ambiancetc
Mouseketeer
- Joined
- Jan 25, 2013
- Messages
- 110
To skip the introductions and pre-trip stuff click this link to page two and scroll to post #29
Sometimes, I feel like my life is a continuous loop of IASW. The annoying song, the slooooowwww pace, EVERYONE is SOOOOO HAPPYYYYY all the time, like they don't have a care in the world...every single doll.... The annoying song in our lives is called Mitochondrial Disease and we're never rid of it. The slooowww pace is the two steps forward one step back dance move we seem to take in our "get ahead in life" plan. The never ending smiling and waving is all the people around us who (at least from the outside) seem to have it soo easy.
So I digress, where does Disney fit in all this? Well, it was this annoying, kill-me-now-please ride that made me realize some GREAT things about my life.
The slooowww pace of the ride, when you just stop to enjoy it for what it is and look at it as a chance to take a break, think about what is going on around you and be content is actually a good thing, hey if you are on IASW you are in DISNEY aka if you are in a home with food and clothing, your doing good!...so maybe that's not so annoying afterall. All the dolls are from all walks of life and we've learned that the people we meet are too. They also all have their own struggles and pains but many choose to just smile and wave anyway...maybe I love those dolls afterall. I should learn to smile and wave too! The song....well...that song still loops in my head and I still think it's annoying...

So this trip report is about how we're over coming IASW and all it's querks and instead CELEBRATING IT one Disney Trip at a time!
The VIP's:
DH 30ish aka J, He works for my parents as an operations manager for their alternative energy company and is a hard working, ever self sacrificing, loving, perfect husband. (Don't tell him I said the last part

DD9 aka A, I'd discribe her as "intense". She wants to be the best at everything and just trys so hard! Our phrase for her is "relax, have patience, it will come with time and practice". (She wants to be good at it NOW and doesn't understand why she can't be) She loves art and that is something she doesn't have to try to be good at, she just is. She's my righthand helper around the house and is becoming quite the little cook and baker. Saving up for Disney money has been a real motivator for her to find new chores she can do! Overall she is amazing and I love her!
DD6 aka E. My little flighty bird. She spends her day flitting around the house singing and dancing and coming up with the most hilarious questions and phrases. Like yesterdays out of the blue statement: "Mom, it'd be bad if lightening hit our tree, fell on our house and started on fire because we don't have a fire license." Um...ok? She could care less if she was good at anything, yet masters stuff so easily without even trying. My older daughter keeps this as a bone of contention. Amazingly, they still manage to be great friends 90% of the time.
DS4 aka B He is our Mito Warrior. Our youngest who so bravely conquers life with zest and vigor. Not all the tubes in the world seem to hold him back. His laugh (which we hear often) is infectious. He's all boy. Wants everything related to cars, trains, dirt and dinosaurs. His disease has been progressive since birth. He got his first basic feeding tube at 1 year, his more involved one (that goes to his intestines because his stomach only works part of the time) at 18 months, started Oxygen at 2 and got his Port for IV fluids at 3. He's also added two new meds every year. So far (Praise God) age 4 hasn't add anything new.
Then there is me. Barely 30. I'm a travel agent by career and have owned my own agency for 10 years now focusing mainly on cruising and tours. I'm also a homeschooling mom who likes to cook, sew, craft, decorate, travel, snorkel and garden.
After B's diagnosis we had mostly stopped traveling. Then, we went on his MAW trip last May and it changed our family. We drank the FULL PITCHER of Disney Kool Aid

I'll share some of the ways we've saved for this trip and my pre-trip buying in the next post. In the meantime, a favorite pic of the family from last year:
