kidneymomma
Mouseketeer
- Joined
- Jun 15, 2015
- Messages
- 191
My family and I are beginning to plan a trip to Disney!!! We really need the vacation, my son will be 2 at time if travel; and has several medical conditions. I've seen that Disney has a disability access card but is vague on the conditions that can get one. My son has stage 3 kidney disease, he is primarily feed by a g tube, he has a condition called eagle Barrett syndrome and has zero abdominal muscles,low muscle tone, and a dislocated hip. He will not be able to stand in the lines & he is near 20 lbs now; add a feeding tube backpack to him and he's a heavy boy. I am wondering if the access card would allow us to keep him in his stroller until we get to the actual attraction. Since most of his diagnoses are internal except his eagle Barrett syndrome you can see the signs on his abdomen should I have his doctors right something? What do I do to make this trip enjoyable for all of us?