Dis Breast Cancer Survivors Part II -GAGWTA!

[luvmarypoppins]

Good morning ladies

Gotta get in here before the 2 ds start fighting over the computer too. Hmm, maybe a laptop is in our future?

Honugirl - Sending you lots of good wishes. Remember , you are a warrior, a fighter and you should be really proud of yourself!! Don't feel bad about the cane. We have to work with what we have,. You should see me trying to put a jacket on my L shoulder, since the nerves have all been cut and damaged etc. Don't ya just love that camera? I am thinking I will have this done also on friday at the ent visit, this will coincide nicely with the 2 day post op to see if the breathing tube has again messed up my vocal chords. Please have a great birthday and celebrate YOU!!

Linda - Sorry to hear the bad news but happy to hear the good news. How is the baseball going with your ds?

Sha - Wish I was in your suitcase!!

Laurie - Are you asking your dd to bring you back anything special?

Laura - Miss ya posting sista and sending a big old hi!

Well my dh might have to go around the world the last 2 weeks of July. I hate those trips but at least he wont be alone. Might go to Toyko, Bejing, Shanghai,Moscow, Siberia, somewhere in Denmark or Sweeden and Auckland, New Zealand.

GTAGWTA, Blessings to you all.

 

[lookingforward]

GAGWTA everyone! I am sitting here just exhausted, but I wanted to say a quick hello! I will read back a few days and catch up tomorrow. I have been absolutely swamped at work. And the one year mark from my mom's death is quickly approaching. I am a bit depressed about it. I will be happy when June is over.

We decided to cut back on one disney trip and take a Christmas cruise to the Caribbean (sp?) instead. I am really hoping that the nine nights will give all of us a chance to relax. So we are headed back to WDW in October and for two days in December. That will be it for this year. I am content with our decision. We booked the NCL Dawn. Now I am trying to talk my dad into going with us. He is still getting chemo for his bladder cancer, I worry so about him.

More later, miss you all! For all in treatment or getting tests, etc. my heart and prayers are with you!

 

[snappy]

I just got an email from my friend of the dinner group of survivors I go out with. One of the girls in the group passed away this morning. Last time we went out she and I sat across from eachother and chatted the night away. She was fine then. About a month after we went out, we got word she had a recurrence in her bones, but that they'd taken care of it with radiation. I thought sure she'd be ok, like Elizabeth Edwards. And that was the last I'd heard until tonight. I don't know what happened. I'm so sad. She had young children.

Another friend also has a recurrence and needs prayers. He went through a very rough course of treatment last year for appendix cancer. It's a very difficult cancer to treat/cure. I'm not sure what they can do now but he's having surgery this week to start. He also has a young son.

On a happy note, my oldest neice got engaged this weekend. I was a crying fool when she told me, I'm so happy for them. When we were at Disney in January, they met us for the day. We have a great picture of the six of us on EE, my neice with her hands covering her head, LOL. I just love the way they are as a couple. He's a sweetie. So this will be the first wedding on either side of our families of that generation. The news occurred at her parents 25th anniversary party, DH's sister. I sat next to my SIL at the dinner (DH's brother who passed away last year's wife) and it was the first time I saw her without her wedding rings. So the night was bittersweet. I give her a lot of credit for how courageous she's been this past year. She's actually offering support to others now who've also been widowed.

Linda, I really thought bone mets, although certainly not a good outcome, are not as serious as mets elsewhere. This is distressing. How long ago was she diagnosed with the bone mets?

Sorry about your friend with appendix surgery. I have not heard of anyone with that type before.

Congrats to your niece! And what a perfect occasion to announce it, at her parents' 25th anniversary party.

Your SIL does sound courageous. I bet she is getting a lot out of the experience of helping others with the grief process. Kind of like what you do here, lots of us here actually.

Happy birthday, honugirl. Love your idea of the pink and purple cane. My sister has used a cane for years after she suffered a devestating fall in 1995 when working as a respiratory tech in a New Orleans hospital. It amazes me what she accomplishes, despite her disability, particularly teaching music to kids.

She is a very inspriring person.

Maureen, sorry to hear you are working so much. I had a 12 and a half hour day yesterday when we had to travel out of town for a "team meeting." DH did not get home until 10 pm either, luckily DD13 visited with mom most of the day, and DS20 was working.

I do feel guilty about being preoccupied so much with work and not being with DD13 as much as I would like. It is good she has so many friends in the neighborhood, not to mention activities during the summer. She is going to camp for two weeks starting June 20th so I will work myself silly for that time period.

Your cruise will be wonderful. I hope your dad joins you. Will both of your sons get to go?

GAGWTA!!

 

[Candy30]

Thanks! yes she is traveling with me. She is doing pretty good and the others are watching out for her too so I can get photos and grab things in a shop if we are short on time.

Sha, I think its great to have your Mom with you. My Mom is coming with us to Disney in Sept and she has more pep in her step than all of us! She is a BC survivor too!

I just got an email from my friend of the dinner group of survivors I go out with. One of the girls in the group passed away this morning. Last time we went out she and I sat across from eachother and chatted the night away. She was fine then. About a month after we went out, we got word she had a recurrence in her bones, but that they'd taken care of it with radiation. I thought sure she'd be ok, like Elizabeth Edwards. And that was the last I'd heard until tonight. I don't know what happened. I'm so sad. She had young children.

PNM I am so so very sorry about your friend. It is difficult thinking about the young children. That has to be hard.

I know both sides of the family are excited about the wedding. That is something great to look forward too.

If I get a cane, I want a really sweet one. Like pink with purple flames or something on it. Nothing "normal". I need something kind of punk rockish...
Rock that cane Honugirl!


Actually, my older one helped me get my original diagnosis. He could smell the changes in my hormones. If he went crazy and started licking my face I knew to test and he was pretty much right on the money every time.

I think that is so cool.

Happy Birthday, Honugirl! Adjust your expectations, but do something really nice for yourself today. How about a great, big bouquet of flowers? (I bought some for myself last night. It was actually something I was ordered to do by my social worker when I was in treatment and very down. I still do it because looking at flowers always cheers me up.)

Honugirl do something for yourself! What about a spa day? A manicure and pedicure? It always makes me feel better! Do something special for yourself you deserve it girl!

Good morning ladies

Gotta get in here before the 2 ds start fighting over the computer too. Hmm, maybe a laptop is in our future?

Yeah my son has his laptop from school home now so I don't have those arguements anymore.

Well my dh might have to go around the world the last 2 weeks of July. I hate those trips but at least he wont be alone. Might go to Toyko, Bejing, Shanghai,Moscow, Siberia, somewhere in Denmark or Sweeden and Auckland, New Zealand.

GTAGWTA, Blessings to you all.

WOW That is so nice he gets to travel! Are you going with him? Are you allowed? That would be so awesome.

GAGWTA everyone! I am sitting here just exhausted, but I wanted to say a quick hello! I will read back a few days and catch up tomorrow. I have been absolutely swamped at work. And the one year mark from my mom's death is quickly approaching. I am a bit depressed about it. I will be happy when June is over.

I always get down around the time my Dad died.

I do feel guilty about being preoccupied so much with work and not being with DD13 as much as I would like. It is good she has so many friends in the neighborhood, not to mention activities during the summer. She is going to camp for two weeks starting June 20th so I will work myself silly for that time period.

Your cruise will be wonderful. I hope your dad joins you. Will both of your sons get to go?

GAGWTA!!

I feel guilty about that during treatment with my daughter because I have to work so much. She has a lot of friends too which helps but I still feel bad too. I always make a point to do something special with her afterward. Lunch and mall trip or manicures. Maybe that will work with you.

I had a nice weekend. My sister gave me a surprise anniversary party. All of my bridesmaids were there, including one from LA and another from Boston. I cried. She was also able to locate a close friend of mine from FL. It was great! I was crying. It was great! We went and had breakfast before everyone left for their flights. That was a crying fest then too.

We are still carless. We may be able to look tonight for a car. Not really looking forward to this. But I am not going to complain.

GAGWTA
Hang in there everyone!

 

[snappy]

OK you have an awsome sister there. What a terrific anniversary, bridesmaid and all.

I like the ideas about manicure and shopping.

DD13 needs stuff for camp. Not exactly a girly thing, but if I pair it with a mannicure, priceless.

She just did her own manicure over the weekend, with each nail having a different pattern on top of light pink. She couldn't hit softballs with DH until they dried.

He gave her a hard time about it. She is right on the line between tomboy and girly girl. Wonder how much longer this is gonna last?

Off to figure out accounting for bingo. Wish me luck!

 

[luvmarypoppins]

Hi Sistas!

Nervous Nellie here. Of course I am worrying and obsessing about tomms. operation. Hmm, why do I hate operating rooms so much? I am sure its something traumatic from the childhood operations.

Maureen - your cruise sounds wonderful, Praying for your dad.

Candy - your anniv. party sounded fantastic. Wow I was thinking of doing that one time. But my maid of honor, my sister, is deceased,my cousin bridesmaid doesnt speak to me and my dh has better luck and is still friends with the best man and 1 usher. The other usher was my bff now ex husband. Thats why I think its just so wonderful you all got together.

Well ds21 got a job at costco selling cell phones. His friend will actually be his boss. I don't know how long this will last, if its just for the summer etc, since he will have ft college in the fall etc. He has to go get a drug test. I told him to find out more about this. I am thinking he has to pay for it himself and worse, he doesnt have a pcp and I dont want to have him go to mine. He doesnt need a physcial, just the test but I am thinking he wil need a script since our ins. will only pay for 1 lab etc. I will let him find out about this.

GTAGWTA. Blessings to you all.

 

[lookingforward]

Linda, I really thought bone mets, although certainly not a good outcome, are not as serious as mets elsewhere. This is distressing. How long ago was she diagnosed with the bone mets?

Sorry about your friend with appendix surgery. I have not heard of anyone with that type before.

Congrats to your niece! And what a perfect occasion to announce it, at her parents' 25th anniversary party.

Your SIL does sound courageous. I bet she is getting a lot out of the experience of helping others with the grief process. Kind of like what you do here, lots of us here actually.

Happy birthday, honugirl. Love your idea of the pink and purple cane. My sister has used a cane for years after she suffered a devestating fall in 1995 when working as a respiratory tech in a New Orleans hospital. It amazes me what she accomplishes, despite her disability, particularly teaching music to kids.

She is a very inspriring person.

Maureen, sorry to hear you are working so much. I had a 12 and a half hour day yesterday when we had to travel out of town for a "team meeting." DH did not get home until 10 pm either, luckily DD13 visited with mom most of the day, and DS20 was working.

I do feel guilty about being preoccupied so much with work and not being with DD13 as much as I would like. It is good she has so many friends in the neighborhood, not to mention activities during the summer. She is going to camp for two weeks starting June 20th so I will work myself silly for that time period.

Your cruise will be wonderful. I hope your dad joins you. Will both of your sons get to go?

GAGWTA!!

The boys are definately going. We all are. My dad is on the fence, we will see how things go. Today I gave a two hour training to the officers and was on my feet for the entire time. I was exhausted. Its a busy time of year in law enforcement! Last month we had 138 domestic reports. All of which are my responsibility to review.

Camp sounds like a great time for your DD! I used to LOVE camp. I am sure she understands about your work schedule, but I feel the same way. I keep playing the lottery but no luck so far!

I am so sorry for those who have lost friends or group members. Tomorrow is my support group meeting and I am always so conflicted about going. I generally feel better but when I hear about someone who has had a recurrance it scares me. However, the women who have reached out to me are so supportive and wonderful company. We go out for dinner after the meeting and we laugh and talk. Its comforting. So I will most likely go just to see them.

 

[luvmarypoppins]

Guess who? and guess who's surgery got bumped until 3:45 pm. Yup, yours truly. I am just so not happy about this. The other surgery latest time I had was 2 pm. I just feel like the surgeons have already had a long day and just want to get out of there etc. I can live with the no eating and drinking stuff but I hate these late time starts. Hmm, o.k. sista Sha, your prediction has come true!

Its dreary here again. Will the sun ever come back? This weather is terrible.Well at least we dont have to water our grass!

I wanted to see if ds17 would even give me a hug or a kiss etc. Well I just said Oh, I won't be here when you get home. All he says is , well make sure the door is open. Gheesh. Hmm, I doubt I will do any better with the other 2 ds. I wil see what happens. I guess its just boys??

Maureen - wow that is sure alot of domestic reports. Wow, that is just so sad. Is that a normal amount and do you think the economy has anything to do with people stressing out etc? My cousin is a dispatcher and although she cant tell me anything I usually here about the worst stuff on tv or radio etc.

Well hope you all have a great day, GTAGWTA.

 

[snappy]

LMP, not another bump in the road. That is terrible to have to wait. It is hard enough to get your gumption up to go through surgery without having a longer time to anticipate it.

I agree that earlier is better.

I experienced the same non-chalant attitude from my older kids (daughter and son) when I did surgery, although my now DD13 was much more sympathetic.

I am not sure if it is boys or the age. I think they may be in a bit of denial.


Good luck with the surgery and post when you can. Sending prayers and pixie dust your way.

How long will you be in the hospital?

 

[Pea-n-Me]

I am so sorry for those who have lost friends or group members. Tomorrow is my support group meeting and I am always so conflicted about going. I generally feel better but when I hear about someone who has had a recurrance it scares me. However, the women who have reached out to me are so supportive and wonderful company. We go out for dinner after the meeting and we laugh and talk. Its comforting. So I will most likely go just to see them.

I'm sorry, Maureen. I always hesitate to post that type of stuff because I know how scary it is to hear. I was just so blown away and upset, I figured who better can understand that than all of us?

There was even more unsettling news from that friend of mine, not cancer related, that I didn't share it the other night. It's been bothering me, though. The only thing good I think that comes out of news like that is that it helps us all appreciate the everyday, mundane crap that happens (with our kids), even when we're annoyed. Anyway, I met a (different) woman through this friend of mine. We sat together at a party my friend had one night. Several weeks after the party, this lady's DD19(or so) was killed in a car accident. She was obviously devastated. But she still had her son. My friend told me the other night, along with the news about the girl in our group, that this lady lost her son recently in a boating accident out of state. I mean, really, how much can one person take??

I really thought bone mets, although certainly not a good outcome, are not as serious as mets elsewhere. This is distressing. How long ago was she diagnosed with the bone mets?

It was probably about a year ago. Does anyone remember the Hillary Clinton story? That was her. And she was fine that night. Dx'd shortly afterward with bone mets. I talked to my friend yesterday and apparently the mets accelerated elsewhere very, very quickly. I'll leave it at that. Hard to believe.

Sorry about your friend with appendix surgery. I have not heard of anyone with that type before

It's rare, and very difficult to deal with. By the time it's found, it's already usually spread throughout the abdomen. The surgeon has to try to get all of it out of there, when it's everywhere. Surgery usually lasts around 12 hrs; my friend's was 13. They then pour hot chemo in the abdomen to try to kill any remaining cells, though this is considered experimental and not covered by insurance (you might remember this story from last year). He also had systemic chemo to give him better odds. I did have a friend who works where he is check in on him yesterday, and she said his spirits are great. Thank you for any prayers sent his way, I believe they help.

lmp, hang in there.

 

[snappy]

I'm sorry, Maureen. I always hesitate to post that type of stuff because I know how scary it is to hear. I was just so blown away and upset, I figured who better can understand that than all of us?

There was even more unsettling news from that friend of mine, not cancer related, that I didn't share it the other night. It's been bothering me, though. The only thing good I think that comes out of news like that is that it helps us all appreciate the everyday, mundane crap that happens (with our kids), even when we're annoyed. Anyway, I met a (different) woman through this friend of mine. We sat together at a party my friend had one night. Several weeks after the party, this lady's DD19(or so) was killed in a car accident. She was obviously devastated. But she still had her son. My friend told me the other night, along with the news about the girl in our group, that this lady lost her son recently in a boating accident out of state. I mean, really, how much can one person take??


It was probably about a year ago. Does anyone remember the Hillary Clinton story? That was her. And she was fine that night. Dx'd shortly afterward with bone mets. I talked to my friend yesterday and apparently the mets accelerated elsewhere very, very quickly. I'll leave it at that. Hard to believe.


It's rare, and very difficult to deal with. By the time it's found, it's already usually spread throughout the abdomen. The surgeon has to try to get all of it out of there, when it's everywhere. Surgery usually lasts around 12 hrs; my friend's was 13. They then pour hot chemo in the abdomen to try to kill any remaining cells, though this is considered experimental and not covered by insurance (you might remember this story from last year). He also had systemic chemo to give him better odds. I did have a friend who works where he is check in on him yesterday, and she said his spirits are great. Thank you for any prayers sent his way, I believe they help.

lmp, hang in there.

Thanks for sharing, Linda, ALL the stories. You are correct, thinking about situations like this is a sort of reality check. Serves as a reminder not to sweat the small stuff.

Wish I could give you a hug. One day I will.

 

[honugirl]

GAGWTA everyone!

LMP, I hope everything went OK with the surgery. I hate when they push stuff like that back. Lots of hugs for a good outcome.

Looks like my local endo will approve my handicap placard. Yay! Now I have to convince my mom that it's a good thing to have. She's of the mind that it's only going to cause me to get weaker in the long run and by thinking of myself as "disabled" I'll suddenly become more disabled. So looks like the only time I'll be able to use it is when I'm driving myself around, which currently is about 5% of the time.

She's also not letting me use the cane either. So I get to hobble around looking like I'm 80 years old trying to find places to sit while I'm out 'cause I'm tired. Fun stuff. She says she doesn't understand how it will help me because I'm weak in both legs. I think she thinks I just need to try harder. I tried to explain to her that Cushing's destroys your muscles with the excess cortisol, then since I'm possibly growth hormone deficient, my body can't repair itself. I don't think she gets it.

Growth Hormone Stimulation test on Monday. I really wish it was sooner. I really need to know. I know 4 days doesn't seem like a lot to wait, but to me, it's an eternity when you can't do anything and you're always in pain.

 

[luvmarypoppins]

Heah sistas!! Well I am back to tell you the surgical tale!!

They took me in right away withhout dh, didnt like that. This was 1:45. I get the lovely Room 13 Nurse remembers me and has to do my iv twice since the lst one is not good. Then she comes and tells us surgeon is running late so it will be 1 hour delay. Well that was about 2 hours I think. Dr. comes and says hi, my papers are not signed correctly, Nurse gets another dr. etc. You can see how things are going. DH asked surgeon, are you awake etc., kind of joking. Dr. says something TOTALLY inappropriate to dh, like well that is a typical american comment!! WTH??? Hmm, I dont care where he is from, but I dont think that was called for at all. I didnt say anything since he has the knives!! Well I am freaking out now and low and behold, who comes in but my angel friend Edie. She used to be a waitress at a diner we go to and now she cleans the OR's. She sat and talked with me. Calmed me totally down. She tells dh later that the nurses were talking about me stressing o.k. Um, hello, my surgery was 3;45, I sat my butt in some chair till 7:15 PM. surgery start time. Yup. Edie told them to lay off me since I have been through hades!! Hmm, gotta love that lady. Dr. comes and tells dh the wound,infection etc. was way worse than he thought. He also took out some stitches from my perevious surgery that he thinks could have been the cause of this.

So now I have some nice pain meds, a giant hole the size of Texas in my stomach (sorry Elizabeth) and he says it will take a month to heal maybe.

Tomm. ds19 and I are going to the ent. Hopefully getting a surgery date for him and check up for me and then throwing in the stomach surgeon followup. too, So a busy day tomm. I will let ds drive. My stomach hurts too much.

Linda - sending you a . These things are hard to hear sometimes. They touch your heart just a little too much I think.

Honugirl - Thinking of you too,. I am siding with you and think the cane would be o.k. Praying your test would go well.

Thinking of you all. GTAGWTA.

 

[MerryPoppins]

Sorry I haven't been around much the last couple of days. My mom's best friend was here visiting. I've spent some time hanging out with the two of them. After all, she's like a second mother to me.

Everything is going well here. The only real news is that DH's uncle passed away ... cancer.

I can't begin to do a proper catch up, but sorry for all the sad stories lately. I know that stories can sometimes be scary, but this is a perfect place to share if you need to talk. That's what we're all about, right?

Glad that surgery is behind you LMP. Hopefully it'll heal more quickly this time.

We got our DVC reservations for January, so I guess the trip is for real. I think DH said we check in January 9 for about a week at Old Key West. Five of those days will be in the parks. Not sure what we're doing beyond that. Maybe just have some down time? I'll confirm the dates later for anyone interested. We're driving, so I'm pushing for a stop in New Orleans on the way home...even if it's just a quick stop at Cafe du Monde. We'll see if I manage that one. I know we are pressed for time because the kids are due back at school.

It's going to be a busy weekend. DS is in his girlfriend's mother's wedding on Sunday. We're planning to go. They're putting off their honeymoon until spring break and DS is invited to go along...on a cruise.

 

[luvmarypoppins]

Hi sistas - Debbie Downer here, and here is the clue to todays visit

First ds and I went to the ent. Ds got his surgery for July 30. It will be 2 hours in the main hosp. in case he has breathing problems. Next the ent said my voice is bad again. Hmm, o.k. come back in 2 months.

Then I go to the other surgeon for the post op. He says the operation didnt work. So there is going to be an operation #6. This will happen sooner than later. I go back on tues. and this time I am making dh come with me. I was alone while he was doing his procedures and I was grimacing etc. My favorite np was not with me, boo! So he said this new operation will be at least 3 days in the hospital. He is tearing out this mesh thing I have from 11 years ago and putting something new in and something about a slow healing process and a vacum thing? Hmm, where are our wonderful nurse sistas Linda and Sha? My head spins. So apparently one can take at least 6 operations in a year.

On the lighter side, ds 17 is getting some surprise award at school tonight. The principal called and asked if we could come, he knew I just had the surgery etc. So that will be a good thing.

Melissa - Sorry to hear about your dh uncle. Sending you prayers and sympathy.

Thinking of you all, Keeping praying for me. GTAGWTA.

 

[Sha]

Hi Ladies... wanted to let you all know that I lit a candle for all my friends today while at Bolton Abbey. I know it was a group candle lighting.. but that little light can shine.

I dont want to come home... am having a nice time and yesterday was the best.

Thinking of you all from across the pond...

 

[honugirl]

Hey LMP, thanks for the good thoughts. I'm thinking the cane might be good idea too. I found a really cool one.

So we'll see. My mom is dead set against it. She thinks it's just going to make me weaker.

I hope the next round of surgeries goes better. What rotten luck! But I'm sending big hugs and lots of pixie dust!

Sha, it's great to hear you're having such a good time over there. I loved England. I can't wait to go back.

Merrypoppins, congrats on the trip scheduled!

Need advice. What do I get to do for a 4-5 hour test? I can't move, I can only lay down for the entire test. Apparently moving throws off the growth hormone. So, I need ideas. The test is on Monday. I have an Ipod, so I'm going to bring that. Any other good suggestions? There is a very strong likelihood that I'll be nauseous for about half the test and I can't take anything for it. Is there any essential oils that I can sniff that would make me less nauseous? Thanks!

 

[luvmarypoppins]

Heah sistas

Honugirl - I really like that cane. I think you should definetely go for it girl!! Wow, that is a long test. I think the longest one I had with the machines and lying still stuff was about 1 1/2 hours while they were making a movie of my stomach. Worse, I had to listen to the bad music they were playing and the people disappeared and left me alone for long periods of time. I just kept singing my favorite christian praise songs to myself.

Sha - You must be seeig some pretty amazing sights

O.K. sistas , why or why do I read the internet?? Of course today I freaked out as I was watching a you tube video of this vac change thing that the dr. says I am suppose to have? All the comments are stuff like pain and horrible stuff. Also it showed a nurse coming to the house. I really dont want anyone touching my body but my dh. We will definetely need to talk to the dr. about this. I am getting totally, totally upset about this.

Well the ceremony was really long last night. But ds got something called the Barnabas award, named for the son of encouragement in the bible. It was given to only 3 high school students based on their character. A girl won and also so did Alyssas younger brother. They couldnt make it. Well the award was for $500 to be deducted from the new years tuition, so that was really a blessing. We went out to dinner later to celebrate. DS 21 came with us, ds 19 had to work.

Hope you all have a great week end. Thinking of you all. GTAGWTA

 

[snappy]

LMP, sorry you are so upset about what you saw on the internet. You really need to be fully informed by your doctor as to what your facing. As long as you have all the info, you can steel yourself for what you have to do to heal.

I would make a new appoointment and request full disclosure as to what you will expect.

In writing would be ideal.

That is what I received before reconstruction. I had to sign the bottom of every page describing the surgery, the possible complications, the healing process, etc.

Congrats to your son!! I never hear of such a scholorship DURING high school. That is awesome. You have done well, mom.

Honugirl, I can't imagine remaining still for a test of that duration. I remember having difficulty with a bone scan that was only a hour long. The worst part was being told we need to go back and check part of it again.

I would think you could be lightly sedated? I would at least inquire.

Sha, thanks for thinking of us. I can't wait to hear all about your trip.

GAGWTA!!!

 

[honugirl]

GAGWTA everyone!

Heah sistas

Honugirl - I really like that cane. I think you should definetely go for it girl!!

Thanks! I think I'm going to order it later today. Every girl needs a fashionable cane.

Wow, that is a long test. I think the longest one I had with the machines and lying still stuff was about 1 1/2 hours while they were making a movie of my stomach. Worse, I had to listen to the bad music they were playing and the people disappeared and left me alone for long periods of time. I just kept singing my favorite christian praise songs to myself.

Yup, it's a really long test. They draw baseline labs, then inject glucagon (yup, the stuff diabetics get when they're low). Then draw blood every 1/2 hour after that. I can't move because when you move you increase your growth hormone. I think my mom is going to bring the little DVD player for me. I've got Cars and some other movies here I could watch.

An hour and a half is bad! I've been stuck in an MRI for 2 hours. People left me alone too. It really stunk! Glad you had those songs to sing. That's what I do when I'm stuck in those things too.

Sha - You must be seeig some pretty amazing sights

O.K. sistas , why or why do I read the internet?? Of course today I freaked out as I was watching a you tube video of this vac change thing that the dr. says I am suppose to have? All the comments are stuff like pain and horrible stuff. Also it showed a nurse coming to the house. I really dont want anyone touching my body but my dh. We will definetely need to talk to the dr. about this. I am getting totally, totally upset about this.

Stop reading the internet, except here of course. I'm sure it's not as bad as what you see. When I looked at my first pituitary surgery on youtube, it looked horrible, but the actual procedure was a walk in the park (relatively speaking). I hope that everything goes OK. Hopefully your DH can learn to do the procedure.

Well the ceremony was really long last night. But ds got something called the Barnabas award, named for the son of encouragement in the bible. It was given to only 3 high school students based on their character. A girl won and also so did Alyssas younger brother. They couldnt make it. Well the award was for $500 to be deducted from the new years tuition, so that was really a blessing. We went out to dinner later to celebrate. DS 21 came with us, ds 19 had to work.

Hope you all have a great week end. Thinking of you all. GTAGWTA

Congrats on the award! That's really cool.

Honugirl, I can't imagine remaining still for a test of that duration. I remember having difficulty with a bone scan that was only a hour long. The worst part was being told we need to go back and check part of it again.

I would think you could be lightly sedated? I would at least inquire.

Sha, thanks for thinking of us. I can't wait to hear all about your trip.

GAGWTA!!!

Hey Snappy! I can't take any of my morning meds, including my zofran or phenergan and those will only be given if I vomit repeatedly (which I've been warned might happen). I asked about sedation and they said no to that because it might interfere with the reaction they're trying to create.

I think I'll go down to Barnes and Noble there's a new book out I really want. I'll get some cool magazines, like you know, Cosmo, Glamour, etc.

I'm also going to bring my night mask to see if I can sleep. Who knows.

I've been in the MRI when they've said we have to do part of it again, I almost murdered the lady. I'd been in there for an hour and a half already...

Hugs for everyone! I hope y'all have a good weekend!