jenanderson
DIS Veteran
- Joined
- Feb 7, 2003
- Messages
- 2,965
Hello Everyone! I am hoping for some advice from everyone here with how to make this trip a bit smoother for my DS (11) and the crazy number of medical issues he has. The issues are not all major but when you add them all up together, it becomes a bit messy to travel with him (laryngeal cleft-so he chokes easily, immune system deficiency-lots of medications, cerebral palsy-weak muscles, etc).
DS does use a wheelchair at WDW and we often get some "looks" because he will get up and transfer himself onto rides. He will sometimes stand and stretch as well as his muscles get tight. The "looks" don't really bother me any more because we there is no way he could tackle the world without it. We have been to WDW many times and have always had a GAC for DS. We have also cruised before and have flown before but I am a bit nervous about this whole trip.
One of the issues with DS has to do with vertigo like symptoms. DS has had surgery with his ears, nose, sinus cavities and throat. As a result, he is hyper sensitive to motion type things and his doctor puts him on some strong medication before we go to Disney that he will take the whole trip. It complicates things because it adds fatigue to his already weak muscles and it makes him super sensitive to the sunlight (I know, Florida in August - but we usually plan really well for it because this is when we are able to go). We have flown to WDW one time while using the medication and it went okay but DS was still super nervous the whole time. The past 2 trips we have drove but we are flying again and DS is scared about feeling sick on the plane. I am hoping we get seats together (flying SW - debating paying extra to pre-assign seats) and know that I can talk him through it again. I will also talk with the flight attendants about getting ginger ale as quickly as we can once the flight takes off. I would pack it but we can't bring it through security. So the flight is our first concern.
We are cruising on the Dream the day after we arrive. I am terrified because the new terminal changes do not work well for us. In the past, we have gotten to port early and found seats in the terminal. We have been able to get an early boarding number and get on the ship so that DS can eat his lunch at a reasonable time (medication will make him feel bad if he doesn't eat) and we can find a shaded place for him to relax and take it all in. If you haven't heard, Disney changed the boarding policies and now I am concerned about how this is going to work for us because now we have to wait until a later time to even arrive at port and then I am worried that it will be a mess because this is a new policy and people will be creating even longer lines.
Finally, after the cruise, we will go to WDW. We are staying at the Poly because the monorail makes it so easy to get around quickly. We will have a wheelchair for him and are planning days based on how he is doing. I can't find his GAC from the last trip but know where to go and how to request the new one. So WDW is the least of my worries.
I am sorry this has gotten kind of long but if anyone has advice about dealing with the first part of our trip....I would love it.
Thanks!
Jen
DS does use a wheelchair at WDW and we often get some "looks" because he will get up and transfer himself onto rides. He will sometimes stand and stretch as well as his muscles get tight. The "looks" don't really bother me any more because we there is no way he could tackle the world without it. We have been to WDW many times and have always had a GAC for DS. We have also cruised before and have flown before but I am a bit nervous about this whole trip.
One of the issues with DS has to do with vertigo like symptoms. DS has had surgery with his ears, nose, sinus cavities and throat. As a result, he is hyper sensitive to motion type things and his doctor puts him on some strong medication before we go to Disney that he will take the whole trip. It complicates things because it adds fatigue to his already weak muscles and it makes him super sensitive to the sunlight (I know, Florida in August - but we usually plan really well for it because this is when we are able to go). We have flown to WDW one time while using the medication and it went okay but DS was still super nervous the whole time. The past 2 trips we have drove but we are flying again and DS is scared about feeling sick on the plane. I am hoping we get seats together (flying SW - debating paying extra to pre-assign seats) and know that I can talk him through it again. I will also talk with the flight attendants about getting ginger ale as quickly as we can once the flight takes off. I would pack it but we can't bring it through security. So the flight is our first concern.
We are cruising on the Dream the day after we arrive. I am terrified because the new terminal changes do not work well for us. In the past, we have gotten to port early and found seats in the terminal. We have been able to get an early boarding number and get on the ship so that DS can eat his lunch at a reasonable time (medication will make him feel bad if he doesn't eat) and we can find a shaded place for him to relax and take it all in. If you haven't heard, Disney changed the boarding policies and now I am concerned about how this is going to work for us because now we have to wait until a later time to even arrive at port and then I am worried that it will be a mess because this is a new policy and people will be creating even longer lines.
Finally, after the cruise, we will go to WDW. We are staying at the Poly because the monorail makes it so easy to get around quickly. We will have a wheelchair for him and are planning days based on how he is doing. I can't find his GAC from the last trip but know where to go and how to request the new one. So WDW is the least of my worries.
I am sorry this has gotten kind of long but if anyone has advice about dealing with the first part of our trip....I would love it.
Thanks!
Jen