tinytreasures
DIS Veteran
- Joined
- Oct 27, 2008
- Messages
- 1,696
I am so excited to be a part of this forum, you have all made me feel so welcome 
Cast members
Kathleen-me mom to 41 so far waiting for the phone to ring with more (ok we are up to 44 now since we have expended a few times since starting this report
)
Loren-best husband and daddy everyone that comes in our door
Jason- 10 yrs old wish child
Avyella- 8 yrs (22 week preemie with CP and blind in one eye)
Christian 7yrs (FAS)
Hayden 4 yrs (arthritis)
Isabella-(Ella/Bella/Mella sometime Smella) 2 yrs (hearing impaired)
We are a foster home that adopts special needs children
We didn't plan on doing special needs foster care till the call for Jason came in out of the blue saying we have a "3 month old baby boy with deformed hand and a really bad cold" could you take him. We couldn't get there fast enough
Turns out he was one sick little baby. We found this out years later when a nurse came up to me and said does your son have a deformed hand? I said yes she said "I can't believe he is still alive we did the death watch on him the night he was taken from his bio-mom"
Jason has Primary immune deficiency, Holt Oram syndrome (his deformed hand) a minor heart condition and bad bad lungs (he turns blue a lot)
He has had 9 surgeries so far including 2 huge ones to give him a thumb. His left thumb had no bones or muscles in it so at 12 months they took his index finger and made him a thumb with it. Then at 6 yrs old he needed a muscle transplant to give it more strength. He still gets mad it doesn't do what he wants it to do and his arm is shorter then the other one. We call it his "Mickey Mouse hand" since he only has 4 fingers too
He has spent more time then I want to think about hooked up to a IV pole.
He had 3 PICC lines in before he was 3 yrs old.
On his Adoption day the Judge was freaked out because in comes this little boy, a month shy of his 3rd birthday hooked up to a IV pack that he wore in a little clear backpack. We were scared he wasn't going to grant our adoption since he kept asking us if we knew what we were getting into.
Jason got his port in right before he turned 5 and has been doing IGG treatments every 21 days ever since.
He has been doing really well the last 12 months so we decided to put in for his wish trip and we got notice 3 weeks later we was approved
(plus we were waiting for our sibling group of 4 to go home they were here for almost a year and left the week I sent in the paperwork)
I have been living on this site ever since.
We hope to hear in the next 2 weeks if Grandma can come as his PCA and our dates to travel.
Grandma and grandpa plus my husbands sister are all planning on coming
Does anyone know how that work? Can they come to the GKTW to hang out with us and help us?
Cast members
Kathleen-me mom to 41 so far waiting for the phone to ring with more (ok we are up to 44 now since we have expended a few times since starting this report
)Loren-best husband and daddy everyone that comes in our door
Jason- 10 yrs old wish child
Avyella- 8 yrs (22 week preemie with CP and blind in one eye)
Christian 7yrs (FAS)
Hayden 4 yrs (arthritis)
Isabella-(Ella/Bella/Mella sometime Smella) 2 yrs (hearing impaired)
We are a foster home that adopts special needs children
We didn't plan on doing special needs foster care till the call for Jason came in out of the blue saying we have a "3 month old baby boy with deformed hand and a really bad cold" could you take him. We couldn't get there fast enough
Turns out he was one sick little baby. We found this out years later when a nurse came up to me and said does your son have a deformed hand? I said yes she said "I can't believe he is still alive we did the death watch on him the night he was taken from his bio-mom"
Jason has Primary immune deficiency, Holt Oram syndrome (his deformed hand) a minor heart condition and bad bad lungs (he turns blue a lot)
He has had 9 surgeries so far including 2 huge ones to give him a thumb. His left thumb had no bones or muscles in it so at 12 months they took his index finger and made him a thumb with it. Then at 6 yrs old he needed a muscle transplant to give it more strength. He still gets mad it doesn't do what he wants it to do and his arm is shorter then the other one. We call it his "Mickey Mouse hand" since he only has 4 fingers too
He has spent more time then I want to think about hooked up to a IV pole.
He had 3 PICC lines in before he was 3 yrs old.
On his Adoption day the Judge was freaked out because in comes this little boy, a month shy of his 3rd birthday hooked up to a IV pack that he wore in a little clear backpack. We were scared he wasn't going to grant our adoption since he kept asking us if we knew what we were getting into.
Jason got his port in right before he turned 5 and has been doing IGG treatments every 21 days ever since.
He has been doing really well the last 12 months so we decided to put in for his wish trip and we got notice 3 weeks later we was approved
(plus we were waiting for our sibling group of 4 to go home they were here for almost a year and left the week I sent in the paperwork)I have been living on this site ever since.
We hope to hear in the next 2 weeks if Grandma can come as his PCA and our dates to travel.
Grandma and grandpa plus my husbands sister are all planning on coming
Does anyone know how that work? Can they come to the GKTW to hang out with us and help us?
I look forward to hearing all about it and your trip. 
