Experience with EDS?

[reendan]

I was reading another thread where a poster said they have EDS and it got me to wondering if there were any others around here with EDS? I myself have EDS, vascular type and Osteogenesis Imperfecta type 1. Would love to talk to others about their experiences and what they have learned about living with EDS.

 

[KPeveler]

I have EDS III as well as something else neuro related... by the way I am in RI too!

Check out the site www.butyoudontlooksick.com/boards, and you will find lots of us EDSers over there!

 

[reendan]

Wow, another EDSer and a fellow RIer..what are the odds! Thanks for the link, I'll go check it out now. We are getting ready to go to WDW on Tuesday..can't wait!

 

[PlainJane]

I have hypermobility. The doctors are still making up their minds about wether or not I have EDS III. I guess, it really doesn't matter in the end because my symptoms won't change just because the diagnosis does.

There are a few people with EDS on this the DIS, they don't seem to frequent this board though.