Hi all! I have been reading and learning a lot. Can I ask for some advice, please and thank you?
We will be taking our first family trip to Disneyworld in June. I have never been, but my husband went a couple times as a child. My kids will be 17, 9, 6 and 4 when we travel.
My youngest has ectodermal dysplasia. He does not sweat efficiently and can overheat quickly. We live in hot and sunny Texas, so we are used to dealing with the heat and the problems it can cause him. We usually do outdoor activities (zoo, Seaworld, etc) in the morning, take along mist bottles and ice packs and frozen water bottles. Will there be plenty of shady or air-conditioned places to duck into if necessary? We are already planning mid-day breaks in our room if necessary.
He also has hand and foot differences that make long distances tiring for him. (He walks, runs, jumps like a pro, but wears out quickly) He usually walks around a bit when we are out, but spends a lot of his time in a stroller. Will we be able to take his stroller everywhere we go, or are there places we will need to leave it behind? I'm trying to decide if I need to take a baby carrier, too. (worried about overheating him with that, though).
My six year old has spina bifida and also has trouble with tiring during long walks, but will probably not want to ride in a stroller. I am trying to decide if I should rent a double, bring a sit and stand, or just swap the boys in and out of one stroller. He is definitely too big to carry for any length of time. Any advice for me there? We are driving there, so I don't have to worry about flying with strollers.
On top of all this we will be dealing with latex, bee sting, shellfish and nut allergies (and I have the epi-pens to prove it!). I am pretty nervous about our chances of making it through this trip with everyone healthy! The kids are beyond excited, though, and so is my husband. I'm the worrier of the bunch, it must come with being the mama.
We will be taking our first family trip to Disneyworld in June. I have never been, but my husband went a couple times as a child. My kids will be 17, 9, 6 and 4 when we travel.
My youngest has ectodermal dysplasia. He does not sweat efficiently and can overheat quickly. We live in hot and sunny Texas, so we are used to dealing with the heat and the problems it can cause him. We usually do outdoor activities (zoo, Seaworld, etc) in the morning, take along mist bottles and ice packs and frozen water bottles. Will there be plenty of shady or air-conditioned places to duck into if necessary? We are already planning mid-day breaks in our room if necessary.
He also has hand and foot differences that make long distances tiring for him. (He walks, runs, jumps like a pro, but wears out quickly) He usually walks around a bit when we are out, but spends a lot of his time in a stroller. Will we be able to take his stroller everywhere we go, or are there places we will need to leave it behind? I'm trying to decide if I need to take a baby carrier, too. (worried about overheating him with that, though).
My six year old has spina bifida and also has trouble with tiring during long walks, but will probably not want to ride in a stroller. I am trying to decide if I should rent a double, bring a sit and stand, or just swap the boys in and out of one stroller. He is definitely too big to carry for any length of time. Any advice for me there? We are driving there, so I don't have to worry about flying with strollers.
On top of all this we will be dealing with latex, bee sting, shellfish and nut allergies (and I have the epi-pens to prove it!). I am pretty nervous about our chances of making it through this trip with everyone healthy! The kids are beyond excited, though, and so is my husband. I'm the worrier of the bunch, it must come with being the mama.
