Fibromyalgia Thread

:idea: I'm moving to Disney world!! Anyone want to sponser me? :rolleyes1It would be a great research project on how stress or lack there of effects Fibro :lmao:

Sign me up for that study. Hope they like pets......
 
Hi everyone:wave::wave:

THe board has been very quiet. Guess everone fighting the weather and their Fibro.

Bright eyes how did the job thing go?

Eduke how are the furries doing?


Well it's is still snowing in the mountains outside of Pittsburgh. We have gotten about another 10-12 inches on top of our 28 :scared1:We'll know how much when DH starts shoveling today. Some streets in Pittsburgh have not been plowed all week! Makes me gald we live in the mountains where they are better at keeping the roads clean. Kids have had whole week out and tomorrow is a professional day for the teachers. In some ways it has been a big blessing for our very busy household. DH and I have been so tired. I really needed a whole week with no runing around. Since it hasn't stopped snowing since Sunday and DH home no shoveling for me :worship: and all those paper plates and cups I got are really comming in handy with the gang all home:rotfl:. I'm still feeling pretty good only a headache yesterday so I'm finally getting some things done despite the kids being home :cool1: DH has great job benifit that paid him for days they closed :worship: and the lights STAYED ON!!!! First time that has ever happend in a bad storm. SO I feel quite blessed.

But it is a mess. Running very low on oil, tires on van need to be repalced and we are waiting on the special order (why van tires special order I dont know :confused3) so it runs bad in the snow right now.

New Kitty's out of their cages and intergrating quite nicely with family considering they were wild.

Sending Pain free vibes :goodvibes Pixie dust to allpixiedust:
 
Hi everyone:wave::wave:

THe board has been very quiet. Guess everone fighting the weather and their Fibro.

Bright eyes how did the job thing go?

Eduke how are the furries doing?


Well it's is still snowing in the mountains outside of Pittsburgh. We have gotten about another 10-12 inches on top of our 28 :scared1:We'll know how much when DH starts shoveling today. Some streets in Pittsburgh have not been plowed all week! Makes me gald we live in the mountains where they are better at keeping the roads clean. Kids have had whole week out and tomorrow is a professional day for the teachers. In some ways it has been a big blessing for our very busy household. DH and I have been so tired. I really needed a whole week with no runing around. Since it hasn't stopped snowing since Sunday and DH home no shoveling for me :worship: and all those paper plates and cups I got are really comming in handy with the gang all home:rotfl:. I'm still feeling pretty good only a headache yesterday so I'm finally getting some things done despite the kids being home :cool1: DH has great job benifit that paid him for days they closed :worship: and the lights STAYED ON!!!! First time that has ever happend in a bad storm. SO I feel quite blessed.

But it is a mess. Running very low on oil, tires on van need to be repalced and we are waiting on the special order (why van tires special order I dont know :confused3) so it runs bad in the snow right now.

New Kitty's out of their cages and intergrating quite nicely with family considering they were wild.

Sending Pain free vibes :goodvibes Pixie dust to allpixiedust:

I am glad the snow hasn't been so horrible for you. I bet your kids loved the time off. Isn't it nice to get a break from the routine? We were slated to get it and they closed everything and we ended up in this pocket that got an inch. We got very lucky with that. Glad the kitties are doing well. I love their names. Mine are Josie 7, choc lab, kitties; Izzadore 11, Princess & Tinkerbell (sisters) age almost 2. They bring so much joy to the house but it is hard when they get sick. I am lucky because I have been able to work from home this week and take care of him. Tuesday he will get the stitches out and can ease thing up a bit. My fibro was bad earlier this week but seems to be a bit better with some additional sleep.

Hope everybody else is doing ok, havn't seen chell lately or momolie or toocherie.... are you guys ok? (sorry I don't know everybody but I hope everyone is well!)

Stay warm & pain free!

Erika
 
:idea: I'm moving to Disney world!! Anyone want to sponser me? :rolleyes1It would be a great research project on how stress or lack there of effects Fibro :lmao:


Oh heck ya, I'm coming with you!! I had to rest for a day and were not able to be at the parks for as long as I wanted, but, hey, I was still at Disney!!!


The job fair didn't go - I slept in and missed it~!! So I am going to submit my application online.

Stephanie
 

Just wondering if you guys have ever had pain on the TOPS of your feet. Every day I wear orthodics and whether I am standing all day or sitting in class most of the day, EVERY day ALL day the tops of my feet are very sore.

I put the heating pad on them but it doesnt help much. It's like the tendons on the top of my feet are so sore and painful.

Just wondering if anyone has had this happen and what you do for it.
 
Just wondering if you guys have ever had pain on the TOPS of your feet. Every day I wear orthodics and whether I am standing all day or sitting in class most of the day, EVERY day ALL day the tops of my feet are very sore.

I put the heating pad on them but it doesnt help much. It's like the tendons on the top of my feet are so sore and painful.

Just wondering if anyone has had this happen and what you do for it.

Hi Bright!

My feet only bother me when I change shoes and sometimes the tops do hurt. It always seems like a muscle type pain to me though and usually passes like everything else. I don't find anything particularly helpful with this ( wish I could help!) Hope ur feeling better soon!

Erika
 
Hi Bright!

My feet only bother me when I change shoes and sometimes the tops do hurt. It always seems like a muscle type pain to me though and usually passes like everything else. I don't find anything particularly helpful with this ( wish I could help!) Hope ur feeling better soon!

Erika


Thanks for the reply Erika. I don't know what the problem is, I wear New balance running shoes with my orthodics and they still hurt all the time!

I have been in a flare for the last few days, went to bed early last night, and am going now. Homework piling up all due by Friday :eek: But I am so tired I do not care AT ALL right now.

Hope everyone is feeling better than I am. I am going to stop whining now. :upsidedow Goodnight have a good day everyone.

Stephanie
 
Hi everyone--things have been not so good here.

First, my Mom has fallen twice in the last two weeks and we had to call the paramedics each time. Thankfully nothing serious--she spent a week in respite care/assisted living but wanted to go home which she did yesterday. That meant me carrying in all her stuff, making her bed, doing her grocery shopping etc.

Then my best friend and employee fell last week and shattered her shoulder. She has surgery on Tuesday (very dicey) and came home Wednesday and is staying with me. Which means we have company each night (she was with me before the surgery too) and more often than not I end up cooking.

Top it off, I have been having this pain in my leg for over two weeks that just won't go away--it now seems to be localizing in the area where the upper thigh meets the pelvis. And I'm sure all the extra activity lately has not helped. The worst part is getting up after sitting for a while. With my friend out that means I am short-handed at the office so I am doing EVERYTHING. So not a happy camper and February has not been a good month here.

I am going to Disneyland next week with 45 of my closest Dis friends, however! I will definitely be using a scooter this time--there is no way I can walk long distances.

Ok, now that I've brought the mood down, I hope everyone else is having a good month!
 
Hi everyone--things have been not so good here.

First, my Mom has fallen twice in the last two weeks and we had to call the paramedics each time. Thankfully nothing serious--she spent a week in respite care/assisted living but wanted to go home which she did yesterday. That meant me carrying in all her stuff, making her bed, doing her grocery shopping etc.

Then my best friend and employee fell last week and shattered her shoulder. She has surgery on Tuesday (very dicey) and came home Wednesday and is staying with me. Which means we have company each night (she was with me before the surgery too) and more often than not I end up cooking.

Top it off, I have been having this pain in my leg for over two weeks that just won't go away--it now seems to be localizing in the area where the upper thigh meets the pelvis. And I'm sure all the extra activity lately has not helped. The worst part is getting up after sitting for a while. With my friend out that means I am short-handed at the office so I am doing EVERYTHING. So not a happy camper and February has not been a good month here.

I am going to Disneyland next week with 45 of my closest Dis friends, however! I will definitely be using a scooter this time--there is no way I can walk long distances.

Ok, now that I've brought the mood down, I hope everyone else is having a good month!


That is alot to handle Toocherie. I know what you mean with the hip pain - I have difficulty walking most days, so I just hobble around and people look at me like I'm crazy.

Try try try somehow to pace yourself so you don't end up worse for wear. I know easier said then done sometimes isn't it? I hope everything works for you so you get a break BEFORE you go to Disney.

Have an awesome time at Disney though, but in the meantime, don't forget to take care of you.

Stephanie
 
I am just here to whine because I can't sleep. It is 2:22am.

Last weekend I was up late on Fri night too and then someone was knocking at my door on and off for half an hour on Sat morning at 8 am. I ignored it until I could not any longer. I was pretty miffed when I opened the door to my neighbour's daughter asking for sugar!! :mad:I figured it was her. the only one who would knock on my door that early. lol

I was kinda snarky with her and told her to tell her mom that if I don't answer the door the first time, it probably means I am sleeping, especially at 830 on a sat.

This is the first year in about 5 that I have not had to get up early for work on a sat or sun. Espsecially with my sleep being so crappy lately. The cat hadn't even woke me up yet and usually he has me up by 730.

I better not have anyone wake me up tomorrow morning lol Or I will be a really grumpy girl. lol Vent over - sorry

On the bright side I had a nap today and it musta been good, cause I had a dream! :)and it was a short nap. Which is probly why I am awake now.

Hope you all are having pleasant dreams. :goodvibes
 
Hi everyone--things have been not so good here.

First, my Mom has fallen twice in the last two weeks and we had to call the paramedics each time. Thankfully nothing serious--she spent a week in respite care/assisted living but wanted to go home which she did yesterday. That meant me carrying in all her stuff, making her bed, doing her grocery shopping etc.

Then my best friend and employee fell last week and shattered her shoulder. She has surgery on Tuesday (very dicey) and came home Wednesday and is staying with me. Which means we have company each night (she was with me before the surgery too) and more often than not I end up cooking.

Top it off, I have been having this pain in my leg for over two weeks that just won't go away--it now seems to be localizing in the area where the upper thigh meets the pelvis. And I'm sure all the extra activity lately has not helped. The worst part is getting up after sitting for a while. With my friend out that means I am short-handed at the office so I am doing EVERYTHING. So not a happy camper and February has not been a good month here.

I am going to Disneyland next week with 45 of my closest Dis friends, however! I will definitely be using a scooter this time--there is no way I can walk long distances.

Ok, now that I've brought the mood down, I hope everyone else is having a good month!

WOW thats alot to handle. If I was still up North my family would help me very little but somehow I always had to do something for everyone else so I know how you feel. Its great you have Disney to excape to!!!:cool1:

As far as the thigh pain I have something very similar in my hips espcially the right one. It gets very stiff whenever I sit or laydown too long. Seems like 15 minutes is the magic number. My perfect Fibro regimen would be to rotate sitting, standing and walking every 15 minutes. What in life lets you do that? Alas I'm always stiff somewhere. Even if I did that then Id be so tired from moving every 15 minutes that I'd be in bed for a few days then I'd be stiff again :laughing:

Brighteyes

I have foot pain but nothing like you describe. Could your orthotics be stretching your arch and achiliies to far up and be causing the pain. I just discovered new balance walkers last spring and they have alot of support have you tried taking the orthitics out for a week to see if that helps?

Sorry everyone is having so much trouble.:hug: I've been doing quite good. Pain and fatigue there but manageable for the first time in almost a year. We have had 58 inches of snow at our house in the last two weeks :scared1::scared1: Now I live in ski country but this is crazy. Roofs are colapsing and my Kids have had only one complete day of school and 2 half days out of the last 12 :sad2::sad2: So they are driving me a little crazy. I am being very envirnmentally naughty and usuing paper cups,plates and bowls because I just cant keep up with the dishes even with my sons help. I'm also trying to do my pilates every time the kids our out of the house because I'm hoping if I can get stronger it my help prevent the next crash. My memory has been horrible and I've had alot of trouble with my vision and a couple of nights I could bearly crawl up the stairs after sitting to watch the olympics but in general day to day I've been good. I'm sleeping agian so I'm trying to lose weight emphasis on trying. Basicly I'm trying to do everthing I want before I have to stop all meds and gear down so we can make our trip in May. I least now I'm hopeful I can do it. December was so bad I couldnt imagine just completeing a full grocery run let alone Disney. Plan or no plan. I'm just very greatful for every good day:upsidedow

Sending Pain free Vibes:goodvibes and Pixie dust to Allpixiedust:
 
I was just on my facebook page and did the quiz what Disney movie describes your life.....ALICE IN WONDERLAND...go figure hit the nail right on the head wouldn"t you say? :lmao::lmao::lmao:
 
I have been feeling very... I don't know...bored...antsy. I have been thinking all day that I wish so bad I could live in California or Florida!!!!! Just not to have snow and cold, cold, cold... I watch all these shows on tv and see the palm trees and the sun, and I am jealous.

The only thing keeping me here is the healthcare. I don't want to start a debate but I would be so sick if I could never go to the doctor. I would never be able to afford to go to the dr cause I would never have the money to pay for it. I am a poor single mother here, there I would be in extreme poverty I imagine.

Here, anytime I want to go to the dr. I just go, no fees. No fees for insurance to pay for dr or hospital visits. The only thing you have to pay for sometimes is rx if you don't have coverage and there's even help for that.

I don't know how you all do it! Wish we had palm trees and no winter here! :beach:
 
I have been feeling very... I don't know...bored...antsy. I have been thinking all day that I wish so bad I could live in California or Florida!!!!! Just not to have snow and cold, cold, cold... I watch all these shows on tv and see the palm trees and the sun, and I am jealous.

The only thing keeping me here is the healthcare. I don't want to start a debate but I would be so sick if I could never go to the doctor. I would never be able to afford to go to the dr cause I would never have the money to pay for it. I am a poor single mother here, there I would be in extreme poverty I imagine.

Here, anytime I want to go to the dr. I just go, no fees. No fees for insurance to pay for dr or hospital visits. The only thing you have to pay for sometimes is rx if you don't have coverage and there's even help for that.

I don't know how you all do it! Wish we had palm trees and no winter here! :beach:

You should be proud of your healthcare!! I'm sure it has its problems but doesnt everything?

Unfortuneatly many of us dont make it in the US. We went without HC when DH was unemployed for almost a year and my Fibro, his Glarcoma and my DD now 11 had kidney issues requireing surgery at the time. We didnt see Drs or get meds unless we had to and it was expensive. Luckily we were told to wait 3 years on DD surgery to see if she out grew the problem (she did not) and we had insurance when it was necessary.

DH has great healthcare now. But his employer owns the health insurance company which gives us a big premium advantage. We have on occasion paid more then the insurance company because they would "cook the bill" by charging a crazy amount for something at the hospital they owned then have us pay copay then they would "negotiate" their end of the bill and guess what they paid less than us. pretty neat trick huh? Here is my best example. We all needed rabies shots due to a bat in our house. They made us use the hospital instead of our Dr. Our first bill was more than $28,000! For shots! Our co pays were $75 per pers (5) times 5 shots or $1875. The insurance company paid about half that. Our DR would have charged copay $15 each and 125 to Insurance instead of $1220 by the hospital. Of course they couldnt negotiate the fees with the Dr. They offered him $35 for shots that cost him $80 so he obviously couldnt treat us. Dont get me wrong I realize we are lucky to have what we got but thats crazy. Dh was a director at a mental health agency when they were told there was going to be a change in the free reinbursement for one of their services. It was going to be cut and it was retroactive for 6 months of service they had already compleated. They just decided we dont want to pay any more so lets not pay the last six months either.:confused3 and that was 12 years ago before it got really bad.

I wish we had some politicians that would do this right. dam the money and dam the polls. Half of what is in the "news" is lies by corporate. Ask anyone who works on the frount lines of health and mental health. Its sad. I love my country and I have mine. I just wish everyone had a least as good a plan as we have. Nuff said.

Brighteyes for now your right to stay in Canada. It will warm up in April :goodvibes Florida has been pretty cold this winter too :rotfl:
 
You should be proud of your healthcare!! I'm sure it has its problems but doesnt everything?

Unfortuneatly many of us dont make it in the US. We went without HC when DH was unemployed for almost a year and my Fibro, his Glarcoma and my DD now 11 had kidney issues requireing surgery at the time. We didnt see Drs or get meds unless we had to and it was expensive. Luckily we were told to wait 3 years on DD surgery to see if she out grew the problem (she did not) and we had insurance when it was necessary.

DH has great healthcare now. But his employer owns the health insurance company which gives us a big premium advantage. We have on occasion paid more then the insurance company because they would "cook the bill" by charging a crazy amount for something at the hospital they owned then have us pay copay then they would "negotiate" their end of the bill and guess what they paid less than us. pretty neat trick huh? Here is my best example. We all needed rabies shots due to a bat in our house. They made us use the hospital instead of our Dr. Our first bill was more than $28,000! For shots! Our co pays were $75 per pers (5) times 5 shots or $1875. The insurance company paid about half that. Our DR would have charged copay $15 each and 125 to Insurance instead of $1220 by the hospital. Of course they couldnt negotiate the fees with the Dr. They offered him $35 for shots that cost him $80 so he obviously couldnt treat us. Dont get me wrong I realize we are lucky to have what we got but thats crazy. Dh was a director at a mental health agency when they were told there was going to be a change in the free reinbursement for one of their services. It was going to be cut and it was retroactive for 6 months of service they had already compleated. They just decided we dont want to pay any more so lets not pay the last six months either.:confused3 and that was 12 years ago before it got really bad.

I wish we had some politicians that would do this right. dam the money and dam the polls. Half of what is in the "news" is lies by corporate. Ask anyone who works on the frount lines of health and mental health. Its sad. I love my country and I have mine. I just wish everyone had a least as good a plan as we have. Nuff said.

Brighteyes for now your right to stay in Canada. It will warm up in April :goodvibes Florida has been pretty cold this winter too :rotfl:

I totally know what you are saying. My prof said his cousin lives in the US and broke his ankle and nearly went bankrupt because didn't go to the hospital and then got worse, so when he had to go bills were crazy high.

For 28,000 heck I don't even make that much in a year. lol

Ya I would be living in the projects for sure. Heck, I live in the projects here, but I guess our working poor here is different than there. I was looking at jobs, just daydreaming and looked up a childcare job in Orlando. Here to do the same job I would make 17.00 hr there I think it was 10.00 or so.

My son broke his arm a few years ago, and he was 10 (Just before our first trip to Disney) and it didn't cost me a thing and I had no benefits. Just paid for the sling.:worship:

Just a pipedream cause I am bored out of my tree and I don't like being outside when it's crappy weather. And it's been pretty mild out -- It's really been a good good winter, no icy roads. They have been clear most of the winter. I think I am just bored, I have been doing schoolwork like crazy for three years now. I did go to WDW last Christmas, but other than that, have not done much else.

I just need a Disney holiday but can't afford it right now. :wizard:
 
I know it's wrong, but after everything I've read over the years - and despite being told by a PA to "stop reading" - I'm relatively certain I have fibromyalgia. Almost everything hurts - shoulders, arms, hands, back, thighs, feet (tops and bottoms), neck, head... getting into bed at night, I'm sure my neighbor thinks I'm having 'fun' because it hurts so much to move to a different level. Getting out of bed is even worse. Getting out of the car? I hate to even go food shopping. Getting in is a little easier, I can just sort of fall in - even then, I don't have a lot of muscle tone in my left (good) leg and sometimes have to physically lift it with my hands so I can close the door.

Sometimes my hands and wrists swell to the point I can't even make a fist - just a claw. My feet swell, too, not necessarily at the same time, but it doesn't matter as much because they don't need the same fine motor skills my hands do. I have bladder issues that aren't resolved by even a urologist. And I'm depressed - crying a LOT lately. I sleep poorly. I can't find a comfortable position, and I'm up about every 45 minutes - yet I'm sitting at the computer and dozed off in sitting up the chair a little while ago.

I need help and don't know what to do. I can't get any medical professional to take me seriously - I've even changed practices.

eta: about the depression/crying - there's nothing else in my life that would cause this. I like my job, I like my friends, I even like my siblings. No spouse or kids, but I haven't been married for years; nobody close to me has died recently.

Thank you all in advance for your time. I'm in Massachusetts, north of Boston, if that helps.
 
geez, that sucks. I was diagnosed about 20 years ago, when the docs would pat your hand and smile.

Is your new practice younger or older docs? I've had my best interaction with a pup who is eager to try the latest meds. I went off of Lyrica about 4 months ago, because the Savella was kicking in. Savella is an antidepressant specifically for fibro. It has been a huge blessing after I got past the side effects.

Pain really stinks, I hope you find some relief soon.
 
Thanks. The Nurse Practitioner to whom I'm assigned is about my age, but my doctor is maybe, late 30's? I'm going to print out what I wrote here and make an appointment for a physical - and NOT LEAVE until this has been addressed to my satisfaction!

Um, can anybody come with me and make sure I keep my resolve?
 
kaytieeldr,

Has your doctor ordered blood work to find out what you rheumatoid factor is?
Swelling in your hand is a sign of rheumatoid arthritis.
 
They haven't, Laura (and my previous PCP specialized in rheumatology :rotfl2: ). One advantage to this practice is, you can get a same day or at worst, next day appointment. Do my hands need to BE swollen for the blood test? My right hand is fine at the moment, and my left is greatly improved even from this morning. Thanks!
 












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