Dis Breast Cancer Survivors Part II -GAGWTA!

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Congratulations, Cheryl! :goodvibes

Maureen :hug: if you've thought it through carefully, try to trust in that and not be swayed by the fears you have today. But with that said, you can always reschedule if you need to. It's a tough decision, and you've had a lot of difficult emotions this year. Keeping you in my prayers. :grouphug:
 
It doesn't always.....depends on the situation, the doctor, etc. In my case, because I had so many positive nodes, my onc thought it best to leave it in. Your mom might be able to have it out right away, just depends how the doctor feels about it. :)

She had a fair amount of positive nodes too, so I won't be shocked/surprised/dismayed if they suggest leaving it in for awhile.

Maureen - Sending you lots of hugs :hug: and wishes for clarity and peace in your decision. :wizard:
 
Maureen...Linda said what I was thinking, much more clearly and briefly than I could! Whatever you decide, we are here for you...:hug:

Linda--belated happy birthday to the twins.:banana:

Laurie...
never fear,I have a couple of pics of us doing the hankie dancing..:)

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Me and Laurie at the race
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And before the RFTC, we met this nice survivor who graciously allowed us to take a pic of her great tank top, under the condition that her daughter (who had the shirt made for her mom) be in the picture too:

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Oh and yes, our local ACSMaking Strides walk was yesterday. A beautiful NE fall day, perfect for walking (though when the breeze picked up a couple of times I wished I brought my earmuffs!! (With my short hair I gte cold ears fast in the wind). Our local event raised over $560,000.....yes, over half a million dollars !! Isn'tthat amazing for a small city,population less than 50,000 people? We've consistently been the highest per capita Making Strides in the country!
DH usually goes with me, but he is away on a hunting trip, so I was happy that DD decided come with me. I'd gotten an e-mail from our survivor group team captain (she' serves on the event committee as well) last week who was looking for volunteer(s) to hand out carnations to survivors at the one mile mark. I was so pleased at her saying yes to this....she has never really wanted to "acknowledge" my cancer in such a real way....but she spent the afternoon there, spent some time with me in the Survivor tent, etc. I got a hug with my carnation of course. She wants to volunteer next year on the official event organizing committee! Oh, and she had these really crazy pink sunglasses with sparkly frames that she bought this summer at Walmart, she said "are these stupid to wear?" I said "Heck no, they are great!! People commented all afternoonon hergreat sunglasses!!
I have some pics, will work on those soon........
 

Good second line pics, Ann, thanks for posting. I am amazed your sister was able to get us both in that one shot as we were really prancing around. Ann, I had to crop your sisters out of those pictures. Did you do the same?

Today while I was working, my sister and brother Tom whipped mom's house back into shape after his visit. It is sparkling. Wish they would come to my house and do their magic.

I am "on call." I am sure being alone is the hardest part of this recovery thing for mom. Good thing it takes me about five minutes (maybe less) to get to her house. It has really made me think about how lucky I am to have DH. Our kids were always in their own worlds so not much help but DH really walked that fine line between doing stuff for me when I needed help and letting me test my wings when I was ready to step out a bit. Who knew an aging Irishman with a wicked sense of humor and an evil laugh could be so caring?

It is my turn to help mom.

She hasn't taken any pain meds in a few days, not even the muscle relaxer since last night.

Maureen, I can understand your second thoughts. Prophalactic surgery is BIG. I also understand the thought process behind undergoing it and the implant exchange all at once. You have been through so much. Don't beat yourself up about the second thoughts. I think it is very normal to feel this way. I can't give any advice other than there is no single right way to go. You have to go with your heart and try not to look backwards, only forwards, just like your username.

OK a mom/day of surgery story or two.

First, I got very emotional when we walked back to day surgery, it just brought everything back for me to the day I had my mastectomy in 2004 (same hospital and all.) I really had to catch myselfto keep from sobbing out loud; mom, however, just breezed right in, no problem. I don't think she had a clue how it affected me but the greeter sure did, she very gently led us back and gave me a very compassionate hug.

Later, when a nurse came to bring her to Radiology to have the dye injected for the sentinel node surgery, my sister and I waited behind in her day surgery private room. My sister was in the bathroom when a young lady from the anesthesiology department sailed right it with the paperwork. She saw my sister coming out of the bathroom (I was around the corner, and she could not see me) and she lets loose in a bold, peppy voice, Ah, so you're the patient!! Sis shakes her head emphatically, no, I am NOT the patient. So not a bit discouraged, the young gal proceeds into the room and spies me. Oh, so YOU are the patient, she is obviously really happy to see me. Oh so sorry, I am denying it as well, no, I am NOT the patient, again oh so emphatic. :rotfl2:

Finally I have the presence of mind to try to and blurt out where mom is. I don't think she bought it, the little gal looked totally deflated, pretty much turned on her heal and left, and we never laid eyes on her again. I have wondered if she decided to change careers after that scene??:rotfl:

We had a few yucks afterwards about how ridiculous we must have looked and sounded But neither one of us were volunteering for a mastectomy that day. No fools, us.:laughing:

Mom had a funny moment too when one of the nurses tried to hand her my sister's cane (my sister has a disability) when they were getting mom out of the wheelchair. The nurse looked a bit skeptical when mom "claimed" it was not her cane but her daughter's.

I imagine our room was just about the only one where three goofy ladies were LOL. When the surgeon came in to talk with mom pre surgery, it was time for the Valium. As that same surgeon has done biopsies on my sister and me, I told her we were on the family plan and exactly when were our doses coming? This was after mom had freaked about the red area where the surgical biopsy had been done, I thought she might bail on the whole thing when mom said she wanted to talk to the surgeon BEFORE the dye for the sentinel node deal was administered. So my sister and I both felt the need for a little stress relief. Hell, the doc could have probably used something herself after mom grilled her about whether the redness could cause an infection, etc.

The surgeon assured her it did not matter as that whole area was going to be shall we say history (she said it nicer in doc speak).

The surgeon is cool, also a Disney lover, so I brought her youngest (the princess, apparently) a Disney pin from WDW. She also took three of my home baked cookies in a bag home to her kids. Made me feel good. Heck, I even gave one to Father Paul who came to see mom in the hospital Tuesday (she told him all about her surgery when she did made her confession SAturday night before the surgery). I almost lost (burst out in tears) when he handed her a beautiful cross with a relic from a local very respected deceased priest and prayed a special prayer with her.

When the physical therapist came in with the exercise drill, mom had yet to move much out of bed. She looked old and frail and not very "with it." The therapist however proceeded on and showed her some of the arm stretches. Her eyes were as wide as saucers when mom proceeded to do with hardly any effort. I tried to explain that mom has been a swimmer for years not to mention actually works out on machines twice a week at the gym. She was shall we say impressed.

Mom and I had a few differences on the temperature level both in mom's room at the hospital and at her house when I stayed with her there. The thermostat in the hospital room was not very responsive and it was hotter than Hades so I cranked that baby all the way down. Poor mom, when the nurse got her up the first time to go potty in the middle of the night, she was shivering like a leaf. She thought it was the anesthesia wearing off, I think the real story was that the room must have been about 60 degrees. I felt like a real heel.

Y'all may be surprised but mom was questioning tonight why the plastic did not do a lift on her good side too last week. She is forever amazing me. Maybe she'll go for some lipo? Hell, why not? I mean I was too much of a chicken to ask for lipo, but mom might just do it??
 
Laurie...
never fear,I have a couple of pics of us doing the hankie dancing..:)

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Me and Laurie at the race
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Ann, please please please, this is second lining, not "hankie waving."

You obviously need a return engagement so you can get the lingo down.

I got a big kick out of this one precious little gal who was encouraging us to get out there and dance. I was of course scrounging for something to wave. She secretly gave me a napkin but said in a serious sort of way that I had to dispose of it afterward, that she could get in trouble.

I really pondered about what the problem was, do the powers that be at Disney worry about someone trying to sue over a napkin accident of some kind? I mean napkins can be very hazardous I realize but this lady was very explicit about being worried about getting in trouble over giving me the napkins. That worry apparently got trumped though by her desire for the party to pick up a little steam.
 
Uh oh, I am doing it again, a very long, sexy post. With my impaired typing skills lately, these long ones are full of blunders I am positive.
 
Great stories, Laurie. You guys are a hoot. :rotfl2: :rotfl2: So, how did the cookies go over? :confused3

Great pictures, Ann. You and Laurie could actually pass for sisters, I think. It must have been nice to share those special moments with your DD. :goodvibes

Maureen, how are you doing tonight? We're thinking about you. :hug:
 
Great stories, Laurie. You guys are a hoot. :rotfl2: :rotfl2: So, how did the cookies go over? :confused3

Great pictures, Ann. You and Laurie could actually pass for sisters, I think. It must have been nice to share those special moments with your DD. :goodvibes

Maureen, how are you doing tonight? We're thinking about you. :hug:

The cookies were very popular. I had the brainstorm of putting each one in a sandwich bag to encourge take aways. Now I had about 6 dozen there, about half were taken. They had been in the car parked in the sun during the day until she was in her room after recovery. The first "taker" asked me if they were still warm from the oven.

Sure.:rolleyes:

Thanks for the great idea, Linda. It gave me something to do Sunday night before surgery (actually mom too since she came over to "help" me, and she and her lobbyist friend stayed and talked for several hours).

It took our minds off the surgery for several good hours.

It was sort of like trick or treat the way they were in bags. I was glad I did that. It was also like an appreciation to. It was a lot easier to thank people when you had something to hand them.

My family liked the leftovers.

Hey, Ann is my sista, all of you are. And I am wanting to adopt Sha. Her mom is very lucky. I guess I am just about old enough to adopt Ann too. Maybe I'll just be the OLDER sister, huh?
 
GAGWTA!
I'm always saying sorry, but once again I've not added to this thread. and rather than offend anyone, I'll just say hi!

I like the idea about cookies, and pre-wrapping them.
:cheer2:
 
Ann - love your pics! I must admit I've never heard of the hankie dance, but you look like you were having a good time! Those two t-shirts the mom and daughter were wearing are a riot!! :lmao: That's really cool about your DD helping out and wanting to volunteer again next year. I know what you mean about the "acknowledge" stuff - so far my DDs have not done so in a such public way, but I know if they ever decide to, I will be quite proud of them, so I can just imagine how you must have felt! :cloud9:

Maureen....:hug: How ya doing today?

I am drowning in laundry today....LOL, I swear I just dont know where it all comes from! :laundy:

I hope everybody is having a good day - GAGWTA!!! :goodvibes
 
Hi everyone. I am home from the hospital. My surgery went well..and he was able to do the entire reconstruction so NO EXPANDER! YEAAAAAA! I got a quick peak at them and they look good. He said we have some more minor adjustments but I am so happy not to have that expander in! ALso, the sentinal node biopsy was negative. So everything went well.

The hospital was a bit understaffed last night but everyone was very nice and I got a private room, which was great. I could have stayed one more night but felt well enough to get out of there. I am in a LOT of pain though.

More later, thanks for all your support. I think I did the right thing for me. And it is so nice to have clevage again.:cool1: :rotfl2: :thumbsup2
 
:beach: ~~~***GAGWTA sistas***~~~:beach:

Maureen- I'm thinking of you. It sounds like things went really well!!! I am glad you are home so quickly.:hug:

Laurie- I really love that photo of you and hubby. You two look like honeymooners.;) :love:

Quick update...first the GOOD news! Hubby saw his cardiologist yesterday to read his internal heart monitor. It seems that he has low blood pressure and his heart is racing to compensate. I did not go with him to the appt. but he said there were 40 readings and a couple of them were over 300!:scared1: His resting is usally in the 90s, still high. NO Dysrhythmia!!! He prescribed a drug to raise his blood pressure (never knew such a drug existed!) so if it works and he stops having these dizzy spells, he will be able to drive again in 6 weeks! Praying and crossing fingers and toes...

Now the not so good news. I have failed Humira. I'm back on high dose steroids. My scope was pretty bad, and showed the disease is indeed progressing. I'm now going to try Methotrexate injections. It could 1-2 months to start working. I have to hold off on surgery, I'm just not there mentally yet.

Mentally, I'm dreaming of my happy place... warm sunny WDW. :beach:
:grouphug:
 
Laura, one for you :hug: and another for your hubby :hug:

I wish there was something I could do to help you... :flower3:
 
Hi everyone. I am home from the hospital. My surgery went well..and he was able to do the entire reconstruction so NO EXPANDER! YEAAAAAA! I got a quick peak at them and they look good. He said we have some more minor adjustments but I am so happy not to have that expander in! ALso, the sentinal node biopsy was negative. So everything went well.

The hospital was a bit understaffed last night but everyone was very nice and I got a private room, which was great. I could have stayed one more night but felt well enough to get out of there. I am in a LOT of pain though.

More later, thanks for all your support. I think I did the right thing for me. And it is so nice to have clevage again.:cool1: :rotfl2: :thumbsup2

Maureen, I hope you are able to manage the pain effectively. :hug: I am glad the surgery is over and that you are back home!! :goodvibes

Laura - I hope the meds work for your DH! :wizard:
I am so sorry to hear that the Humira isn't working. :guilty: I am thinking of you, and I hope the next course of action is successful. :hug:

I just realized it is Thursday. Mom had chemo today, so I need to call and check on her. It has been a weird week - I just lost track of the days. :sad2:

Hope everyone else is doing well!! Hugs to all! :grouphug:
 
:beach: ~~~***GAGWTA sistas***~~~:beach:

Maureen- I'm thinking of you. It sounds like things went really well!!! I am glad you are home so quickly.:hug:

Laurie- I really love that photo of you and hubby. You two look like honeymooners.;) :love:

Quick update...first the GOOD news! Hubby saw his cardiologist yesterday to read his internal heart monitor. It seems that he has low blood pressure and his heart is racing to compensate. I did not go with him to the appt. but he said there were 40 readings and a couple of them were over 300!:scared1: His resting is usally in the 90s, still high. NO Dysrhythmia!!! He prescribed a drug to raise his blood pressure (never knew such a drug existed!) so if it works and he stops having these dizzy spells, he will be able to drive again in 6 weeks! Praying and crossing fingers and toes...

Now the not so good news. I have failed Humira. I'm back on high dose steroids. My scope was pretty bad, and showed the disease is indeed progressing. I'm now going to try Methotrexate injections. It could 1-2 months to start working. I have to hold off on surgery, I'm just not there mentally yet.

Mentally, I'm dreaming of my happy place... warm sunny WDW. :beach:
:grouphug:

Laura. . . that picture. . . more like THE honeymooners ala Jackie Gleason and Art Carney. :rotfl2: Not sure which role I want.:confused3

I was kind of attached to the Steel Magnolias spot.

I am distressed to hear that the Humira is no longer helping. I am glad to hear there is another med waiting in the wings. I agree that it is too soon for the surgery. That is a big step and you never know, the next drug in the pipeline might be THE ONE. I sure hope so.

I am sure your husband's good news is lifting your spirits if not your health.

Elizabeth, I hope you get good news on your mom.

Maureen, I am glad the surgery went well, and yay for the clear nodes on that sentinel node test. I hope the pain subsides soon. Are you have muscle spasms? Mom is having good luck with her muscle relaxer med, she is now just taking it at night. She even did a load of laundry today. It could not have been much as we did a lot on Monday.

Enjoy the new girls!!!

Did you ever settle on names? My DH would probably pick Abbott and Costello since he is a sucker for their old movies.
 
I picked up some books at a used book store this week in one of my quick jaunts in there. It was really amazing because I didn't have a lot of time to look but thought these seemed good. Well, I loved them. I wanted to tell you guys about this one because I liked it a lot and thought you might, too. It's called Anyway: The Paradoxical Commandments: Finding Personal Meaning in a Crazy World. Has anyone here read it? Very cool. Another link.

One of the others was also very cool in a strange way. It was written by the woman who ran the meditation and journaling class I've spoken about here many times. I didn't even realize she'd written a book, I just "discovered" it on the shelf. It was about a very difficult life experience she'd had (losing a child). What blew me away was that at the time she was helping me, I had no idea of the sorrow she'd apparently just lived through herself. :sad1: But I realized in reading it how much she helped me. I mean, I knew it before, but reading her words really brought it home. Wow, just Wow. I am going to have to find her and reconnect. I need to talk to her about this. I have some emotions swirling around about it. I don't know if I'm mad, or sad, or what. :confused3 I wish I knew, but then again, that wasn't why she was there. But how selfless she was to volunteer her time to help those of us going through cancer treatment when she herself was in so much pain. I need to tell her how much she helped me.
 
What nice pictures of all of you - so glad you all had a good time and were able to meet each other. Laurie, you and your DH look so happy and I know you enjoyed your few days away alone together.

Laura - I'm sorry to hear about the Humira. I hope that this new drug will do what it is supposed to do and you will feel better. Glad your DH is on his way to feeling well again.

Lookingforward - isn't it great to have the surgery behind you! I hope the pain has subsided and you are feeling better.

Hugs to all of you. Barbara
 
Mom is doing well. She has 7 more Taxol to go. I asked her if her oncologist has said anything about the radiation, but she said he doesn't say much anymore. The loss of his son must have just really taken all of the joy out of his life. I am sad for him, but I also worry about the quality of care he is able to give his patients.

Linda - I think you should definitely get in touch with the author of the book and tell her how you feel. :goodvibes

Laurie - I am glad your mom is getting back into a routine. I hope she continues to feel well!
 
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