Ashton's labs were not that high even at diagnosis(dx). Maybe a couple times with fever, but at dx, her WBC was about 10,000. Is there a name for it?? l
Is there a reason to worry about her having leukemia other than her high white count? Obviously, if she has had this for 4 years, it's just some benign thing that she has. Do they check her regularly b/c of this?
Ashton's ANC was low, her RBC, hemoglobin and platelets were low. She has had 7 transfusions over the course a couple months when she first started chemo. This is on the low end considering all the chemo kids we knew. Some had them daily.
Has she been a well child? Meaning, since they are high, does she fight off illnesses easier? That COULD be a perk as long as nothing is wrong with her otherwise.
Thank you for the well wishes and YES God has blessed us and thank you for the future blessing!
I will keep yours in my prayers.
Lori
Hi Lori,
Actually Beka has not been a healthy child. When she is ill, generally her white cells are "normal" but when she's healthy, they are not. We've chased all kinds of trails trying to figure it out. She has severe lung damage from having RSV as a baby and not being treated properly by our old pediatrician. She is tiny for her age and in fact, she's been tested for Cystic Fibrosis twice.
We continue to get her white cells tested every year - for a while there we spent a LOT of time at the hospital every couple weeks. Obviously we didn't go through near what you did but it's been rough at times. We had to drive 1 1/2 hours today to see her pulmonologist today. She's been hooked to her nebulizer this summer due to the severe forest fires here in MT.
Please continue to keep me posted on Ashton. We will pray for her as a family.
Shannon


THANKFUL for those angels
!! I feel my and DH faith journey was on fast forward, and if you ever want to meet a child of complete Christian faith-Ashton has such a wonderful view of Jesus, and of life. Most kids who have a battle to win, usually do have a better view and lots of empathy!
AND LOVE IT!
becasue SHE wants to see her face light up the first time in WDW-understandable, bbbbbuuuuuttttttttt, I really want to take her since they have no plans in the near future to go!