through Wishing Star foundation nominated my ds. We had a rehab specialist that said she would be willing to get him a wish through Wishing Star. So, once again, I filled out the paperwork. This was the middle of Sept.

So, we have a new family physician that found the wish paperwork in his chart and said to me "I would love to get him a wish". So, I called MAW to update his family physician. (don't know why really) The lady said, I'm sorry we have new office staff and the GI dr. approved his wish on Aug. 22nd We should be contacting you in the next couple of weeks.

I called the 2nd wish granting organization to tell them nevermind MAW is working on it. She gets real protective about her agency telling me I need to go with them because they support families until the child turns 21, has support groups, "doesn't throw disney world in your face like MAW", and that she wouldn't take my son to WDW at age 4 because he will never remember it, and so they are willing to wait a couple of years until he can remember it.

I feel so torn...... I went from thinking my little boy would never get a wish to having to choose between two companies. So, any experiences. I am leaning towards MAW because I love GKTW! He is non-verbal, but does have a few signs and simple words. He knows how to sign train and Mickey and says "Kee" for Mickey. The 2nd lady also jumped down my throat when I said the two things he loves most are trains and Mickey that we were leaning towards WDW for him. Saying that "of course, all kids like Mickey Mouse". Can you guys help me out. I am so excited for my little guy!!!!! I can hardly stand it, I want to scream it from the mountain tops. Can you relate? Thanks for reading my really long dilemma. What do you think?