Hi, not really sure how to do this, but will give it a try! I will introduce my family. We have Me (Melissa), DH (Sean), Emily 4.5yr (Wish Kiddo), Abby 3yr. (Best little sister).
Em's wish granters are coming for the first time on Wednesday. We are all really looking forward to this. All she keeps saying is Minnie Mouse and Princess. She wants to be a princess more then anything in the world, and I think she is one already!
My dad told me about MAW and thought Em would be worth it to try and get her a wish. It has been a rough road for her, and the past 3 months have been just horrible. It has been really great this past month to have something so fun to look forward to.
Em was born at 30 weeks at 2lbs. 15oz. She had a very rough time and went through to many things to list all. She did have NEC and a staph infection and at 10 weeks had part of her colon removed from the NEC infection. We were also told she has enlarged ventricles in her brain. She left the hospital after 87 of the worst days. She alway's had a rough time with food and we were told at 4 months she had reflux. It just got wrose once she started real food. She would vomit almost every meal, and choke and cough all the time. They diagnosed her at 19mo with Eosinophiliac Esophagitis. She was put on an elemental diet, we have struggled for 3 years trying to find her food that are safe. In Nov. after her 6 scope the Dr. decided it was time to put her back on just the elemental diet. As of now we can only find grapes, bananas, rice as safe foods for her. She takes everythhing else by her feeding tube that she has had since Feb. of this year. Em also has Dentinogenisis Imperfecta, she was not born with any dentin on her teeth so they are very brittle and come in tiny and fall apart. She will always have caps. She had her first 5 hour dental surgery at 2.
We were dealing with all that, and actually kind of doing ok when in the end of March Em went to the hospital for vomitting and when they could not figure out what was wrong gave her an MRI of her head and spine givien her history. They found 2 things. A Chiari Malformation in her brain and arachnoid cyst in her spine. They needed to take the cyst out of her spine right away. It was taking up half her back and compressing her spine so much it was flat. Then las week she had brain surgery for her Chiari Malformation. She is still having a lot of issues from the Chiari, so we are very nervous and hope she just needs time to heal.
So with all that, we are very much ready to plan a fantastic trip to Disney. We took both girls for Em's birthday last year but only stayed for one day. I have been a ton of time as a child and so has Sean. I can't wait to see the smiles from Em.
So whatever tips and tricks anyone has we want to hear!
Thanks
Melissa
Mom to Emily (wish kiddo) and Abby (best little sister)
http://www.caringbridge.org/visit/emilywallace
Em's wish granters are coming for the first time on Wednesday. We are all really looking forward to this. All she keeps saying is Minnie Mouse and Princess. She wants to be a princess more then anything in the world, and I think she is one already!
My dad told me about MAW and thought Em would be worth it to try and get her a wish. It has been a rough road for her, and the past 3 months have been just horrible. It has been really great this past month to have something so fun to look forward to.
Em was born at 30 weeks at 2lbs. 15oz. She had a very rough time and went through to many things to list all. She did have NEC and a staph infection and at 10 weeks had part of her colon removed from the NEC infection. We were also told she has enlarged ventricles in her brain. She left the hospital after 87 of the worst days. She alway's had a rough time with food and we were told at 4 months she had reflux. It just got wrose once she started real food. She would vomit almost every meal, and choke and cough all the time. They diagnosed her at 19mo with Eosinophiliac Esophagitis. She was put on an elemental diet, we have struggled for 3 years trying to find her food that are safe. In Nov. after her 6 scope the Dr. decided it was time to put her back on just the elemental diet. As of now we can only find grapes, bananas, rice as safe foods for her. She takes everythhing else by her feeding tube that she has had since Feb. of this year. Em also has Dentinogenisis Imperfecta, she was not born with any dentin on her teeth so they are very brittle and come in tiny and fall apart. She will always have caps. She had her first 5 hour dental surgery at 2.
We were dealing with all that, and actually kind of doing ok when in the end of March Em went to the hospital for vomitting and when they could not figure out what was wrong gave her an MRI of her head and spine givien her history. They found 2 things. A Chiari Malformation in her brain and arachnoid cyst in her spine. They needed to take the cyst out of her spine right away. It was taking up half her back and compressing her spine so much it was flat. Then las week she had brain surgery for her Chiari Malformation. She is still having a lot of issues from the Chiari, so we are very nervous and hope she just needs time to heal.
So with all that, we are very much ready to plan a fantastic trip to Disney. We took both girls for Em's birthday last year but only stayed for one day. I have been a ton of time as a child and so has Sean. I can't wait to see the smiles from Em.
So whatever tips and tricks anyone has we want to hear!
Thanks
Melissa
Mom to Emily (wish kiddo) and Abby (best little sister)
http://www.caringbridge.org/visit/emilywallace
Emily is going to have the most MAGICAL time and it WILL help her to think and dream on hard days! I made Lisa a book called "Lisa's Disney Journal". It has all of the Princesses on it and she has written and drawn many pictures of her dreams in there! I look forward to seeing what you have planned that is so special! I know you will pull it off! 
