Help, Pixie Dust and Prayers... Update 4/27

[missymouse3367]

Hello everyone. I wanted to let you all know why I haven't been on the boards much, I have been really busy. I have a friend who is in the hospital. My friend is a 16 y/o boy with Downs Syndrome. This boy, Michael, came to my office after recovering from a DVT. Michael and I have become very close. The first time he came into the office he was very combative, I stayed with him the entire visit and we bonded. He would only let people do blood draws,or the doctor exam unless I was there. I am the only one he has ever let give him a flu shot, it usually took 4 people to hold him down. He has had alot of hospital time, more than most .
He has named me "His Ariel". He also shares the love of Disney. His speach isn't very good, but says Mickey Mouse very clearly. His mom wants to take him to Disney when he gets well. The are a few things that are stopping her, money
(due to time lost at work) and his step dad is out of work. I am trying to make this happen for them. I would appreciate any suggestions that you have to make this dream come true.

Your Friend,
Missy

Update: Michael is still in the hospital, but doing rehab. He has lost alot of weight and muscle coordination. They hope he will be going home in a week. The down side is he will have to have a feeding tube, he keeps aspirating. The Drs seem to think it will be a temporary thing. He came to see me at the store yesterday, I don't know who was more excited he or I. Michael still has the DVT's and will have to be a blood thinners.
Thanks Everyone for all of your prayers.
Missy

 

[mickey65]

Maybe the Sunshine Foundation?

 

[gumdrop]

I'm sorry to hear about Michael I hope that he recovers soon. I don't know if this will help you, but in our area we do a lot of dinner-type fundraising for children who are sick or are undergoing a serious operation where the family needs financial assitance. The family hosts a spaghetti, beefsteak or other type of meal fundraiser at a local fireman's hall for the child. They are always very successful with a good turnout.

 

[nativetxn]

I don't know what programs are out there to help young people like Michael.

I sure hope he recovers soon. I sounds like he has a very caring friend in you.

 

[Dan Murphy]

No ideas here either, Missy, but do hope Michael does well with people like you arond him. {{hugs}}

 

[missymouse3367]

Thanks Everyone for your advice and well wishes. Last night they thought Michael wasn't getting oxygen to his brain, so they were going to run some test today. They started to take him down for the test and he started getting combative, a good sign. I'll keep you updated on his progress.

 

[janette]

Here's a link to some organizations that might help. I hope he can make his dream come true. Keep us posted and maybe we can help with some things.

Wish Fulfillment Organizations for Children

 

[missymouse3367]

janette Thanks for the link. I will check it out.