Lets surprise Molly!!!! (sad update)

[bubie2.5]

I’ve been reading this little girl's Carepage and sending good vibes from a long time now. I don’t know her or her family, but they have dealt with so much that I’m amazed by her mother’s spirit.

I thought that maybe we can contribute to a good cause while surprising this little girl. I think of how happy she’ll be when a ton of Mickey’s closest friends leave ornaments in her tree and special messages.

Her lunch for life tree code is 19521 at http://www.lunchforlife.org/

Her carepage is mollycavera at www.carepages.com

 

[hentob]

Good idea!~

Last year, there was a mom who was a memeber of the DIS boards and her son had cancer I loved seeing his "tree" fill up with balls!

I forget who it was, but I would LOVE an update. Hope all is well with that little guy

But for today, I hope to fill up Molly's tree!

What a dreadful disease. I hate it

 

[bubie2.5]

Thanks Hentob!

 

[hentob]

This was the little guy....

http://www.disboards.com/showthread.php?t=967048&referrerid=&highlight=+Neuroblastoma

But now I am unsure if his mom was a member of the DIS or not? Maybe I am confused? Regardless--It seems that this little boy is in remission!!! How AWESOME is that!

Come on Molly! You can beat this too!!

 

[hentob]

Bumping!

 

[zalansky]

I donated my lunch for tomorrow! Thanks for posting, and also I used your referral code. What a beautiful little girl.

Come on DIS-er's! Let's fill up her tree!

 

[hentob]

I donated my lunch for tomorrow! Thanks for posting, and also I used your referral code. What a beautiful little girl.

Come on DIS-er's! Let's fill up her tree!

 

[Blueeyes101817]

Good idea!~

Last year, there was a mom who was a memeber of the DIS boards and her son had cancer I loved seeing his "tree" fill up with balls!

I forget who it was, but I would LOVE an update. Hope all is well with that little guy

But for today, I hope to fill up Molly's tree!

What a dreadful disease. I hate it

i remember donating to that last year too!

 

[bubie2.5]

 

[zalansky]

 

[bubie2.5]

Sad news today
Please help, before is too late.

 

[bubie2.5]

Guess no one cares.

 

[JennyMominRI]

Guess no one cares.

I'm not ignoring it,I just can't seem to find the updates

 

[JennyMominRI]

Never mind,I figured it out

 

[bubie2.5]

"When to say when....
We seemed to have reached that point yesterday. I still am not comfortable with it but will any parent ever be. Our clinic visit yesterday was likely to be our last. Molly's counts were low once again after Monday's 2 infus. She's had 2 days of neupogen but her white count still was min. After thoughtful discussion with our oncol. we decided not to give her any blood product. Molly wanted to not stay for clinic & Dr. Mitchell told her she could come check on her at home. We'd talked to hospice early care the other day and this morning we unfort. signed on for routine care with the nurse. We want what is best for Molly, not us. Dr. Mitchell thinks her next struggle will likely be an infection with her counts so low. She knows from exper. the pain issues this disease can cause & sometimes a secondary problem is a less painful way to go. We've thought of this too but nothing seems right. It's likely her marrow is packed with NB, along with the few bone sites and eye/forehead area. She still has not complained of pain but is def. quiet and not herself. Her appetite has gone but occas. she still wants to eat. Last night she had 2 dinner cravings but then didn't touch them. Later she ate a whole bowl of popcorn, one of her Easy bake cookies, some brownie bits and orange sherbet all while watching a movie. Today she wanted to go out to Toy's R Us to use a gift card she'd received from Dad's work (she designed their holiday card this year). She is now napping.

She is contin. some of her meds but a few were elim. A slew of pain meds and oxygen will be here & avail. if needed. We do not want her to go in pain so we can have more time with her but I can't give up hope that maybe tomorrow she may feel a little better too. I feel like NB and it's patchy rate of cure is like the Titanic. We know with the current solution only a certain amount of kids will get one of those life boats. I've never been one to surrender, it won't be easy. Please keep praying for Molly's comfort, Dan & my peace of mind that we're doing the "right" thing, and understanding for our boys. We'll contin. to make the most of each day. Each morning that I can greet her with "Goodmorning lady" it's another small miracle.
Thanks for all your support. We may not take every phone call but know you are thinking of us. Send a note here or on our email it really does help.
love
the Caveras

Light Molly's Tree filled with hope on Lunchforlife.org. Giving Tree Code 19521. Thanks for making it so bright."

 

[kdibattista]

How heartbreaking

 

[alliecats]

Devastating. That is such a horrible disease--that poor dear little girl and her poor parents. I can't reconcile the thought of a five-year-old and hospice in the same sentence.
Why do babies have to suffer like this?

 

[hentob]

Oh Bubie! I just saw this

Why does this happen to children?

Such a lump is in my throat

 

[alliecats]

I am not a parent, but I honestly don't see how parents come back from losing a child like this. It seems like you would just die of grief.

 

[rie'smom]

This poor family. My God, how do you survive? It's a blessing that they have 2 more children because that's what I would think will help them to have the strength to get through to the other side of this nightmare