Hypoglycemia child at WDW

westjones

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Mar 11, 2002
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I am new to this board (and new to dealing with hypoglycemia---well not new to 'dealing' with it, but new to the change in my DD's diet because of it. She just started this new diet last Saturday (and we are leaving for WDW this coming Sunday--bad timing.....BUT OH MY what a difference we see in our DD, but that is a whole other story).

Can anyone point me to threads that talk about sugar free food options at Disney World, and/or advice for parents taking kids (well she is 14, so really a teeenager, but she will always be my baby) with blood sugar problems to Disney?

I am sure it has been talked about before, so if anyone know of a thread they can direct me to, I would really appreciate it.

Thanks!
DJ
 
My younger son is a type 1 diabetic so maybe those threads would help you out. If you go to post #3 of the Disabilities FAQ sticked to the top of this board - take a look at the links under "Diabetes" - there are lots of food related posts there in general.

I"ll admit I have NO idea what type of meal plan she is on -what she is trying to avoid -except I'm guessing sugar as you mention it. Most type 1's don't avoid sugar - perhaps more type 2's try to limit it.

I suggest that you also contact Brenda Bennet - her email address is in the FAQ - and ask for all the info on sugar free (or whatever it is you need) - she usually emails back a big list of CS and cart items that meet your criteria.

Note the dietary restrictions on any sit-down ressies you have and call the restaurants ahead of time if you need to talk to someone (if it is more complicated than "no sugar"). The chef can prepare a special meal.

Counter Service (CS) is more tricky - this is where Brenda can help. There are a few sugar-free items at the parks - like a sugar free Strawberry bar in some of the ice cream carts (not all!). I think they have sugar-free brownies at some places too. Probably there are other sugar free offerings that people will know about.

I want to caution you (if the doctor already did not!) about the effects of sugar alcohols - like malitol and sorbitol - they can give someone HORRIBLE diarrhea and intestional pain. Some people are more sensitive than others. I know my older son is affected even with sugar free gums if he eats too many pieces. Even items (that you buy at the store) that say "sweetened with splenda" might have sugar alcohols as its main sweetener! We found that in some ice pops we got. Splenda is not a sugar alcohol and shouldn't cause diarrehea - aspartame is fine too. Some people are sensitive to other things about artificial sweeteners but you really have to be careful with sugar alcohols or your child might end up with a tour of WDW bathrooms..... The sugar free brownie we got at WDW was sweetened with sugar alcohols last time we had it - FYI.

Does she have a hard time keeping her blood sugar up? or down? Perhaps the Disney with Type 1 Diabetes would be helpful: http://www.allearsnet.com/pl/diabetes.htm
 
Hi and :welcome: to disABILITIES!

If you click on where it says "disABILTIES" at the top of this page it will take you to the Index. One of the top items is the "disABILTIES FAQ" which will gives lots of useful information. Post #3 has a whole section on special dietary restrictions with lots of information and links you will find useful.

Or, if you want an easier route, click on the link in my signature.
 

What i do is bring snack w/ me in the park that work w. my low blood sugar. That way, i'm in control of what i'm eating, and i know its safe for me, I even bring a sandwich in for lunch. we do sit down for dinners, and I watch what i eat. I always brings snacks/ w me every day, because I eat every couple hours, so its the same when at disney. I'm a much happier, person, eating every few hours.

If you know some things are great snacks that are working pack them in your suitcase and bring them along. Or stop by a grocery store and pick-up those snacks.

whats the new diet, maybe someone can make suggestions in what they've seen on menus, etc.

For me it helps eating whole grains instead of white flours, grains etc. So, sometimes, I bring my own bread in, since most places have white bread. Then stick my bread on the sandwich. Plus, make sure to get lots of protein in her. Nuts, peanut butter, jerky, are good in a pinch.

Have a great trip.
 
whats the new diet, maybe someone can make suggestions in what they've seen on menus, etc.


The new diet is the Hypoglycemic diet. We just started it with her last Saturday (and it has really helped a lot--I had no idea what sugar was doing to her, and I had no idea just how much sugar is in so many foods we think are healthy).

So basically she is learning to limit sugars and have more protein and fiber. We are going to order a whole wheat crust pizza from Papa Johns. So we are are learning new things.

We are flying, so I can pack a few snacks, but we will be going to Walmart to shop for more food for the week (we have a full kitchen in our villa, so this will help).

Thanks so much for the info. This is so hard on her, but she is really trying. I just hope she doesn't feel deprived at Disney not getting the treats she used to have (like Mickey Ice Cream bars and Jelly Belly Jelly Beans at Goofys Candy Store).

DJ
 
another very important point, she will be walking more, which is exercise, which can lower her blood sugar faster, so please make sure she has snacks every few hours, in a pinch a glass of oj with a packet of sugar will help her sugar to rise. after that crackers and cheese with a glass of milk should help stabilize it a little more. i usually carry ritz crackers with me everywhere i go in case i start to feel a little shaky. if its close to lunch or dinner time stop and eat a meal. hope this helps if your in the park and unsure stop by the first aid stations there are registered nurses there that can help:)
 
another very important point, she will be walking more, which is exercise, which can lower her blood sugar faster, so please make sure she has snacks every few hours, in a pinch a glass of oj with a packet of sugar will help her sugar to rise. after that crackers and cheese with a glass of milk should help stabilize it a little more. i usually carry ritz crackers with me everywhere i go in case i start to feel a little shaky. if its close to lunch or dinner time stop and eat a meal. hope this helps if your in the park and unsure stop by the first aid stations there are registered nurses there that can help:)

Thanks! I wish we had been at this new food plan longer before going on our trip, but I am amazed and shocked at the difference in my DD since we started it last Saturday. She doesn't have the anger outburst, she is happier and much more pleasant to be around, and she likes how she feels so much better....so we are all committed to helping her get through vacation a healthy happy girl! I was going to bring nuts along for snacks (I thought proteins would be good), but I could bring some crackers too. I also picked up those protein South Beach Diet drink mix packets for the water bottles in the parks.

We are staying at BCV, so we will be close to 'home' when we are at Epcot and DHS and we have a full kitchen there and we are going grocery shopping Sunday night when we get there to get a good supply of food for her.

Thanks again for the suggestions. We are hoping to help this be her best tirp ever!

DJ
 
It was amazing what a difference switching from white pasta/rice/bread to whole grains. During my switch over, i did things one at a time.

I had done the breads along time ago. Then start 1/4 whole grain pasta, or rice and then slowly made the change to half and half, and then 3/4 whole grain, then all whole grain. Make sure to get pastas that have the same cooking times.

I recommend just doing one pasta , rice, bread at a time because it takes time to get use to the new flavor, taste and consistency. We tried to do more at once, and it back fired, and couldn't take all the change at once.

So during the change. I would notice on the evenings which had the group of white grains still. I wouldn't feel as well, and then I would feel worse in the morning.

The whole grains take longer for your body to process than the white grains/pasta/rice.
Plus, take a look at the cereal closely. So many have way to much sugar, and look at the total carbs too. Some w/ dried fruit in it, have way to much sugar in them. Take a look at the kashi brand cereals, have way more fiber and protein than some others. Although since they have become more popular, they have introduced some which have more sugars and less of the good stuff in it.

You definitely have to be a label reader. I always look at the labels and then just put back the things w/ too much sugar in them.

About feeling deprived. For myself, if I want to have a treat. I can have a small treat, i have to eat the treatEat the treat before I have my meal. Do essentially dessert first. If we are doing a buffet. I grab a small dessert, eat that first, and then eat my meal.

The way I understand the low blood sugar, is your body ball parks the amount of insulin you need, and generally it overshoots and spits out too much insulin. So, if you eat the dessert first, your eating good proteins after it, and more food (which uses up that extra insulin) that got spit out from eating the dessert.

If I eat a dessert at the end, since (I don’t do fake sugars, causes headaches and other things), there is mostly sugars in the desserts. Then I have to eat something again within a half hour or hour, or my sugar starts to go low, and I start to feel yucky.

So, if she does have a dessert after her meal. Well, she will probably need a high protein snack 30-60 minutes after that snack. This isn't a good thing if your trying to watch your weight, and not gain a ton.

What mistake some people do, is they will eat the sugary treat. Then an hour later they will eat more sugary treat (life savers, any type of hard candy, etc). Then continue the process and in the mean time, your energy level, pops up and down, along with your moods.

One thing I enforce in the house, is the no treat rule. There isn't candy, chocolate, ice cream sitting around in the house. yes, of course, you do get a craving for those foods. However if you don't have them in the house, you pick out a healthy alternative, like an apple or bannana (yes you also have to watch your sugar intake from fruits too), then it passes. Much better to have fruit to satisfy the sweet craving than the candy.

Occasionally I allow them in the house, for a day or 2 max. But, once I've had a rollar coaster from the offending snack, dessert item, my hubby brings it to work , or it gets tossed out.

Its really not fair to have the candy and desserts sitting around constantly for someone can't have it. Its one thing to deal with it for a week at disney, but every day in the house, watching people eat candy when you know it makes you sick, really isn't fair. Keep it at least out of site, and out of reach, if possible.
Plus, if you think about it, removing the white flour, candy and desserts is going to be a positive move for the whole family.


One more thing to remember. If your reading all the posts about low blood sugar in relation to diabetes its different, in really how you need to control it. Your spitting out to much insulin, and if you have too much sugary what ever, and the insulin of course is going to be spit out, the best way to handle it is to have a high protein snack/meal to even it out, and not wait for your blood sugar to bottom out, and have a bad yucky feeling, and mood. I've seen diabetics discuss the low blood sugar, and I don't tend to treat it like they do. So, keep that in mind. Not everyone reacts the same way to the same foods, so you'll have to try by trial and error to see what works. What worked for me, may not work for your daughter. You can get low blood sugar when your a diabetic, but just having low blood sugar is different. Just something to keep in mind when your reading thru things.

Have a great trip
 
Thank you everyone for all of your help. It is so good to hear how some of you handle this. Hypoglycemia is such a new thing to DH and me.

We leave in the morning for WDW. DD is doing pretty good. Had a melt down this morning while packing and I sent her to get a snack, within 30 minutes she is fine. Other than that, she has been doing great.

The white flour thing seem harder to deal with in many ways than the sugar. I told her when she is at WDW to just avoid sugar and if she has some white flour things that is alright. I think I read that the burger buns are now wheat, so that will work well, and I saw at Beach Club (where we are staying) they have a veggie wrap with a whole wheat wrap filled with veggies and beans (I think).

I will have internet access while at WDW (now that it is free to DVC members at the villas), so I may be popping back on here with more questions as we try to get through our first sugar free Disney trip.

OHHHHH!!!>............Does anyone know if there are Sugar Free Jelly Belly Jelly Beans at Disney? I tried to find some here in town (and I swear I remember seeing them when my mother was still alive because I got stuff like that for her), but I couldn't find them. Do they have them at the Candy Shops at Disney. DD is hoping for some of those!

DJ
 
I have read this tjread and I also helped the OP out on the restaurant board with some ways to control her DD from having high blood sugar at Disney but I have a question... hypoglycemia is low blood sugar... so if she is on a diet for that them would she not need high sugar/carb foods? I though she needed low sugar or " slow acting carb" options..
If her DD is going high would she not be hyperglycemic? It looks like everyone gave her tips for a hyperglycemic like I did... but I guess I am just a little confused... My DD is Type 1 diabetic and when she hypoglycemic she needs a fast acting carb... not something sugar free. Am I understanding this right??:confused3
 
Well, from that I have learned she needs to keep her blood sugar levels from spiking too high because when she has a lot of sugars it crashes really fast and that is when we have these terrible mood swings.

To be honest, I thought more sugars/carbs would be the thing too (and that is what we had been doing)--and that was before I really research the whole Hypoglycemic diet. It is actually very similar to a diabetic diet. She needs to have sugar. If she doesn't have any she has bad reactions...BUT....she can't spike it too high or she has these terrible crashes. SO she has to eat about 6-8 times a day, small meals with foods that aren't too high in sugar (but she does need some). It is confusing. But from what I have seen in her over the past week, it really helps a LOT.

I'm no expert. We are new to all of this, but this is my understanding and this is what we are doing.

Thanks again for all of your help!
DJ
 
Ahh.. gotcha.. she is having reactive hypoglycemia. I just wanted to make sure I understood.. I am moving this week and the very smallest things perplex me these days. have a great trip and I'm glad the diet is working !
 
Ahh.. gotcha.. she is having reactive hypoglycemia. I just wanted to make sure I understood.. I am moving this week and the very smallest things perplex me these days. have a great trip and I'm glad the diet is working !

Yes that's it. And Thanks! We are excited. Only 8 hours until we leave for the airport!
DJ
 
some great snacks i lover are the kashi go lean cereal, and the kashi granola bars. the regular ones. pretzels seam to do better than chips, etc. Not sure why.

One thing to keep in mind are condiments and sauces, they tend to be loaded with sugar. When your at wdw, at sit downs you can get almost any sauces on the side.
Use the sauces and condiments sparingly. Its one of those things, if your wanting to have a "cheat snack" or have lots of ketchup and mustard. Its a trade off.

Juices, pop, sports drinks, be careful, loaded with sugar. Again its a priority thing, I will drink water most of the time and sneak more fruit in.

Its great you are starting to notice, she gets edgy when she is hungry. That is great observance for you, and to get her on a better diet. Yea mom.

i had to weed thru things myself, and it still is a struggle because you have to read all the labels on the back of things to see whats really in things.
I will say my parents were great about letting me eat before dinner. Like at family outtings, family get togethers, they new, having me wait longer to eat wasn't a good idea, and I should get a snack asap.
Some things say low sugar, but not so much for me when I read the labels.
 
OHHHHH!!!>............Does anyone know if there are Sugar Free Jelly Belly Jelly Beans at Disney?

DJ

I think I mentioned this in my previous post but I do want to stress again that sugar free candy usually has sugar alcohols which can bring about terrible diarrhea.

Maybe you should investigate the Glycemic Index. There is a bunch about it on the internet.
 
First of all you need to learn how carbs, sugar and fiber work in food. The glycemic indexes are a good place to start. Sugars do act fast and cause problems but that does not mean a strict diet. You need to learn how to balance the diet with carbs and food that take a while to go through the system.

I need a nap, sorry, not making sense.

One ounce of soda pop has as much sugar as two tablespoonsful of peanut butter. Peanut butter has protein which, not sure how, when combined with sugars and carbs slows down how fast they are used.

My mom is diabetic and she eats ice cream, cakes, pies and cookies. She has a sound breakfast of bacon, suasage or peanut butter with sourdough toast, a block of cheese for nibbling and coffee with canned milk and sweet n low. and butter if real meat is used. A low sodium dinner with beans or potatos or rice, salad and meat and usually veggies somehow. She gets her cake but she has only a few bites and only at noon or midnight as a snack. She stops when she feels her sugars are going up.
 
I think I mentioned this in my previous post but I do want to stress again that sugar free candy usually has sugar alcohols which can bring about terrible diarrhea.

Maybe you should investigate the Glycemic Index. There is a bunch about it on the internet.

Thanks, I will look into it. My DD didn't have problems with diarrhea (I do when I have sugar free stuff, but it doesn't do that to her, but I know what you mean because it has happened to me so I don't eat sugar free candies any more).

Well we are back. Thank you guys for all of your advice and all of the information. I didn't do a good job planning snacks for the park (I will do better next time). Our next Disney trip is next spring on the cruise and that seems like it may be easier since there will be food around all of the time. At WDW it was hard to find the food she wanted when she needed it (she didn't want to eat my store bought snacks, and we spent a lot of time trying to find her food---my DD has control issues and teenage attitude along with all of this blood sugar stuff, but that is another story).

So again, thanks so much for all of the help. I still have a lot of learn and I am sure our future trips will go better.

DJ
 
I am new to this board (and new to dealing with hypoglycemia---well not new to 'dealing' with it, but new to the change in my DD's diet because of it. She just started this new diet last Saturday (and we are leaving for WDW this coming Sunday--bad timing.....BUT OH MY what a difference we see in our DD, but that is a whole other story).

Can anyone point me to threads that talk about sugar free food options at Disney World, and/or advice for parents taking kids (well she is 14, so really a teeenager, but she will always be my baby) with blood sugar problems to Disney?

I am sure it has been talked about before, so if anyone know of a thread they can direct me to, I would really appreciate it.

Thanks!
DJ
I understand the dilema you faced. I was diagnosed 2 years ago with Hypoglycemia/Pre Diabetic. It is NOT by any means an easy diet to adjust to.

I just hope she doesn't feel deprived at Disney not getting the treats she used to have (like Mickey Ice Cream bars and Jelly Belly Jelly Beans at Goofys Candy Store).

DJ

I used to feel deprived. But once you start to make smart decisions based on her reactions, it will be easy. For me, at Goofy's Candy Store, I'll opt for a peanut caramel apple in place of candy. I get the fiber in the apple and a little protein from the peanuts. Not a healthy choice in of itself, but one that doesn't throw me into a complete spiral.

I was going to bring nuts along for snacks (I thought proteins would be good), but I could bring some crackers too. I also picked up those protein South Beach Diet drink mix packets for the water bottles in the parks.

DJ
I haven't been able to try the south beach drink mixes, as Kraft cannot tell me all the ingredients listed as natural flavors ( I have a coconut allergy), but on the surface they seem like a good choice with the added protein.

You definitely have to be a label reader. I always look at the labels and then just put back the things w/ too much sugar in them.

One more thing to remember. If your reading all the posts about low blood sugar in relation to diabetes its different, in really how you need to control it. Your spitting out to much insulin, and if you have too much sugary what ever, and the insulin of course is going to be spit out, the best way to handle it is to have a high protein snack/meal to even it out, and not wait for your blood sugar to bottom out, and have a bad yucky feeling, and mood. I've seen diabetics discuss the low blood sugar, and I don't tend to treat it like they do. So, keep that in mind. Not everyone reacts the same way to the same foods, so you'll have to try by trial and error to see what works. What worked for me, may not work for your daughter. You can get low blood sugar when your a diabetic, but just having low blood sugar is different. Just something to keep in mind when your reading thru things.

Have a great trip
Very good points. Being a label reader is invaluable. You also need to know how to do the math for figure the net carbs for the item. Start with: Total Carbohydrates
subtract: Dietary Fiber
subtract: Sugar Alcohols
subtract: Hydrogenated Starch Hydrolysate
subtract: Glycerine
the balance equals: Effective Carb Count


I also agree that although hypoglycemia is similiar to a diabetic in many ways, it is not the same and needs to be addressed as such.


Well we are back. Thank you guys for all of your advice and all of the information. I didn't do a good job planning snacks for the park (I will do better next time). Our next Disney trip is next spring on the cruise and that seems like it may be easier since there will be food around all of the time. At WDW it was hard to find the food she wanted when she needed it (she didn't want to eat my store bought snacks, and we spent a lot of time trying to find her food---my DD has control issues and teenage attitude along with all of this blood sugar stuff, but that is another story).

So again, thanks so much for all of the help. I still have a lot of learn and I am sure our future trips will go better.

DJ
Welcome back. Having the outlook of next time will be better is a great attitude to have. Many will look at obstacles as failures. It will take months to get used to the process the reactions and the diet. I bolded one sentence above......I can only speak for myself, but I know when I am having a bad episode, nothing pleases me. I now recognize it, but still I sometimes need my DP to INSIST I eat whatever she tells me too. I may get a bit pissy at the moment, but when I stabilize I understand what happened. You will learn to recognize your DD patterns. For me, always having a package of nuts or jerky on-hand is a must. I can't stand most store bougt jerky and make my own.

For me, eating on a schedule is huge for my control. I also have problems in hot weather. Many hypoglycemics have issues with heat.

Trust me it gets easier. And WDW is one of the easiest places to make smart meal choices. With the exception of the dining plan current set up. Many of the desserts although sugar free are so high in carbs they are on my no no list. I wish those of use with medical reasons could have the option of a salad in place of dessert, but that is a whole other topic.

Good luck with everything. Keep us updated, and tell DD it will get easier.
 














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