Fibromyalgia Thread

[mommasita]

Tigg: I am eying those, and SO want one. Hope you enjoy it! Sounds so cozy
So sorry about the headaches....and the rest. Any appointments coming up to discuss it?

SeaSpray: I am sorry you have to deal with that. It is so full of anxiety.. It is so easy to say try to relax, I know, but the stress won't help you. I wish I had something magical to say or do. But sending lots of healing and good wishes.

SOOO glad I changed my physio until tomorrow with the snow coming up later in the week. Waited all day, but they called me back to say ok..

To everyone

 

[tiggspring]

Did the Dis put us in a new category or have I been clueless for along time?

Well the storm coming from the Midwest must be a doozy. I awoke with a pain soo bad. I felt like I was a lg tuning fork that had just been struck. Pain just vibrating head to toe with my hands/feet numb but big balls of hot pain if you know what I mean. Slept late DH and kids fended for themselves and drove dd8 to school so I could get extra half hr. Luckily Vicodin seems to be working so maybe just maybe I will get something done today.


Sending pain free vibes and pixie dust

 

[mommasita]

I didn't notice a change????????

Ugh, it doesn't sound pretty.(the storm, not you, lol). Sorry you are hurting, glad he pinched in, and hoping you can rest and feel better.

I had physio, and am just BLAH today.. I went to get some food, which I normally don't rush to do, but I know I will be sore tomorrow and the next, and the weather looks downright crappy. I am sure I won't feel like moving..

Hugs and painfree vibes to all.

 

[tiggspring]

We are now listed as being on DisAbilities community board instead of Disabilities.


Well I got my feet under me and am cleaning up a storm

 

[tiggspring]

We are now listed as being on DisAbilities community board instead of Disabilities.


Well I got my feet under me and am cleaning up a storm

 

[mommasita]

We are now listed as being on DisAbilities community board instead of Disabilities.


Well I got my feet under me and am cleaning up a storm

Oh, that is how much I pay attention. Great Moderator am I

WOOHOO! Good going. Try not to overdo it.

 

[tiggspring]

Ms Moderator

You wouldn't happen to know how many pages we can rack up before we need to start a new thread.

Another productive day!!!!! Woke up with migraine but was up and about by 11. YEA!

Pain free vibes and pixie dust!

 

[SeaSpray]

Tigg: I am eying those, and SO want one. Hope you enjoy it! Sounds so cozy
So sorry about the headaches....and the rest. Any appointments coming up to discuss it?

SeaSpray: I am sorry you have to deal with that. It is so full of anxiety.. It is so easy to say try to relax, I know, but the stress won't help you. I wish I had something magical to say or do. But sending lots of healing and good wishes.

SOOO glad I changed my physio until tomorrow with the snow coming up later in the week. Waited all day, but they called me back to say ok..

To everyone

I saw my doctor today and got a note to go back on Friday (night). Then I am off on Saturday, then go back again on Sunday. He gave me the name of a fibro specialist to see; he thinks that I should not work and instead apply for disability. I'm just not ready to do that. I'm going back to work, and I'll see how it goes. Trying to be optimistic here.

Did the Dis put us in a new category or have I been clueless for along time?

Well the storm coming from the Midwest must be a doozy. I awoke with a pain soo bad. I felt like I was a lg tuning fork that had just been struck. Pain just vibrating head to toe with my hands/feet numb but big balls of hot pain if you know what I mean. Slept late DH and kids fended for themselves and drove dd8 to school so I could get extra half hr. Luckily Vicodin seems to be working so maybe just maybe I will get something done today.


Sending pain free vibes and pixie dust

You really described that pain very well! That's exactly the pain that I get in my jaw. Just like a painful "vibrating" feeling that hurts to the core.

I didn't notice a change????????

Ugh, it doesn't sound pretty.(the storm, not you, lol). Sorry you are hurting, glad he pinched in, and hoping you can rest and feel better.

I had physio, and am just BLAH today.. I went to get some food, which I normally don't rush to do, but I know I will be sore tomorrow and the next, and the weather looks downright crappy. I am sure I won't feel like moving..

Hugs and painfree vibes to all.

How are you feeling today after the physio yesterday? I was supposed to go food shopping today but I never made it there. It's been monsooning here for the last couple of days. But the rain is better than snow.

Ms Moderator

You wouldn't happen to know how many pages we can rack up before we need to start a new thread.

Another productive day!!!!! Woke up with migraine but was up and about by 11. YEA!

Pain free vibes and pixie dust!

YAY for your productive day today!!!

 

[mommasita]

I believe it is 250 pages.. Glad you are so productive. Wanna come over

Physio was ok. I slept all evening after with my heating pad. Rather depressing appointment all around, from the pysch to therapy.. I will get into it when I won't cry to type it. .. I just upside down and confused..

I only picked up a few things, so I am going to Costco today, and just looking outside SUCKS.. IT would be pretty and blah blah if it were December, but it isn't.. I think I am PMS'ing ..

Seaspray: I hope Friday goes quickly for you, and your new Dr is a good addition. That is so huge in my opinion. A caring Dr, with great knowledge.

 

[tiggspring]

How is everybody this week? Preparing for the big storm to hit here in PA.

 

[mommasita]

Ugh.. SNOW
Hoping we miss it. FED..UP .. How much are you supposed to be getting?

I am doing ok I guess. Today started off with a tiny headache. I tried to fight it with liquid Advil, ended up taking MIgraine meds around 6, very glad they worked. It has been weeks without one, so guess I was due.

How are your headaches ?

My kids are off this week on break, so it is kind of nice without the early morning chaos of alarm clocks and all that.. I am a little down, hoping it passes quickly.. My last pysio appt left me down, and I haven't shaken it. I know I will, just sucks I guess.

Well, back to sleep..

 

[tiggspring]

I'm doing much better. Still getting auras and/or short migraines everyday but my energy is coming back and improving everyday.

We are due for 9 to 14 inches tonight. Nice blue sky day at moment. Sorry physio was so hard.

Seaspray how are you doing? Hope you are doing better.

Sending pain free vibes and pixie dust to all!

 

[mommasita]

stay safe and warm..... I see some here Thursday.

I had a massive blow out with my Mother this morning, and her husband. I lost it, not proud, but he was chirping in the background while I was talking. Saying I should care more, blah blah. I told her tell him to go F himself..
VERY unlike me, but I can't stand the hypocrisy.. Him telling her I am wrong, she is not sounding like marbles in her mouth, then telling me the opposite..
Tried to tell her love is NOT always agreeing, rather being honest.
So I have now cried for hours, with a migraine to start the day...On my way to the pharmacy as I am out of my pills, thankfully they are covered 92$ for 6 pills, then pick up McDonald's for my son and I..

I'm sorry to rant, I just need to type it out I guess. Feeling like the crap daughter, but in my heart of hearts I know I care, I just can't do anything more. Perhaps I could visit more, but lately I haven't been 100% myself..

THinking of you too Seaspray, and hoping you are doing as well as possible.

to everyone... Wish I could wrap that around myself today..

 

[SeaSpray]

Hi everyone

I'm doing ok. I worked Friday night, off on Saturday, worked Sunday 2-7pm, worked Monday night 6pm-midnight. I go in to work tonight at 6pm too.

So far work is going ok, but I'm sleeping almost all of the time except while at work. Not a great quality of life, but I'm managing, so far.

Pain hasn't been too bad which I think is due mainly to being on prednisone daily, plus a few Advil here and there. My head is foggy a lot; I'll be at work reading numbers back to a customer and I'm either not seeing them correctly, or I think my brain isn't translating what I'm seeing correctly.

I need to go put something together for dinner soon, before I go to work. DH has been pretty good about us ordering dinner in, or having easy meals. I just hate to spend that extra money ordering food in, when we have food in the fridge/freezer. I think I might just throw something in the oven, from the freezer. blah.

mommasita: I'm glad that you were able to keep your migraine at bay. Once they set it, it's so hard to fight the pain. I'm sorry that the physio has left you shaken. It is so hard to fight feelings of depression when we feel so lousy all the time with no let-up.
I hope that your kids have a nice week off from school.

tigg: I'm glad that your migraines seem to be lessening. I get those auras too (optical migraines), and even after 20+ years of them, they still weird me out. I' glad that you're getting some energy back.

 

[SeaSpray]

stay safe and warm..... I see some here Thursday.

I had a massive blow out with my Mother this morning, and her husband. I lost it, not proud, but he was chirping in the background while I was talking. Saying I should care more, blah blah. I told her tell him to go F himself..
VERY unlike me, but I can't stand the hypocrisy.. Him telling her I am wrong, she is not sounding like marbles in her mouth, then telling me the opposite..
Tried to tell her love is NOT always agreeing, rather being honest.
So I have now cried for hours, with a migraine to start the day...On my way to the pharmacy as I am out of my pills, thankfully they are covered 92$ for 6 pills, then pick up McDonald's for my son and I..

I'm sorry to rant, I just need to type it out I guess. Feeling like the crap daughter, but in my heart of hearts I know I care, I just can't do anything more. Perhaps I could visit more, but lately I haven't been 100% myself..

THinking of you too Seaspray, and hoping you are doing as well as possible.

to everyone... Wish I could wrap that around myself today..

We were typing at the same time!

Oh I am so sorry about what happened this morning with your mother and her husband. Apparently they don't understand how bad you are feeling, physically and every other way. Its so easy for people to look at us and think they see a healthy person.

Please don't be too hard on yourself. YOU know your own situation and the reality of it. You have your own family to take care of. You have limited energy and strength, and your mom and her husband seem to not want to accept that, and instead try and make you feel guilty.

You are not a bad daughter, you are someone who is juggling a ridiculous disease while doing the best that you can.

We are here for you.

 

[tiggspring]

stay safe and warm..... I see some here Thursday.

I had a massive blow out with my Mother this morning, and her husband. I lost it, not proud, but he was chirping in the background while I was talking. Saying I should care more, blah blah. I told her tell him to go F himself..
VERY unlike me, but I can't stand the hypocrisy.. Him telling her I am wrong, she is not sounding like marbles in her mouth, then telling me the opposite..
Tried to tell her love is NOT always agreeing, rather being honest.
So I have now cried for hours, with a migraine to start the day...On my way to the pharmacy as I am out of my pills, thankfully they are covered 92$ for 6 pills, then pick up McDonald's for my son and I..

I'm sorry to rant, I just need to type it out I guess. Feeling like the crap daughter, but in my heart of hearts I know I care, I just can't do anything more. Perhaps I could visit more, but lately I haven't been 100% myself..

THinking of you too Seaspray, and hoping you are doing as well as possible.

to everyone... Wish I could wrap that around myself today..

So sorry ((((HUGS)))

I know what you mean about family. Mine is very toxic and dysfunctional. The best thing I did for my health was to move 11hrs away. I can maintain a relationship without so much toxicity. Its hard wanting to stay physically and emotionally healthy and still try to be a good family member. I have to remind myself that my kids come first so if my mom is driving me crazy then for my kids sake I back off. Doing what's best for you doesn't make you a bad daughter but a good wife and mom. Vent away thats what we are here for

(((HUGS))) from PA!

 

[mommasita]

Thank you guys (gals)

Dealing with mental illness, along with addiction isn't easy.. Some days I dream about moving, but it is what it is.

SeaSpray: That sounds like a lot of work. Hope you are resting enough when you can

 

[SeaSpray]

*ugh* Hi everyone:

Last Sunday I fell backwards about 2 feet down while trying to climb in to my DH's truck. I was taking it to work because we had a snow storm and had a couple of feet of snow on the ground.

While trying to break my fall I grabbed onto the weather stripping and ripped it out and broke off a few of my fingernails in the process.

I fell back and landed on my back and fortunately my head landed in some snow but I still was stunned for a moment and just laid there. After a moment I realized that I was basically OK and got up, climbed in to the truck, and went to work.

On Monday I started seeing a big blurry spot in my field of vision as well as random flashes of light way off to the right side of my periferal vision. By Monday night it was really freaking me out.

On Tuesday morning I called my doctors (rheumatologist and primary care) and they referred me to an ophthalmologist. I couldn't get an appt until Wednesday morning. I was freaking out, hoping that my retina wasn't detaching.

So the ophthalmologist gave me a very good exam, 3-4 sets of different eye drops, and told me that my retina looks ok for now, but that the "gel" had detached from the retina, at the back of my eye. He is having me see a retinal specialist next week.

So I didn't go to work Tuesday or Wednesday. Thursday is my regular night off. So now it's Friday and in a few minutes I will be getting dressed to go to work. I feel so crummy, but I have to go in because otherwise I would need a doctors note because it would be 3 days out. I guess I could get a note, but after being out for 3 weeks recently, I'm worried (again) about being fired.

My vision is still blurry and according to the doctor, it won't heal or go away. The new huge blurry floater will always be there now. I work for 6 hours straight, with one 15-minute break, on a computer, taking customer orders over the phone. I wish I could disappear right now. I don't want to let work down, or my DH down, or myself down, but with everything else, and now this on top of it, I really feel like this life is just one big joke.

Oh, and on top of that, there's no food in the house because I haven't gone food shopping this week due to everything (fibro, eyes, IBS, etc), so now I'm going to work and not leaving anything for dinner.

Thanks for letting me vent here. I'm going to get dressed for work now. I just feel so defeated.

 

[tiggspring]

*ugh* Hi everyone:

Last Sunday I fell backwards about 2 feet down while trying to climb in to my DH's truck. I was taking it to work because we had a snow storm and had a couple of feet of snow on the ground.

While trying to break my fall I grabbed onto the weather stripping and ripped it out and broke off a few of my fingernails in the process.

I fell back and landed on my back and fortunately my head landed in some snow but I still was stunned for a moment and just laid there. After a moment I realized that I was basically OK and got up, climbed in to the truck, and went to work.

On Monday I started seeing a big blurry spot in my field of vision as well as random flashes of light way off to the right side of my periferal vision. By Monday night it was really freaking me out.

On Tuesday morning I called my doctors (rheumatologist and primary care) and they referred me to an ophthalmologist. I couldn't get an appt until Wednesday morning. I was freaking out, hoping that my retina wasn't detaching.

So the ophthalmologist gave me a very good exam, 3-4 sets of different eye drops, and told me that my retina looks ok for now, but that the "gel" had detached from the retina, at the back of my eye. He is having me see a retinal specialist next week.

So I didn't go to work Tuesday or Wednesday. Thursday is my regular night off. So now it's Friday and in a few minutes I will be getting dressed to go to work. I feel so crummy, but I have to go in because otherwise I would need a doctors note because it would be 3 days out. I guess I could get a note, but after being out for 3 weeks recently, I'm worried (again) about being fired.

My vision is still blurry and according to the doctor, it won't heal or go away. The new huge blurry floater will always be there now. I work for 6 hours straight, with one 15-minute break, on a computer, taking customer orders over the phone. I wish I could disappear right now. I don't want to let work down, or my DH down, or myself down, but with everything else, and now this on top of it, I really feel like this life is just one big joke.

Oh, and on top of that, there's no food in the house because I haven't gone food shopping this week due to everything (fibro, eyes, IBS, etc), so now I'm going to work and not leaving anything for dinner.

Thanks for letting me vent here. I'm going to get dressed for work now. I just feel so defeated.

Oh SEASPRAY! I'm sooooo sorry

Really a case of when it rains it POURS.

My husband has floaters and blind spots from glaucoma and its really frustrating. You get used to it like everything but heck of a thing to get used to. It has been one thing after the other here too But that's for another day. SENDING HEALING THOUGHTS FROM PA

 

[SeaSpray]

Oh SEASPRAY! I'm sooooo sorry

Really a case of when it rains it POURS.

My husband has floaters and blind spots from glaucoma and its really frustrating. You get used to it like everything but heck of a thing to get used to. It has been one thing after the other here too But that's for another day. SENDING HEALING THOUGHTS FROM PA

Thanks, tigg

I actually had a pretty night at work last night, even though the computer screen looked blurry. It was steady without being crazy-busy.

DH and DSs managed on their own for dinner last night; I think they had soup and PB&J sandwiches. lol DH and I went food shopping today, and now the house is stocked again, but I ended up with bad muscle spasms in my lower back, a result of the fall from the truck last week.

I guess I will just have to get used to these new floaters/blurry areas, since there is nothing they can do about it anyway. The doctor mentioned that the pressure inside my eyes is high, which I think he said can be an indicator of glaucoma. I was fairly overwhelmed with everything he was telling me at the time. I'm glad that I'll be seeing another doctor next week where I can ask more questions and hopefully remember what he tells me. lol

How is everything going with you? You said it's one thing after another. I'm sorry to hear that



How is everyone else doing?? I hope everyone is hanging in there. :groupghug: