Mom2twogals
Earning My Ears
- Joined
- Aug 28, 2019
- Messages
- 1
Although I am an annual Passholder and travel to Disney often, my youngest daughter hasn’t traveled there with me since her diagnoses and we are bringing her for a quick trip this fall. She was diagnosed with anorexia and hospitalized in July 2018 for medical stabilization. She was also diagnosed with extreme anxiety and ocd which tend to be counter issues with eating disorders . Although she is actively working towards recovery, she still suffers from anxiety and ocd because we took away coping mechanisms associated with her eating disorder. We took her to universal studios last December and it was a disaster. Any long line made her ocd (the need to wash her hands often is a big ritual)increase which in turn increases her anxiety and she would lash out. The brain suffers damage during malnourishment and it can take years to heal. Also she is on a strict meal plan, 3 meals 3 snacks daily, requiring between 3200-4000 calories daily and it was difficult to keep her meals on track and we had to substitute a lot of her in take with pediasure 1.5 cal while waiting in lines and we try really hard to avoid supplements while we work to tackle fear foods and get her back on track. Someone suggested the DAS for her so we could keep stress down, use time waiting for rides to eat all her needed intake and try to keep her ocd and anxiety at bay. I hate to say it but I feel like Disney may not understand enough about eating disorders to not think we are just trying to skate some rules to get her a pass. She has a 504 plan for school and even with her teachers having met with her team of doctors at the hospital where she receives treatment , didn’t seem to help them understand the seriousness. Anorexia has the highest mortality rate of any mental health issue but by all accounts if you look at my girl, she looks healthy so her disorder is often brushed under the rug. It is classified as a disability pertaining to her education and she receives modifications at school for it to relieve stress and keep her safe. Is the DAS pass something I should consider or just do our best to tackle the park with her without trying. I typically would avoid an amusement park due to her triggers but her big sister and I attended Passholder previews for Galaxy’s edge and she really wants to build a droid and ride some rides she once enjoyed so much prior to her diagnosis