Jonah's wish trip *pictures added*

[HeatherSue]

It must be frustrating for you to think about Jonah having to have another surgery. for the both of you.

 

[oklamomof4boys]

No i can't, I'm getting so excited about it . We need to meet up while we're down there.

becca

I agree. You get there on Thursday, right? We will be at the Christmas Party at GKTW that night. I'm not sure what we are doing on Friday morning but we are going to MK at 4:00pm and will be at MVMCP also that night. Sadly, we then have to leave on Saturday

I bet we can meet up sometime around the Christmas Party at GKTW!

Carol

 

[jessica52877]

It has been a while since I checked in, but I love seeing Jonah in his stander! I bet he loves having a different look on things and his legs stretching!

Looks like your trip is nearing! and that your planning is coming right along.

 

[bex271]

It must be frustrating for you to think about Jonah having to have another surgery. for the both of you.

It is frustrating knowing he's going to have another surgery and to knowing had they come in right when it happened, I ran out the down to find someone and get the doc it could have been resolved right then, no surgery needed, but it didn't work that way.

I agree. You get there on Thursday, right? We will be at the Christmas Party at GKTW that night. I'm not sure what we are doing on Friday morning but we are going to MK at 4:00pm and will be at MVMCP also that night. Sadly, we then have to leave on Saturday
I bet we can meet up sometime around the Christmas Party at GKTW!
Carol

We are getting there Thursday afternoon. Our plane lands around 3. We're definitely going to be there for the Christmas party at GKTW. We are going to MK Friday late morning and go to MVMCP on Friday.

It has been a while since I checked in, but I love seeing Jonah in his stander! I bet he loves having a different look on things and his legs stretching!
Looks like your trip is nearing! and that your planning is coming right along.

He does love being in his stander. He does his school work better when he's in it then when he's in his chair. We just about have everything finalized and ready to go. I'm glad you checked you in

 

[bex271]

We just got our flight confirmation number and our flight times and our coordinator said our wish volunteer is pushing her get things done so they can make plans to announce the trip (i think that's what it's called i may have heard it wrong)
I called Jonah's doctor's offices to get letters about the equipment that we are taking with us, like his suction machine and feeding pump so we can put take it on the plane with us. MAW has the big equipment all set up for us. So we are almost set. I just need to start buying things like memory cards for our cameras, sunscreen, mole skin and batteries.

Has anyone shipped things to GKTW what's the protocol for doing this?

becca

 

[bex271]

please pray for us, we are having a major crisis, financially and i don't know what to do right now. I'm about it tears trying to figure out what to do. I know we'll be fine eventually but right now it doesn't seem to have an end insight. so please just pray for us that we can get through this with out any major falling outs with each other.

becca

 

[macntosh]

Where did you get your stop Staring, it's just a trach shirt?

 

[bex271]

Where did you get your stop Staring, it's just a trach shirt?

I had gotten it a few years ago online from a company called plotkins designs, but she has closed the business for now but i don't know when or if it'll be back up and running. I had wanted to order him more but when she closed her doors i can't find any that like now, but if the business opens again i'll let you know.

becca

 

[Goofyluver]

Prayers said.

 

[llurgy]

please pray for us, we are having a major crisis, financially and i don't know what to do right now. I'm about it tears trying to figure out what to do. I know we'll be fine eventually but right now it doesn't seem to have an end insight. so please just pray for us that we can get through this with out any major falling outs with each other.

becca

Prayers being prayed in earnest for your family.

I do hope you can get whatever the crisis is resolved to a point where you can at least enjoy Jonah's WISH trip.
When these troubles come along they tend to send you down into a hole which you think you will never be able to climb out of....I pray the hole isnt a really deep one and that your family is able to be happy for a little while.

Mandy

 

[HeatherSue]

please pray for us, we are having a major crisis, financially and i don't know what to do right now. I'm about it tears trying to figure out what to do. I know we'll be fine eventually but right now it doesn't seem to have an end insight. so please just pray for us that we can get through this with out any major falling outs with each other.

becca

and prayers being said for you.

 

[maroo]

please pray for us, we are having a major crisis, financially and i don't know what to do right now. I'm about it tears trying to figure out what to do. I know we'll be fine eventually but right now it doesn't seem to have an end insight. so please just pray for us that we can get through this with out any major falling outs with each other.

becca

Definitely praying for you guys!

 

[Stephres]

I hope everything works out for your family.

I missed Jonah being student of the month. What a great honor! I will tell Megan about her little buddy's accomplishment!

Another I hope things get better soon.

 

[mom2lilnick]

Praying everything turns out okay.

 

[Khalana]

Praying and hoping everything works out for you!!!

 

[bex271]

Thank you all for the prayers. We are 1/2 way through this crisis. We'll be back on our feet (i'm hoping) soon.
It's tough on us this time of year anyways because dh work slows considerably and with him being the only bread winner. We go through our back up pretty quick. His job though has a new contract coming up *crossing fingers* that is going help keep his hours up. He's suppose to be getting a raise and hopefully be out of the clear before we go to disney. I appreciate y'all again praying for us. With prices being what they are now it's even worse.

On to disney stuff, I figured out how to program a sandisk for our digital camera yesterday and so now we'll be able to take 6000 pictures, I'm hoping that will be enough for one of magical fun.

Jonah is doing better or so i thought, with our crazy weather right now he is having a stuffy head still and bad runny nose. He just got off of antibiotic and i'm hoping he doesn't have to go back on one. I'm just going to have to keep an eye on him. It always takes a toll on him when it goes from 75 degrees one day and then all of a sudden it's 61 with strong winds on top of that. Well i gotta go and this is really to long. He's got to go to PT and get his muscles working again.

becca

 

[bex271]

Jonah is still not over his sinus infection and the dr is calling in another antibiotic to help him kick it for good hopefully. and if not then i'll have to take him in to have him looked at again, but this time they're just calling something in for him. I kept him home today because he was just being so fussy so unlike himself and yesterday afternoon he was fussy too, right now he's trying to take a nap and instead of cleaning and unpacking from last week i'm on here and not doing anything. I'm going to post some pictures of him from yesterday at therapy. He didn't do much but he was just so darn cute when he did do something and I actually remembered my camera believe it or not.

becca

 

[macntosh]

Becca, we are in the same boat both financially and physically. We will lift you up.

Something I learned this week, which actually brought me a lot of hope in all these struggles. I make jokes about not filling out the Job (person) application and when was I assisgned his position from God, but I was reminded that after all the trials and tribulations, he was more richly blessed then all those around him. I guess being in this postion may not be such a bad thing. I just pray we all have the patience and faith to perservere through it all.

 

[zeppy68]

I bet your very excited as the trip is getting closer as we are to.
Hopefully we can see your family sometime while we are down there.
We wont get in til the 22nd.

We are as just as excited

Hope everythng is going ok.

 

[bex271]

Becca, we are in the same boat both financially and physically. We will lift you up.
Something I learned this week, which actually brought me a lot of hope in all these struggles. I make jokes about not filling out the Job (person) application and when was I assigned his position from God, but I was reminded that after all the trials and tribulations, he was more richly blessed then all those around him. I guess being in this position may not be such a bad thing. I just pray we all have the patience and faith to persevere through it all.

Thank you for the kind words and i'll keep y'all in my prayers too.

I bet your very excited as the trip is getting closer as we are to.
Hopefully we can see your family sometime while we are down there.
We wont get in til the 22nd.

We are as just as excited

Hope everything is going ok.

We are getting so excited we're counting down the days. I even packed a couple things today we won't be wearing until we get down there because i don't want them getting messed up before we go. We are definitely going to have to meet while we're down there.

Becca