Just found out my friend's 8yo daughter has terminal brain cancer

[TheBigBadWolf]

I'm so very sorry to hear about little Madi. I will keep her and her family in my prayers.

Please talk to your friend about taking Madi to see Dr. Stanislaw Burzynski in Houston. When patients are told at MD Anderson that there is no more hope, they go to Dr. Burzynski. He uses non-surgical, non-toxic alternative cancer treatments and has cured thousands of people who had absolutely no hope left before seeing him. Brain cancer is one of his specialties. He will not accept a patient that he doesn't think he can help. It sounds as if Dr. Burzynski could be Madi's only hope.

When my eight year old nephew was being treated for cancer at MD Anderson, my family met several people who took their terminally ill children to Dr. Burzynski. Some lived, and some didn't make it. But you'll never meet a parent who will say a bad word about Dr. Burzynski, because even when their children didn't survive, he DID help them, and shrunk their tumors. He saves many children whom MD Anderson (the best cancer hospital in the world, IMHO) sends home to die. I'm sure since you live in Houston you have probably heard of him. I pray you will tell your friend about Dr. Burzynski and encourage her to take Madi to him for a consultation. Hopefully he can help her.

http://www.burzynskiclinic.com/

http://www.burzynskiclinic.com/ph/patient-stories.html

 

[mom2travel]

and prayers for you, Madi and all her family and friends

Too many of us have people close to us who have been affected by the evil of cancer.

About 18 months ago a close friend was diagnosed with leukemia at age 6. Thankfully for her and her family, she had the "best" of the beast prognosis-wise and although still in treatment is doing well today. I remember vividly the numbness, sadness and shock I felt when we learned of her diagnosis, and how difficult it was to explain to our own children. My heart goes out to you and all who know and love Madi. It is hard to know what to say and do for your friends and especially for a sick child. Just be there and take cues from them.
A friend's father was diagnosed with terminal cancer and passed away several years ago (not sure what kind of cancer). They ended up with more time with him than originally predicted and tried to enjoy every moment they could, but it still didn't make the end any easier.

I will hope that the diagnosis becomes more optimistic, that Madi has as little pain and fear as possible and knows how much she is loved, and that her loved ones enjoy their time with her and find peace and joy in having her in their lives.

 

[cjlvsccm]

...

http://www.burzynskiclinic.com/

http://www.burzynskiclinic.com/ph/patient-stories.html

We also heard of Dr Burzynski earlier this year, but my DSis didn't want to travel to try any more treatments.

If Madi's parents are the least bit curious, I wouldn't hesitate to give them that contact info and encourage them to at least speak to this doc, and see what he thinks he could offer. It may be some precious time of FEELING BETTER with FEWER SYMPTOMS, even if treatment can't significantly prolong her life.

So many stories here... sending everyone a

 

[a1tinkfans]

So sad beyond words ! My heart breaks for sweet little Madi, her poor parents, family and friends. Sending lots of prayers their way.


and prayers to all who are suffering, are survivors, or have lost a loved one to this cruel beast.

I could not have said it better. My heart is ACHING for all those that are dealing with ANY/ALL cancer!

 

[TheBigBadWolf]

We also heard of Dr Burzynski earlier this year, but my DSis didn't want to travel to try any more treatments.

If Madi's parents are the least bit curious, I wouldn't hesitate to give them that contact info and encourage them to at least speak to this doc, and see what he thinks he could offer. It may be some precious time of FEELING BETTER with FEWER SYMPTOMS, even if treatment can't significantly prolong her life.

Thank you cjlvsccm for a second vote of confidence for Dr. Burzynski. I often hesitate to post controversial stuff on the Community Board. But, when a child's life might be saved, I have to try to help them.

My 8 year old nephew was diagnosed with Ewing Sarcoma ten years ago. The doctors here said he had at least nine tumors in his legs, and more tumors in his lungs. At least 20 doctors examined him and reviewed his charts/tests/biopsy results, and all agreed with the diagnosis. The doctors gave him a 5-15% chance of survival. We were devastated but not willing to give him up without a fight. We refused to accept that diagnosis without at least hearing it from the best cancer doctors in the world, We had him on a plane to MD Anderson Cancer Hospital in Houston two days later. Guess what? The doctors here were wrong. He didn't have Ewing Sarcoma, and he had NO tumors in his lungs or legs. He had common ALL Leukemia which is much more easily treated that Ewings. He was treated at MDA for a year and has been cured for the past nine years. He is a healthy 18 year old boy who will graduate in the spring. Had we accepted the Ewing Sarcoma diagnosis, he would be dead. I have a friend and a family member who were misdiagnosed with cancer, and may have died if they had listened to their first round of doctors. They both went to MDA for treatment and are alive today. My friend did not even have cancer!

And having been in the position of having a child in my family with cancer, I do not believe Madi's mom will mind if you tell her about Dr. Burzynski. I'm assuming since you live in Houston that Madi has been seen by doctors at MDA? I do trust them and would accept their diagnosis as correct. But when MDA can't help a patient, that's when you go see Dr. Burzynski. Please do not second guess intruding into Madi's family's lives right now. I promise, having had this in my family, Madi's mom will thank you forever for your help. I pray Madi will get the help to save her life.

 

[SCHBR'smom]

How terribly sad. I cannot imagine having to live through being told one of your children is terminal.

There was a touching story on the Today show this morning about a 9 year old little girl with an inoperable brain tumor who lived about 250 days after diagnosis.

During that time, she wrote all sorts of little notes and hid them all over the house. 2 years later, her parents are still finding "I love you notes."

They wrote a book about their journey, it might be something you can look into to see if it would bring any kind of comfort to the family.

That just broke my heart

 

[SCHBR'smom]

I am in shock. I cannot even imagine what she is going through. This is a co-worker and friend of mine and I just found out. I had been out on leave since I had spinal surgery and wasnt here when she found out. They have given her 9 months to live. I cant even think right now.

I am not a religious person, but I know this family needs all the good thoughts, prayers or whatever else you can think of right now.

She is in my prayers

 

[minniebeth]

Jenvenza, any update on Madi?

 

[DawnCt1]

I have no words. Cancer is a horrible disease. Cancer in children unspeakable. I am so sorry. The family is in my prayers.