Driving 6000 Miles for the Magic: A Miracle Trip

[DebIreland]

Oh Christamae, sorry that you have to be admitted. Of course you're frustrated and sad - totally understandable. We'll be thinking of you. Hurry back.

 

[jackdis]

I hope you are feeling better VERY soon! We will be here waiting for your return!!

 

[3DisneyBuggs]

Christamae I just read your whole trip report- it is awesome and you are an inspiration. I 'm sorry to hear you are in pain and had to check into the hospital. I hope they make you better very soon.

 

[eyeheartgoofy]

Oh, dear. Of course, we will wait for you! I hope the doctors are able to figure out the cause of your pain - and soon, so you feel better. Thinking of you!!!

 

[jlcd]

Christamae, I hope you are feeling better and out of the hospital soon. You will be in my thoughts and prayers.

 

[slyjly]

You are in my thoughts and prayers, please know that every one here is wishing you a speedy recovery and sending love and

 

[aalan]

Wow, your report has blown me away: what incredible courage you have. Thank you for posting your report.

You are a BEAUTIFUL inspiration.

Please get well soon!

 

[burly]

get well, get well. we will wait. hugs to you. KIM

 

[pierresgirl]

I'm loving your report and I hope you recover fast in the PICU!

 

[Our2Girls&Disney]

Christamae:

You are in my prayers! I hope that you get better soon. We are all here for you. I only wish I could help you. For now,

 

[disneypofq05]

Christamae,

I started reading your report yesterday and have been amazed at your writing. You have a wonderful gift for capturing the moment. You made me feel like I was there with you.
You and your family are an inspration to us all. Here's a little pixie dust for a speedy recovery.

 

[eternaldisneyfan]

Thank you all for your care and concern. Looks like you won't have to wait too much longer for an update.

I’m home! I actually got home last night. The whole thing was crazy. We got to the hospital at 6:00 PM Friday. We had to be admitted through the ER for insurance purposes. But my GI doctor didn’t leave a note saying to admit me. The GI doctor there wasn’t sure what was going on. So I had to go through the whole ER procedure. And they did a bunch of tests. Blood test. Urine test. X-ray. Ruled out appendicitis, pancreatitis, kidney stones, gall stones, bowel impaction, bowel perforation, and no signs of infection (white blood cell count). At this point everyone is scratching their heads. The PICU attending even came down to talk with us. We know him very well. During my 6 ½ month hospital stay, he took personal responsibility for me and was an advocate.

He (Dr. Soifer) asked some questions and for our ideas. Ultimately I was admitted. The PICU even had to call in a nurse for me. And they got me my special order bed. I got up there about midnight and got in bed about 3:00. Mom stayed at the hospital to be with me (I can’t push the nurse call button or talk on the vent at night). We were under the impression that I was admitted for further testing.

But Saturday morning the hospital discharged me. Dr. Soifer knows my atypical strange ways and wanted me observed. I was discharged mainly because there weren’t any more tests they can do on the weekend. Also nothing life-threatening and dangerous is going on-we ruled out all the really bad stuff. I also have a pain med (Dilaudid) for when things get really bad.

I will have a CAT scan done this week (local place) to check for things in detail. My x-ray was very hard to read. Evidently I have a very interesting anatomy. All my organs got shifted around from my prolonged, severe scoliosis (125 degrees). And I am very compacted.

I will say that at the moment that I feel pretty good. But last night I was in a lot of pain. I am on a laxative ‘just in case’-although my x-ray showed no signs of constipation and I have been pooping…The pain fluctuates-sometimes really bad, sometimes bad but tolerable, sometimes okay, sometimes barely there. This is an improvement as before it was always there and awful.

We shall see what the CAT scan shows. Maybe I scared it into submission and it will disappear.

In any case, I am home.

So this isn't completely off topic, I will have the next update Wednesday, June 13

--Christamae

 

[never_enough_pooh]

I am so glad you are feeling better and home!

Take all the time you need for your next update. We will all be here waiting for you!!

 

[DebIreland]

I'm so relieved that you're home and mostly out of pain Christamae. Looking forward to more great TR chapters soon.

 

[jlcd]

Glad you are home and feeling better! I hope the pain is completely gone soon!

 

[KathyRN137]

Hi, Christamae!

I've thoroughly enjoyed reading your entire TR tonight; I admire you and your family so much! We all can learn a lot about patience, love, and the power of positive thinking from reading about your experiences.

I do hope you are feeling better soon; ERs...YUCK!! Glad you're home.

Post when you feel more up to it; we will all be thinking of you and wishing you the best,

Kathy

 

[burly]

Oh Cristamae I'm sooo glad you are home and feeling better!! I just logged on for a second and saw your post. Now to bed and dreams for me. Yippee your home

 

[DisneyJo]

So glad you're home, sounded like a bit of an ordeal though! Hope the pain subsides and you have scared it away Take care

 

[wdw1014]

Christamae,
I just logged on this morning to find out you are home! I hope all is going good for you. I will wait patiently for the 13th, but can't wait to read more of your great TR. We leave for WDW in 4 days and your report is helping me get through these last long.........days. So, until then take care and know that you are in my thoughts and prayers.
Angie

 

[Our2Girls&Disney]

Christamae:

I am so glad that you are home. I hope that the pain stops soon. It sounds like you are in good hands with some really ncie physicians. Take care of yourself. I am still praying for you.