Child w/Cerebral Palsy + one w/heart concerns - WDW

suzybeezy

I'm taken, but I have two evil stepsisters - lol
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Mar 20, 2007
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We're planning a vacation to Disney World end of April and I'd like to ask some questions before we get there. Any help you could provide would be appreciated.


My son, Zach, 7, is not in a wheelchair but definately has stamina issues. He can walk, but not for long periods. We plan on getting a double stroller. My other son, Danny, 5, has developmental delays with a leaky aortic valve - and gets overheated easily. Our last trip, in May 2004, with my son Zach was fine. We were there through Make-A-Wish and he wore a little button that helped ease us through lines fairly quickly. My son Danny, overheated and was miserable. He got so cranky and overwhelmed we had to leave the park and go back and cool off at the pool.

This year we're going and making all the plans on our own. We will be staying off site at the Meridian Hotel - anyone ever been there?

1. Guest Assistance Cards. I understand from reading that these cards are provided at Guest Relations. I will be getting a letter from the doctor, just in case, to explain my kids issues. Waiting in long lines would not be good for either boy. I understand these cards are not a free pass to the front of the line, but do they help? What are the qualifications required, what does having this card actually do? I understand there are some rides with special access, but not all - which rides don't have special access? What can I do to ensure my kids have a good time and don't have to wait in long lines?

2. Parking - Since my son does not use a wheelchair, is it better to park in disabled lot or regular parking and use the tram? Which will provide the least amount of walking for my son?

3. Cost - Cost for the double stroller, how can we guarantee we get one, cost for parking? If we leave the park, do we have to pay again to come back later? We'll be using the stroller in place of a wheelchair. Will there be any problems fitting my 7 year old and 5 year on in the stroller?

4. Dining - I've checked out the restaurants in the parks - none overly impressive. We thought of going off site to eat. Any recommendations on a good value family dining meal?

5. Discounts - are there any easy to obtain discounts to dining or attractions?

6. Weather - what's the weather usually like at the end of April?

7. Crowds - I tried to do alot of research online about the peak seasons and I think the end of April is one of the better times. Anyone know what the crowds are like at the end of April?

8. Monorail - Not real well versed on the monorail system. Can we hop from park to park and leave our car in the parking lot? Is there a cost for riding? Where is the entrance to the monorail in the parks? Keeping walking considerations in mind, is it better to ride the monorail to hop parks or drive to each location?

Like I said, Zach can walk and his disability isn't overly noticable. He does have to wear leg splints. I'm wonder what I can do to help him be comfortable, wearing his splints and doing some minimal walking? I don't want him to get blisters (although he'll be in the stroller the majority of the time, I know Zach will want to get up and walk a bit). I also don't want him to fatigue and then be cranky.

9. Any advice on how to make the day as enjoyable as possible? We've already signed up for the customized maps through the disney site. We hope this will cut down on some of the walking - by not trackin' through areas where there are no rides the kids want to go on. What else can we do to plan ahead and make the trip as smooth as possible?

Sorry for so many questions, just want to make sure I'm as prepared as I can be to avoid any major headaches.

10 - Lastly - unrelated to Disney World. We're going to take 2 days to go to the beach. We were thinking one day Daytona Beach and one day New Smyrna Beach - any info on those beaches? Like where's the boardwalk actually located in Daytona? What are the pluses and minuses of each beach?
 
We're planning a vacation to Disney World end of April and I'd like to ask some questions before we get there. Any help you could provide would be appreciated.


My son, Zach, 7, is not in a wheelchair but definately has stamina issues. He can walk, but not for long periods. We plan on getting a double stroller. My other son, Danny, 5, has developmental delays with a leaky aortic valve - and gets overheated easily. Our last trip, in May 2004, with my son Zach was fine. We were there through Make-A-Wish and he wore a little button that helped ease us through lines fairly quickly. My son Danny, overheated and was miserable. He got so cranky and overwhelmed we had to leave the park and go back and cool off at the pool.

This year we're going and making all the plans on our own. We will be staying off site at the Meridian Hotel - anyone ever been there?

1. Guest Assistance Cards. I understand from reading that these cards are provided at Guest Relations. I will be getting a letter from the doctor, just in case, to explain my kids issues. Waiting in long lines would not be good for either boy. I understand these cards are not a free pass to the front of the line, but do they help? What are the qualifications required, what does having this card actually do? I understand there are some rides with special access, but not all - which rides don't have special access? What can I do to ensure my kids have a good time and don't have to wait in long lines?

2. Parking - Since my son does not use a wheelchair, is it better to park in disabled lot or regular parking and use the tram? Which will provide the least amount of walking for my son?

3. Cost - Cost for the double stroller, how can we guarantee we get one, cost for parking? If we leave the park, do we have to pay again to come back later? We'll be using the stroller in place of a wheelchair. Will there be any problems fitting my 7 year old and 5 year on in the stroller?

4. Dining - I've checked out the restaurants in the parks - none overly impressive. We thought of going off site to eat. Any recommendations on a good value family dining meal?

5. Discounts - are there any easy to obtain discounts to dining or attractions?

6. Weather - what's the weather usually like at the end of April?

7. Crowds - I tried to do alot of research online about the peak seasons and I think the end of April is one of the better times. Anyone know what the crowds are like at the end of April?

8. Monorail - Not real well versed on the monorail system. Can we hop from park to park and leave our car in the parking lot? Is there a cost for riding? Where is the entrance to the monorail in the parks? Keeping walking considerations in mind, is it better to ride the monorail to hop parks or drive to each location?

Like I said, Zach can walk and his disability isn't overly noticable. He does have to wear leg splints. I'm wonder what I can do to help him be comfortable, wearing his splints and doing some minimal walking? I don't want him to get blisters (although he'll be in the stroller the majority of the time, I know Zach will want to get up and walk a bit). I also don't want him to fatigue and then be cranky.

9. Any advice on how to make the day as enjoyable as possible? We've already signed up for the customized maps through the disney site. We hope this will cut down on some of the walking - by not trackin' through areas where there are no rides the kids want to go on. What else can we do to plan ahead and make the trip as smooth as possible?

Sorry for so many questions, just want to make sure I'm as prepared as I can be to avoid any major headaches.

10 - Lastly - unrelated to Disney World. We're going to take 2 days to go to the beach. We were thinking one day Daytona Beach and one day New Smyrna Beach - any info on those beaches? Like where's the boardwalk actually located in Daytona? What are the pluses and minuses of each beach?

Answering the ones I can:

Parking- I would not use H/C parking, even if you have a tag, as these spots are quite a haul from the park entrances. I would let the parking attendants know you have someone with limited mobility- they will direct you to park at the end of a row, right at the tram stop. I beleive parking is $10/day- hold on to your receipt, if you leave and come back or go to another park, you don't have to pay again.

Strollers- they don't usually sell out, even in peak seasons, so getting one won't be a problem. I think they still have the pre-pay option, where you can pay for your length of stay the first time you rent. If you plan to park-hop, keep your receipt and just show it at the next park, you DO NOT have to pay twice. A 7 YO and a 5 YO might be a tight fit even in a double, depending on their sizes. If you have another adult or older kid with you, I would get two strollers.

Dining- don't let the menus fool you, the food is good, usually. Plus, if you are at the Magic Kingdom or Epcot/MGM, you can pop over to the hotels (using Disney transportation) and have a nice quiet relaxing lunch or dinner. Every chain you can think of has a restaurant in the Disney area, so off-site dining should be fine. In the parks, your boys might enjoy dining with the characters- the Crystal Palace in the MK has a great all-day buffet (B,L,D) with Pooh and friends that is good.

Weather- at the end of April the days are warm but not humid- mid to high 80's are typical. The nights are cooler, maybe low 70's.

Crowds- there is no real 'slow' season at Disney anymore. That being said, the end of April is slower- spring break and Easter are over, schools are still in, and senior trips usually haven't started yet.

Monorail- The monorail only goes to the Magic Kingdom and Epcot. There are buses and boats everywhere else. Disney transporation is free with your admission. All transporation is outside the turnstiles. Yes, you can hop from park to park as long as you have the park-hopper optioin on your admission. If you are planning on park-hopping, leave your car where you are going to end the day- take the bus to where you want to start. However, if you don't do this, don't worry! Disney transportation runs at least 2 hours after the last park closes, so you won't be stranded.

Don't overplan! I know, easier said than done. But make the time to stop and look around. Sit on a bench and eat Mickey bars. Try on silly hats in stores. Look for people wearing Bad Shoes. Your kids might enojy looking for Hidden Mickeys- images of Mickey's head hidden in attractions, rides, shops- well just about everywhere! There's a book on them and some websites too.

Hope others can help with the rest of your questions. Have a fun trip!
 
1. Guest Assistance Cards. I understand from reading that these cards are provided at Guest Relations. I will be getting a letter from the doctor, just in case, to explain my kids issues. Waiting in long lines would not be good for either boy. I understand these cards are not a free pass to the front of the line, but do they help? What are the qualifications required, what does having this card actually do? I understand there are some rides with special access, but not all - which rides don't have special access? What can I do to ensure my kids have a good time and don't have to wait in long lines?
If you haven't already looked, check out the disABILITIES FAQs thread near the top of this board. There is a section about GACs.
The card you got on your MAW trip is only given for MAW trips. The MAW GAC gives basically front of the line access. The regular GACs don't give that complete of access, but your children's needs will be accomidated.

What gets put on the GAC depends on the needs of the person. In your children's case, you could request a place to wait out of the sun and heat and to bring the stroller into lines and have it treated as a wheelchair. A doctor's letter is not required. If you do bring one, it should talk about the child(ren)'s needs rather than about their diagnosis.
2. Parking - Since my son does not use a wheelchair, is it better to park in disabled lot or regular parking and use the tram? Which will provide the least amount of walking for my son?
I agree with phillybeth
3. Cost - Cost for the double stroller, how can we guarantee we get one, cost for parking? If we leave the park, do we have to pay again to come back later? We'll be using the stroller in place of a wheelchair. Will there be any problems fitting my 7 year old and 5 year on in the stroller?
Here is a link to the allearsnet page about strollers. It includes links to pictures of the strollers, including the double strollers. Your kids should fit together in the double. I have seen many larger kids sharing one. I don't think you have to worry about them running out of strollers in late April.
When you leave the park, keep your receipt for the stroller and you can get another without paying again.
Also, keep your parking receipt and you will not have to pay for parking again. I don't know the cost of parking because we stay on site and it is free for people staying at WDW resorts.
4. Dining - I've checked out the restaurants in the parks - none overly impressive. We thought of going off site to eat. Any recommendations on a good value family dining meal?
I agree with phillybeth on this too.
In addition, if you go off site to eat, you will be spending a lot of time traveling. The places that are less expensive off site options are mostly semi fast food places, like Perkins.
5. Discounts - are there any easy to obtain discounts to dining or attractions?
Check on the Theme Parks Board for places to get discounted tickets. You want to make sure it's a safe discounted place.
6. Weather - what's the weather usually like at the end of April?
nice weather, not usually real hot or humid.
7. Crowds - I tried to do alot of research online about the peak seasons and I think the end of April is one of the better times. Anyone know what the crowds are like at the end of April?
We have been there at the end of April and the crowds are usually not so bad. Spring break and Easter are done and since school is in session, people are not starting their summer vacations yet.
8. Monorail - Not real well versed on the monorail system. Can we hop from park to park and leave our car in the parking lot? Is there a cost for riding? Where is the entrance to the monorail in the parks? Keeping walking considerations in mind, is it better to ride the monorail to hop parks or drive to each location?
agree with phillybeth
9. Any advice on how to make the day as enjoyable as possible? We've already signed up for the customized maps through the disney site. We hope this will cut down on some of the walking - by not trackin' through areas where there are no rides the kids want to go on. What else can we do to plan ahead and make the trip as smooth as possible?
If you can get to the parks early, you will find less people. Even during Spring break/Easter, it's possible to ride most of the attractions in Fantasyland with very short waits (like walk right on for some) if you go early in the morning.
 
Thank you so much for all the helpful information phillybeth. There's no such thing as overplanning for me, just part of my nature. I'm just very concerned how my boys special needs will effect our visit. I want to make sure I'm well prepared to minimize as much chaos as possible, while making the trip as enjoyable as possible for the boys.

I hadn't thought to look into dining at a Disney hotel, I'll definately do some research. My concern over the Crystal Palace buffet was the menu - the kids are on the picky side. When we visited previously we had the Cinderella castle breakfast, but it was way to expensive to do again.

Any additional information would be helpful, partcularly about the rides (like the ones that have special access - which ones don't, how you use them and when) and maneuvering the parks for my child with CP, and the overheating concerns for my son with the heart concerns, would be most appreciated.
 

My concern over the Crystal Palace buffet was the menu - the kids are on the picky side. When we visited previously we had the Cinderella castle breakfast, but it was way to expensive to do again.
The Crystal Palace is also sort of expensive because it is a character meal, but it has a large variety of foods. It includes a kids buffet area with things like Mac & Cheese, chicken nuggets and pizza. But, there are also salads, mashed potatoes and other more interesting things. We were concerned when we took my nephew there a few years ago because he is a picky eater. He found enough to eat that he said he wished we could go again the next day.
Any additional information would be helpful, partcularly about the rides (like the ones that have special access - which ones don't, how you use them and when)
In the disABILITIES FAQs thread, there is a link to the WDW website and their Guidebook for Guests with Disabilities for each park. They are not very detailed, but do tell you which attractions are 'Mainstream Access' which means that the lines are totally wheelchair accessible and people with wheelchairs wait in the same lines with everyone else. AK and the Studio were built with Mainstream Access, but Epcot and MK were not because they were built much earlier. Many of the Fantasyland attractions have special access for people using wheelchairs - that is listed in the Guidebook for MK. Most of the newer or renovated attractions at MK and Epcot have been changed to Mainstream Access if possible.
The attractions generally have a greeter CM stationed near the entrance. You can ask that CM if you have questions about access.
and maneuvering the parks for my child with CP,
I'm not sure what sort of information you are looking for here, so it would be helpful if you could clarify a bit.
My youngest DD has CP. She doesn't walk and uses a wheelchair full time. All the WDW parks are very accessible. If you see a set of stairs, you will find a ramp or elevator nearby.
and the overheating concerns for my son with the heart concerns, would be most appreciated.
If you go to the parks early, and then head to one of the resorts near that park when it starts to get hot, that will help. All the resorts have a game room if your children are into games and you can also look around the lobby (nice comfy chairs to sit in and some have TVs with Disney movies playing for the kids). You can head back to the park later in the day when it has cooled off.
All of the parks have a Child Care Center and First Aid. Those are cool, calm and First Aid is quiet in case your kids need to rest. If they just need to get out of the sun for a while, the Child Care Centers usually have movies playing and places where the kids can just chill out for a while.
 
Are you staying on Disney property? If so, you'll find a lot of advantages that may help you. Firstly, you can use Disney transport if you want, which could take some of the hassle off (though be aware that they can get fairly crowded at certain times of the day), secondly, you get free parking if you decide to drive. A lot of people like to get into the park for opening, spend the morning there until it gets too hot and crowded, then head back to the resort for some TV, air con and maybe a swim. Then it's back to the parks for the evening to see the entertainments and catch a few rides. Also resort guests get Extra Magic Hours, which means they're allowed into the park an hour early, or allowed to stay in the park for up to 3 hours longer, than all other visitors.

If you take the day slowly, with a break over the hottest part of the day (about 12-3), spend plenty of time in the A/Ced shows and stores and get a GAC for sun and heat sensitivity, you should hold up OK. One suggestion I've picked up from the DIS is to take a flannel in a zip-lock bag for each member of the family. They you can dowse down at regular intervals. The mini fans with misters are very good for keeping cool too.

Just thought, Tom Sawyers Island won't be that great for either of your kids. None of it is wheelchair accessible and there's no AC to retreat into for the younger one. I spent too long on the island on my first day and paid for it with mild heat stroke the next :sick: not good.
 
One suggestion I've picked up from the DIS is to take a flannel in a zip-lock bag for each member of the family.
translation from British English to American English:
flannel=washcloth

Another hint that made me think of; you can get a cup of ice for free from any of the places that sell drinks by the cup - counter service restaurants, not just the booths that sell bottles of pop.
 
If you go off property to eat, try golden corral - its a huge buffet place with a little of everything. its especially great for breakfast.
 
Thank you so much everyone for your advice. I'm sorry my first reply didn't contain a noted thank you to you sueMN - somehow I didnt see your post. But the information is helpful. Additionally thank you KPeveler and OneLittleSpark. Its wonderful that you folks all take the time to help another out.

I'm still very nervous about the trip cause I know my son and know that his endurance is low and will turn a fun day into a day of aggrevation when he gets over-tired. Like I said, with Danny, last time we were there he got so overheated it was alarming - and he got deliriously cranky. So I'm just trying to prepare as much as I can to avoid the meltdown, while taking into consideration financial concerns.

We just purchased our tickets to the parks and were originally only going to purchase a four day hopper pass, but the clerk told me that it was only a dollar more a ticket to get the five day hopper pass - so we did. So we can now slow down our pace and have an extra day to pick up anything we missed.

I'd love to eat on site to avoid the driving back and forth. So far I found Pinocchio Village Haus in Fantasty Land, MK. I wasn't able to find anything in MGM. I haven't looked at the menus for Epcot and Animal Kingdom. I believe we'll probably go back to the Italian restaurant in Epcot cause we enjoyed that meal so much the last time we were there. So that really only leaves a problem with Animal Kingdom and MGM. For dining at the Disney Resorts - any suggestions? How would we get there - monorail, bus, car?

I did check out the FAQ DisAbilities before I made my post. I found it helpful but call me an overcautious mom - just trying to find some feeling of security before I leave so it can be a really fun vacation - Lord know I need it - and the kids really deserve a break from all the doctors and therapists.

I'll be doing more research and digging - I can't help it - just the way I am. I still need to write up an Itinerary - it wont be regimented, but a basic idea. Hope no one is laughing how much I fret over this kind of stuff. I know I'll need a vacation from my vacation. :)
 
BTW - thank you so much for the link to see a picture of the strollers - what a sigh of relief! My kids will have no problem fitting in those. Mark that off my list of things to worry about :goodvibes
 
Thank you so much for all the helpful information phillybeth. There's no such thing as overplanning for me, just part of my nature. I'm just very concerned how my boys special needs will effect our visit. I want to make sure I'm well prepared to minimize as much chaos as possible, while making the trip as enjoyable as possible for the boys.

I hadn't thought to look into dining at a Disney hotel, I'll definately do some research. My concern over the Crystal Palace buffet was the menu - the kids are on the picky side. When we visited previously we had the Cinderella castle breakfast, but it was way to expensive to do again.

Any additional information would be helpful, partcularly about the rides (like the ones that have special access - which ones don't, how you use them and when) and maneuvering the parks for my child with CP, and the overheating concerns for my son with the heart concerns, would be most appreciated.

Every buffet in Disney has a kids' area, with chicken fingers, pizza, fries and other sorts of kid friendly items. Plus most kids would willingly just eat from the dessert bar ;)

I really think your younger son would best be served by a GAC, so he can wait in a shaded/airconditioned area when necessary. Some of the queues, especially in Fantasyland, are out in the open. For your older son, using the stroller as a wheelchair would probably be helpful to limit his standing/walking, but I don't know if they do that with park strollers.


EDITED TO ADD: If you let us know the types of foods your sons enjoy, we can help you find restaurants. Every park has a basic burgers and fries place and one that has hot dogs.
 
The foods my son likes are very plain - grilled cheese, chicken breast, pizza, french fries - stuff like that. Most of the nicer restaurants seem to have alot of fru-fru type foods. I've noted some that have the chicken fingers - but certainly don't want him to live on a diet of chicken fingers for a week. LOL - although he'd probably not argue too much about that.

Here's what I found so far:

Rain Forest Cafe - AK for dinner looks like it will work - albiet a bit expensive

Electric Umbrella in Future world Epcot - reasonably priced
Liberty Inn - Epco - another reasonable quick dinner
L'Originale Alfredo - Italy - my personal favorite - but very very pricey


Pinnochio Village Haus - FantasyLand MK - seems like a good fit
Crystal Palace - MK - looks like if we go to the lunch (which reads served til 3) it has a good array of things I think they'd like. If we push it til just before 3 it will be like an early dinner - we can always grab something togo on our way back to the hotel after we leave the park for the day.
Columbia Harbour House - Liberty Square - MK - looks like it would be ok and nice price


I need to keep in mind we're spending a minimum 2 days in MK and 1 full day at MGM. We're gonna split our day for Epcot and Animal Kingdom.

I'm sure there's someway I can work the itinerary to accomodate the dining - but not sure how yet.
 
Any of the sit-down restaurants will be able to get you fries, chicken fingers, grilled cheese, PB&J, mac and cheese, hot dogs, or a burger even if they aren't on the menu- Disney knows picky kids :thumbsup2

At AK, Pizzafari has great pizza. Tusker House has rotiserrie chicken that is excellent- better than Boston Market. Each park has at least one stand that sells McDonalds fries, as well as at least one stand that sells fresh fruit. If you want to do a sit-down at MGM, try the 50's Primetime Diner- great food, great atmosphere, and plenty of choices for kids.
 
Thanks for all the info. We decided on Pinnochio Haus, Crystal Palace (for 2 days at MK) and the Alfredo at Epcot; on the days we visit AK and MGM we're going to eat off site.

BTW - I'm a tad confused. It says that Nemo is at MGM (can't find it on the map) and its also at Epcot? Where is it really?
 
There is a Nemo Ride at The Seas with Nemo and Friends pavilion at Epcot. There is also a Nemo stage show at Animal Kingdom.

We love both!
 
IFor your older son, using the stroller as a wheelchair would probably be helpful to limit his standing/walking, but I don't know if they do that with park strollers.
People have posted that they were able to get a park rental stroller treated as a wheelchair.
suzybeezy The foods my son likes are very plain - grilled cheese, chicken breast, pizza, french fries - stuff like that.
Agree that you will find those most places.
Rain Forest Cafe - AK for dinner looks like it will work - albiet a bit expensive
It is noisy in there, which some people find to be a turn off, but other families like the atmosphere. There is a lot to look at while you wait for your food.
Electric Umbrella in Future world Epcot - reasonably priced
It is one of our favorite counter service restaurants.
Liberty Inn - Epco - another reasonable quick dinner
L'Originale Alfredo - Italy - my personal favorite - but very very pricey
Agree with what you wrote.
Pinnochio Village Haus - FantasyLand MK - seems like a good fit
The food is good and the atmosphere is pleaseant. A few tables overlook the loading area for Small World.
Crystal Palace - MK - looks like if we go to the lunch (which reads served til 3) it has a good array of things I think they'd like. If we push it til just before 3 it will be like an early dinner - we can always grab something togo on our way back to the hotel after we leave the park for the day.
One of our favorite places. We usually eat a late lunch and then have a very light, late supper.
Columbia Harbour House - Liberty Square - MK - looks like it would be ok and nice price
They have a pretty good selection and the food is good.

I don't know if you found both of these, but the DIS Boards and allearsnet both have menu databases. WDW dies change their menus around. By looking at both sites, you should get a better picture of what the menus actually have.
 
Thanks for the translation earlier Sue, my babel fish must have slipped!

A few more restaurants you guys might like to check out:

Pizza Planet (MGM) - The name kind of gives away what food it serves. The seating is surrounded by arcade machines (including air hockey :woohoo: ).

Cosmic Ray's (MK) - a chicken / burger / sandwich / salad type place. The great thing about this place is the lounge singer, Sunny Eclipse ( see http://images.mouseplanet.com/wdw/c...Tomorrowland/cosmic_rays_sunny_eclipse_01.jpg ).

I'm sure I'll think of more soon enough.

Hope this helps! :thumbsup2
 
If your son gets overheated, will going at a cooler time of the year be better for him? It can get pretty warm in Orlando in April, can't it? How about early December instead?

To avoid waiting in long lines, get to the parks before they open, and go straight to the attractions you want to ride on. Use Fastpass as much as possible too.
 
Thanks again for all the information - you guys are GREAT!!!!

We went to our pediatrician yesterday. He said my youngest son's heart will be just fine - he said to ask for the shaded areas to wait and have him drink alot of fluids. If I remember correctly, last time we went you could buy a large comemorative cup and keep refilling it for free. Do they still have that?

As for Zach, my son with CP, he said he will definately write something up and said he'd be specific as possible regarding stamina and fatigue.

I'm feeling a bit more comfortable now, after all this helpful information, I've been able to make a loose itinerary and have good information to be aware and prepared. Just always in the back of my head I wonder if I forgot something - or if there's something I haven't looked into. This is a great site, I'll be doing some more diggin' here. :)
 














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