We are so excited for Lily' s make a wish trip January 3 but overwhelmed trying to plan. Lily is a princess loving almost 5 year old with mito...hydro..vp shunt and chiari. She has been pretty stable for last year so crossing our fingers for trip to be uneventful. I would love to hear suggestions on planning and things to do. We also have 10 and 12 year old boys so we will be all over the map. Thank you!!
