momabaarjo
Rather Sail Away with Mickey than Run Now
- Joined
- Dec 11, 2010
- Messages
- 5,629
We found the Photopass person to do the balloons near the Mickey & Walt Statue at the hub...they turned out awesome...he even did the Tink picture with Ab!
Just catching up with the chatter!! Hope Anakin has a better week !!!Judy and the kids all went to Erie Pa yesterday for Kyle's 10th Birthday at Splash Lagoon!! WEe had quite the panic before they left as Kyles doctor had given a script for the generic of his med and NO pharmacy had it
Now imagine going on a trip with a severely ADHD/IED kid who has NO medicine
Luckily the Pharmacy let us buy enough of the real med . to see her thru till Monday or Tuesday when she can let the doctor know what is going on!!I wish before Insurance companies said a generic had to be used they checked it was available
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That sounds a lot like the T-ball team Grace plays on. They have the option of being pitched to or using the T, too, and there are lots of volunteers to help. Sometimes it seems like there are more volunteers there than kids!
Grace had a hard time learning those things, too, but for her the original basis of those problems was her vision. Just before her 4th birthday we found out that she has very, very bad vision (basically legally blind without her glasses). That finally explained why she hadn't been able to learn her letters or numbers no matter what methods we tried. With the glasses it's a lot better, but when she's tired her vision gets worse and as her reading level increases, the print size in books decreases so we're only a couple years (if we're lucky) from her needing to do all her reading on the computer or something like a Kindle or IPAD. Hopefully the computer doesn't become a seizure trigger for her or I don't know what we'll do.
Catherine
We found the Photopass person to do the balloons near the Mickey & Walt Statue at the hub...they turned out awesome...he even did the Tink picture with Ab!
You bring up a good point. Maybe Anakin should have an opthamologist visit? His 48 hour EEG ended up showing one seizure and it was in the occipital lobe. The lobe associated with vision.
So sorry to hear Anakin had another seizure and a bad day. It breaks my heart, because after meeting you guys, I know what wonderful people you are and how amazing Anakin is. I just wish we could have spent more time together! Maybe when we come in November!
Here's hoping he starts feeling better.
It might not be a bad idea. We had absolutely no idea how bad Grace's vision was until after her first visit with an opthamologist. When we first started looking for answers, it was mentioned that we should get her vision checked sometime, but nobody (not her doctors, not her therapists, not a good friend who is an optician) thought that there was really anything wrong with her vision. Boy were we surprised! It has been suggested by a couple of her doctors that there may be a connection between her poor vision and her seizures, but no one has been able to tie them together and give us any answers on that.
The vision tests don't hurt. The only part of them that Grace absolutely hates is the eye drops. As soon as someone mentions giving her eye drops, she starts to panic and fight against them. Luckily not all of her vision appointments involve eye drops, but you may want to ask about eye drops when first making the appointment to see if they could do a preliminary test without them. Anikan may not have the problem with the eye drops that Grace does, I thought I'd warn you about her reaction anyway.
Catherine
Hey girl!!! Long time no hear!! sorry Anakin had another seizure. Poor guy, at least his schooling is going good!! We're doing good, went and saw MaryAz and Katmark this weekend!! We had a blast!! My used powerchair, the left motor died, so I found another one, and my old guy is gonna try to fix the first one. the new one is cool, and Chris painted it for me!!![]()
About to go again...love your little trips (and very jealous)!
After debating whether or not to do online check-in, I went ahead and did it. I am very happy with the online changes to online check-in!!! In addition to the previous areas available to check, the sections of buildings are now added as choices!! So I was able to request the building we prefer and ground floor! Of course, there's no garuntee we'll get our request, I'm happy it's now there!!
That's totally awesome! I always felt they needed a request box or some other way to make various other requests. Glad to see they finally did!
I get to do my online check-in on February 22 (in 21 days!).![]()
3 weeks!! Let us know what your choices are when you do online check in.